HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Reply
 
Thread Tools Display Modes
Old 01-11-2011, 10:32 PM   #1
Barbara2
Senior Member
 
Barbara2's Avatar
 
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
From the CBS Early Show Do you agree with this thought?

This morning on the Early Show, one of the segments was titled "Michael Douglas Beats Throat Cancer." It sounds like he is doing very well, which is wonderful. (He did have stage 4 cancer.) They went on to discuss the fact that it will take some time (about 3 years) before they know if he has actually beaten the cancer and in the meantime he will probably visit the doctor about once a month.

My question is a comment made by Chris towards the end of the interview, (about 3:15 minutes into the interview if you care to watch) where he asked Dr. Phillips, "Throughout this whole process, he's talked about being a fighter and how this wasn't going to beat him. Does that type of positive energy and that positive outlook also help in recovery?"

Her answer: "A hundred percent, Chris. How you go into it is what you get out of it. He was deternined to beat this and from the look of it, he did." And she added a few more thoughts.

I remember a similar topic on the Her2 site, quite some time ago, regarding attitude and cancer survival. I believe I have read or maybe it was just someone's opinion, that if a cancer patient can be positive/hopeful, that this helps with the day to day enjoyment of life, but it probably doesn't actually determine whether or not the cancer returns. I remember some people commenting that if that were the case, it would put a tremendous burden on the patient, thinking that his/her attitude will make the difference.

What are your feelings on this? Do you agree with Dr. Phillips, in that "how you go into it is what you get out of it?"

Here's the segment:

http://www.cbsnews.com/video/watch/?...in;contentBody
__________________
Blessings and Peace,
Barbara

DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.

Accepting the gift of life, I give thanks for it and live it in fullness.

Last edited by Barbara2; 01-11-2011 at 10:40 PM.. Reason: spelling
Barbara2 is offline   Reply With Quote
Old 01-11-2011, 11:11 PM   #2
Debbie L.
Senior Member
 
Debbie L.'s Avatar
 
Join Date: Jul 2006
Posts: 463
Re: From the CBS Early Show Do you agree with this thought?

>What are your feelings on this? Do you agree with Dr. Phillips, in that "how you go into it is what you get out of it?"

No, the short answer is that NO I do not agree, if we are talking about cancer behavior (as opposed to qol). I worship at the "this is a crap shoot" altar, and I reference Molly Ivens: http://www.time.com/time/magazine/ar...201917,00.html

I'll await more comments before delving in deeper, but I stand ready to delve. I think there's pressure upon us to accept this nonsense, because it comforts those without cancer -- allowing them to believe that even if, god forbid, they should join our club, they'll still be in control of the outcome by maintaining that "positive attitude".

I take no personal credit for still being here. I know WAY too many wonderful, strong, loving, positive-thinking souls who are no longer here. They are no longer here NOT because they were not positive enough. They are no longer here because their disease was (crap shoot) just too virulent. On behalf of and in honor of those strong, positive-thinking, wonderful, loving souls -- I protest this brainwashing that encourages us to think that our thoughts can control cancer. Our thoughts can control our moments, and perhaps the moments of those who love us. But they cannot (alas) control cancer.
__________________
3/01 ~ Age 49. Occult primary announced by large (6cm) axillary node, found by my husband.
4/01 ~ Bilateral mastectomies (LMRM, R elective simple) - 1.2cm IDC was found at pathology. 5 of 11 axillary nodes positive, largest = 6cm. Stage IIIA
ERPR 5%/1% (re-done later at Baylor, both negative at zero).
HER2neu positive by IHC and FISH (8.89).
Lymphovascular invasion, grade 3, 8/9 modified SBR.
TX: Control of arm of NSABP's B-31 adjuvant Herceptin trial (no Herceptin, inducing a severe case of Herceptin-envy): A/C x 4 and Taxol x 4 q3weeks, then rads. Raging infection of entire chest after small revision of mastectomy scar after completing tx (significance unknown). Arimidex for two years, stopped after second pathology opinion.
2017: Mild and manageable lymphedema and some cognitive issues.
Debbie L. is offline   Reply With Quote
Old 01-11-2011, 11:26 PM   #3
StephN
Senior Member
 
StephN's Avatar
 
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Re: From the CBS Early Show Do you agree with this thought?

I have to concur with Debbie that this disease is FAR more complicated than "mind over matter" or some iteration of that cliche.

People ask me how I have managed to come out ahead in the stage IV cancer game, and I have to honestly say that I believe my disease was SIMPLE enough for the drugs to have the desired effect. The drugs I took were able to shut down my cancer, and keep it there to date.

Having attended several of the international cancer meetings in the past few years, I see how for every answer there are 2 or 3 more questions. The research is ongoing at the genetic level now, and that in itself should tell us how complex at the sub-microscopic level this disease is.

