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06-29-2007, 11:10 PM
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#1
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Member
Join Date: Jun 2007
Location: near Windsor, England
Posts: 25
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have you heard of Jane Tomlinson?
I have been reading the most uplifting book.
Jane Tomlinson is my hero. She has been living with advanced breast cancer for over a decade (after being given a few months to live). She completed a full ironman whilst on chemotherapy. I know that she was on herceptin. Have you heard of her in the US? You should all google her!
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06-30-2007, 01:02 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Riverside, CA
Posts: 484
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I just googled her, and Wikipedia states that she finished a course of Taxetere in April 2007, and that it was announced Spring of 2007 that she was "now too ill to train for future physical challenges".
Does anyone know more than that? Since she was diagnosed with mets in August 2000, she has been an almost 7 year survivor with mets.
What an inspiring story.
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06-30-2007, 02:50 PM
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#3
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Senior Member
Join Date: Sep 2005
Posts: 414
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I saw her on TV recently
She was overseeing a fundraising run that was named after her in Leeds and was talking to the local news reporters. She looked pretty good, but even my husband could figure out that she was on steroids because her face looked much puffier.
Jane was on the original herceptin trials in the UK and was recently honored by the Queen with a new title, Commander of the British Empire.
I know people who know her and apparently she is very nice and unassuming.
I am sorry to hear that she is not well enough to train, although impressed that she has done so well for so long without running out of drugs yet.
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07-01-2007, 01:13 PM
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#4
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Member
Join Date: Jun 2007
Location: near Windsor, England
Posts: 25
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I have read her two books
Her books are great- just what you need to give you hope. She is a real character. I think I'd better start running!
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07-01-2007, 11:28 PM
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#5
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Hi -
Is Jane t. the English woman who was bicycling across the United States with a small group last year? I think I read a couple of her hubby's posts on their web site that someone had directed me toward. She seemed to just barely make it to New York City and her hubby was disappointed in the small turnout that greeted them, if memory serves (last year I had 2 surgeries on my head and I am not sure of a LOT of things!).
Glad to hear she is still alive and doing her "thing" as it seemed she might be progressing further into stage IV last year.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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09-04-2007, 11:53 AM
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#6
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Senior Member
Join Date: Sep 2005
Posts: 414
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7 years and £1.75 million raised later, the luck ran out
Well, my husband just heard on the news that Jane Tomlinson passed away.
Still, she live about seven years to the day after she was diagnosed with secondaries to the fullest, raising £1.75 million (nearly $3.5 million) for charity in the meantime. She certainly did get busy living.
Here is the link to her BBC obituary:
http://news.bbc.co.uk/1/hi/england/w...re/6978667.stm |
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09-04-2007, 12:38 PM
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#7
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Senior Member
Join Date: Jul 2007
Posts: 43
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What A Warrior. What Type Of Bc Did She Have? Dorinda
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nov 2006 dx. with bc. 3 tumors removed from left breast lumpectomy done. her2 postive er+pr-. scans showed extensive spine mets(to many to count) ,3 tumors on left rib,one tumor on skull and 3 tumors on liver. stage IV from get go. dec.2006 started chemo taxol and herceptine wkly. zometa monthly. rescanned in march 2007, liver tumors shrinking a little. bones to early to tell but pain is gone in my back. rescanned in june 2007. liver mets gone, bone scan looking better but still alot in my spine. still on taxol and herceptine. zometa monthly. rescanned in august due to ca 2729 going up. liver still good , mets in ribs and skull gone but multiple areas still on lumbar and sacrum. mri of brain august 07 negative for mets.I AM BELIEVLING GOD FOR MY HEALING.
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09-04-2007, 01:06 PM
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#8
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Christine I too just saw this on the BBC an hour ago. I was so sorry to hear she had passed but she made her life so full since dx and enjoyed it to the full.
May she rest in peace..
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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09-04-2007, 02:22 PM
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#9
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Senior Member
Join Date: Sep 2005
Posts: 414
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Hi Dorinda,
She was definitely her2 positive because one of the reasons she lived a lot longer than expected was that she got on the herceptin trial for secondaries and had a very good response. Unfortunately, some people (including some who should have known better) said that her living so long was proof that she wasn't really terminal in the first place. I hope that she rests in peace.
Cancer Research UK has named its Leeds laboratory after her.
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09-04-2007, 03:47 PM
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#10
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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Does anyone know where her mets were? Just wondering, as it didn't say in the article..sherry
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Sherry
Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year
Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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09-04-2007, 04:11 PM
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#11
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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SHe was one tough lady. I am sorry that she has passed on and left her family behind. My prayers are with her husband and children.
Hugs and Prayers,
Lexi
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