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Old 11-29-2020, 08:38 PM   #1
Mary Jo
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Location: Sheboygan, WI
Posts: 2,578
Checking in

Hello her2 sisters.....Its been a while since I checked in with you all. How are you? I will never forget you ladies and how important and helpful you were to me when I was new and struggling with my cancer diagnosis, my treatment AND my fears. I have reached 15 years since my diagnosis in June. Man, I remember back and hoped and prayed Id reach 5 years. How time and life changes.

Id love to hear how each of you my old friends and any new friends are doing.

Blessings and Thanks....

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

16 Years NED

<>< Romans 8:28
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Old 11-30-2020, 09:42 AM   #2
nancy dip
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Join Date: Jun 2007
Posts: 49
Re: Checking in

Hi Mary Jo. I don't visit here as often nowadays either but I was very pleased to see your post. There was a time when I was on this site every day...sometimes twice...and I have gained such a lot from it. Sadly, it does not seem to be as active as before but I stll check in occassionally. Best wishes to you for the future. Nancy
__________________
Found lump myself 8 months after routine mammogram.
29/11/06-WLE and then re-excision to get clear margins.
Tumour was 1.2cms; Grade3; Er+ Pr+ HER2 3+++; SNB negative out of 9 nodes.
Chemo was Epirubicin every 3wks x4 then Xeloda (2wks on, 1wk off) for 4 cycles. ( I am part of the TACT2 trial.)
Rads x25
Arimidex for 5 yrs.
Hoping to start Herceptin within the next 2 weeks (we have to follow the HERA protocol to qualify for Herceptin in the U.K.) I worry about the delay in starting Herceptin!! Started 8/10/07
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Old 11-30-2020, 05:00 PM   #3
Laurel
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Location: Hershey, PA. Live The Sweet Life!
Posts: 2,002
Re: Checking in

Hey there, Mary Jo!

Good to hear from you! Hope your Thanksgiving was pleasant. Like you, I do not get on here as faithfully as in the past. Life gets in the way. Like you, I am doing well at soon to be 13 years post diagnosis. Time does fly.

Glad you popped by. Wishing you continued health and happiness.

Laurel
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Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

13 Years NED
I think I just might hang around awhile....

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Old 12-03-2020, 07:44 AM   #4
Becky
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Location: Stockton, NJ
Posts: 4,173
Re: Checking in

Happy Holidays! I check in almost daily but don't post a lot. I am doing well but vigilant about staying covid safe. I have a 8 month old grandson. I am a Grandma and 16 years ago would not have imagined that when my kids were still in middle school. Its exciting to go thru all the developmental stages again.

And Her2 cancer treatments have also developed along the way too. We still don't have a cure but everyday we are a little bit closer. Love to all of you!
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 17 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 12-07-2020, 11:33 AM   #5
caya
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Location: Thornhill, Ontario Canada
Posts: 2,318
Re: Checking in

Congrats, Mary Jo on being 15 years out! I am now 14 years out, and like many of us, I don't check in as often as I did when first diagnosed.

This site was a lifeline during my diagnosis, and years of treatment.


all the best,
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 03-13-2021, 05:42 AM   #6
laureen
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Posts: 58
Re: Checking in

I remember you Mary Jo. I will be 15 years in August of 2021. My kiddos are now12 and 9. I had that little hamater we used ro pass around in their bassinet when they we born, what was that hamsters name? I forget.
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Laureen (laurie)
Diagnosed 8/10/06 (found own lump)at 35

Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagnosed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David born Feb. 6th 2009
Pregnant with baby #2, due in early june 2011.

*reach to recovery volunteer
*survivor recruitment committee -relay for life
*imerman angels
*making strides- team courage
*livestrong
*young survivor coalition YSC

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Old 03-14-2021, 04:03 PM   #7
Mary Jo
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Location: Sheboygan, WI
Posts: 2,578
Re: Checking in

Nice to hear from you all and I'm so happy you are all doing well too! I will be 16 years out this June and in all honestly, it hardly feels like cancer was ever a part of my life. I'm not sure why, but it seems like it happened to someone else and not me. Do any of you feel that way? I was 45 when I was diagnosed and am now 61. Me and my husband are now grandparents to 5, ages, 20 down to 3. I will be working one more school year as a secretary at the school I work at and then I am retiring. Life sure has a way of moving along and quickly at that.

Life has been good to me and God has been (and is) good always. Breast cancer was something that definitely changed me and changed me for the better. I learned to appreciate life and to appreciate it daily, because as each of us knows, it can change in a blink of an eye. I learned what was truly most important and I learned to say and do the things you want to say and do right now, because once again, our life can change in a blink of an eye.

I'd love to hear about how these years have been for each of you? For those who are in the midst of the struggle, please know, my prayers are with you and I when I think back, I can remember well all that you are going through.

God Bless each of you....my fellow sisters on the journey.
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

16 Years NED

<>< Romans 8:28
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Old 03-15-2021, 09:54 AM   #8
Becky
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Location: Stockton, NJ
Posts: 4,173
Re: Checking in

I am finally a grandma myself. My grandson just turned 1 years old on March 11. I am your age. I will probably still work a few more years. My 3 daughters are settled but only the one is married. Life goes on. Just waiting for my turn to get a covid vaccine. Life moves forward
__________________
Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 17 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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