One thing that I heard LOUD and CLEAR at the recent San Antonio Breast Cancer Symposium is that breast cancer is actually SEVERAL diseases. That there are more "subclasses" identified all the time.

Lastly, I am reminded that we once had a rousing thread going here on the subject of "our immune systems listen to our thoughts" and it had to get shut down.

I believe in a strong spirit, but not to the extent that our spirits can overcome *anything* that attacks our bodies.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
StephN is offline   Reply With Quote
Old 01-12-2011, 12:33 AM   #4
Gift
Senior Member
 
Gift's Avatar
 
Join Date: Jan 2011
Location: Bangkok, Thailand
Posts: 31
Re: From the CBS Early Show Do you agree with this thought?

I do agree with StephN and would like to add;

Being positive could give our bodies some hormone that will produce immune for lives.
I am thinking of myself after one or two hours in gym, there was a feeling of being able to fly, being able to smile even with a dog barking fiercely.
To fight cancer, we intake lot and lot of poison ... leads to weaker body system. Now it's a question of which system could be stronger between your mind with great attitude VS your body with poison cocktails.

"Light up your face with gladness
Hide every trace of sadness
Although a tear may be ever so near
That's the time you must keep on trying
Smile, what's the use of crying?
You'll find that life is still worthwhile
If you just smile"


Gift (with smiling)



Gift is offline   Reply With Quote
Old 01-12-2011, 01:13 AM   #5
AlaskaAngel
Senior Member
 
AlaskaAngel's Avatar
 
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
Re: From the CBS Early Show Do you agree with this thought?

If it were true, then how many would need to do treatment of any kind, as long as we thought positive? And why would children not survive all cancer, being among the most innocently hopeful and positive of us all?

I agree with Deb L and StephN.

AlaskaAngel
__________________
Dx 2002 age 51
bc for granny, aunt, cousin, sister, mother.
ER+/PR+/HER2+++, grade 3
IDC 1.9 cm, some DCIS, Stage 1, Grade 3
Lumpectomy, CAFx6 (no blood boosters), IMRT rads, 1 3/4 yr tamoxifen
Rads necrosis
BRCA 1 & 2 negative
Trials: Early detection OVCA; 2004 low-dose testosterone for bc survivors
Diet: Primarily vegetarian organic; metformin (no diabetes), vitamin D3
Exercise: 7 days a week, 1 hr/day
No trastuzumab, no taxane, no AI
NED
AlaskaAngel is offline   Reply With Quote
Old 01-12-2011, 01:55 AM   #6
michka
Senior Member
 
michka's Avatar
 
Join Date: Feb 2007
Location: Paris, France
Posts: 858
Re: From the CBS Early Show Do you agree with this thought?

Just think of our Angels who for many were positive and real warriors. Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
michka is offline   Reply With Quote
Old 01-12-2011, 05:14 AM   #7
Ellie F
Senior Member
 
Join Date: Feb 2009
Posts: 1,526
Re: From the CBS Early Show Do you agree with this thought?

Hi
I mostly agree with what has been already said, in that I don't believe positive thinking is the answer to curing any type of cancer.
One of the unresolved issues for me has always been the effect of stress (be it emotional or physical, psychological ) on the efficiency of the immune sysem.There is considerable research that charts the impact of stress on reducing the immune response and makes me wonder if some ppl are able to mount a more robust reponse to the cancer.
Some research I read showed that post surgery women who were able to psychologically face the disease mounted a more robust Natural killer cell response. Other research from Glasgow university was able to predict survival by measuring inflammatory substances in blood. As we know stress triggers inflammation.
Unfortunately we seem to have more questions than answer.
Ellie
Ellie F is offline   Reply With Quote
Old 01-12-2011, 05:41 AM   #8
whatz
Senior Member
 
whatz's Avatar
 
Join Date: Jun 2009
Location: Mississippi
Posts: 253
Re: From the CBS Early Show Do you agree with this thought?

I agree with all of ya'll :-). I do second Ellie that I have a sneaky suspicion that stress makes us more vulnerable and also believe that the reason for the vulnerability is a weakened immune system. That said...a positive attitude would technically reduce stress and therefore help in that aspect. Can it cure cancer by itself? I believe not(!) for all the reasons so eloquently stated in earlier posts.
__________________
4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
whatz is offline   Reply With Quote
Old 01-12-2011, 07:49 AM   #9
Becky
Senior Member
 
Becky's Avatar
 
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,173
Re: From the CBS Early Show Do you agree with this thought?

There have been studies that show no correlation between attitude and survival. That said, I feel it can't hurt to be positive as it makes the time you have left on earth (be it a day or 100 years) that much more enjoyable. Even if cancer wins, you win too as the disease did not also take joy from your life and those around you.

