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Old 06-22-2014, 09:48 PM   #1
BrendaB
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Join Date: Jul 2013
Location: Gettysburg PA
Posts: 16
Re: I'm NED

YES! YES! YES! So incredibly happy for you!
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2008-2011 calcifications, get mammo every 6 months, benign
11/11/11 new cluster of calcifications "We caught it early; easy fix" I almost feel guilty to say I have breast cancer, knowing that others go through so much.
11/22/11 stereotactic biopsy
11/29/11 MRI, original calcifications are also cancer
12/13/11 lumpectomy, not clear margins
12/27/11 re-excision, SNB 2 of 3 nodes +
er/pr- her2+
1/23/12 port placement
1/31/12 start 6 rounds TCH, Herceptin for a year
June, July 2012 35 rounds radiation
1/31/13 NED for a few months anyway
6/11/13 ultrasound guided biopsy, it's back; I'm furious this time.
6/24/13 mastectomy (left side), lymph nodes removed, 2 of 17 are +
7/5/13 CT scans clear
9/9/13 Rash,lump along scar; Biopsy;it's back again! Are you kidding me?
9/19/13 skin resection, skin graft from leg
10/1/13 PET scan, lymphatic invasion, nodes under right arm,supraclavicular nodes, sternum show activity. Considered metastatic.
10/10/13 Herceptin, while the team considers options.
11/7/13 Kadcyla, for a year, every 3 weeks.
1/15/14 PET scan shows NO metabolic activity! Happy dance! Thank you Jesus!
I refuse to let cancer take my Joy and my Peace!

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Old 06-22-2014, 09:55 PM   #2
Saygoon
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Join Date: Jul 2013
Location: Hot Springs, South Dakota
Posts: 158
Re: I'm NED

WOW!!WOW!!WOW!! this really gives me hope, congrats - here's hoping for many NED years to come.
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Paula T. (saygoon means dog, yes I am Native)
DX March 2012
Stage IV w/ 5 bone mets to spine 2 on ribs
Herceptin, Zometa, Taxotere and Anasterole and of course radiation
2/14/2014 2 mets on pelvic bone
Stop Anasterole continue on Herceptin and Zometa start radiation (again)
2/24/2014 start T-DM1 continue Herceptin and Zometa
4/28 more radiation that brings total to 5 (10 days ea) - I think I will soon glow in the dark....
6/01/2014 Great news! Rib mets gone, 4 of 5 spine mets showing new bone growth and pelvic mets shrinking.
8/28/2014 T11 on spine is being stubborn started Perjeta, Herceptin, Zometa and Taxol - goodbye hair!
9/04/2014 Tomo therapy - pain finally gone
1/3/2015 - starting New Year out as still stable. Feeling positive
2/23/2015 - problems with left leg, bone met flaring up - MORE radiation Whew!
2/24/2015 Stress fracture in right side of pelvic - (great just great) back to wheelchair then walker then.....
2/26/2015 Off Taxol!! Still on Perjeta, Herceptin and Hormone Blocker starting to feel a little more human.
4/10/2015 Cancer has spread to spinal fluid - not sure where I go from here
6/29/2015 Omaya Port placed,begin IT Herceptin on 7/7/2015
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