Also, I would think that it does help somewhat and keep you healthier overall in mind and spirit. Depression makes you sick all over.
__________________
Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 17 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
Becky is offline   Reply With Quote
Old 01-12-2011, 08:02 AM   #10
Hopeful
Senior Member
 
Join Date: Aug 2006
Posts: 3,380
Re: From the CBS Early Show Do you agree with this thought?

There have been some interesting articles that have studied the effect of both stress and loneliness and the changes they induce to our biology:

http://her2support.org/vbulletin/sho...eferrerid=1173

http://her2support.org/vbulletin/sho...eferrerid=1173

I don't think the absence of a positive attitude per se affects survival, but I do think that anything that induces an inflammatory response in the body runs counter to it.

Hopeful
Hopeful is offline   Reply With Quote
Old 01-12-2011, 08:44 AM   #11
Mary L
Senior Member
 
Mary L's Avatar
 
Join Date: Nov 2010
Location: PA
Posts: 297
Red face Re: From the CBS Early Show Do you agree with this thought?

I think having a good attitude and attacking your cancer feeling you CAN beat it is better than being depressed and feeling sorry for yourself going through treatment. Does it cure cancer....no but it sure might help. Mary L
__________________
Mary L from PA Diag: Oct 2003 w/6mm mass, IDC grade III ductal carcinoma in-situ, IBC stage IIIB. tx A/C followed by Taxotere(only able to have 2 tx, allergic), mastectomy, 3 0ut of 7 positive nodes. 35 rads. Recurrence 9 months later, skin mets to mastectomy site. Tx Carboplatin/Herceptin. Stayed on Herceptin almost 5 years, had 3 more recurrences when I had to stop Herceptin due to my ejection fraction getting too low. Herceptin stopped and ned 3 years in Oct. 2010.
Mary L is offline   Reply With Quote
Old 01-12-2011, 09:34 AM   #12
Lani
Senior Member
 
Join Date: Mar 2006
Posts: 4,778
Re: From the CBS Early Show Do you agree with this thought?

I remember reading years ago that stuidies is the medical literature have failed to show a difference in overall survival between those with positive fighting attitudes and those without as I understand it (leaving out those with absolutely depression who fail to get their treatment, whether radiation therapy of endocrine therapy--as much as they can tell the latter).I never bothered to pay mich attention as I thought it was difficult to quantify the former or the latter(let alone the last)

Just thought you might want to see what MedPage Today wrote about the Douglas pronouncement--

my comment--just like breast cancer, throat cancer comes in a lot of different varieties, so talking about statistics and response to treatment of throat cancer as a whole may not be appropriate. It depends on ithe biology of the specific subset.

here we go:

By Kristina Fiore, Staff Writer, MedPage Today
Published: January 11, 2011

After months of radiation and chemotherapy for late-stage throat cancer, actor Michael Douglas is tumor-free, he told NBC's "Today Show" viewers this morning.

Not a trace of the stage-IV, walnut-sized tumor at the base of his tongue could be detected on medical imaging, Douglas said.

That's a signal, researchers told MedPage Today and ABC News, of complete response to treatment.

Yet they caution that the 66-year-old Douglas is hardly out of the woods.

"We always hope that our treatments cure the patient, but the reality is that even in the absence of detectable disease, he is at risk for recurrence," Scott Strome, MD, chair of head and neck surgery at the University of Maryland in Baltimore, wrote in an e-mail.

It is typical for this type of cancer -- even at stage-IV -- to be in complete remission at this point, according to Gregory T. Wolf, MD, chair emeritus of the University of Michigan Hospitals in Ann Arbor.

Prognosis, however, depends significantly on the biology of the tumor.

Tongue-base cancers that are caused by human papillomavirus (HPV) infection "have excellent 'cure' rates [measured by five-year survival] in the range of 70% to 80%, regardless of tumor stage," Wolf said.

But those rates are diminished for patients whose cancer is likely tied to smoking and drinking.

Ted Teknos, MD, chair of head and neck surgery at Ohio State University Cancer Center in Columbus, said five-year survival for tumors related to smoking alone is about 30% to 40%.

Patients whose tumor is associated with a combination of HPV and smoking have cure rates somewhere in between those figures.

It is not clear whether Douglas' cancer was positive for HPV, but the actor has admitted to smoking and drinking rather heavily. If solely based on smoking and drinking, his risk of recurrence is about 50%, Wolf estimated.

The next step for the actor will be a follow-up scan in three months, which the MedPage Today sources say can provide a good idea about the possibility of a cure, but is by no means absolute. The greatest risk of recurrence is in the first two years.

Douglas had been receiving radiation and chemotherapy at Memorial Sloan Kettering Cancer Center in New York since September.

The actor has reported problems swallowing, a typical side effect of treatment as radiation has closed down salivary ducts. He also reported losing 32 pounds during treatment.

Christine Gourin, MD, professor of otolaryngology at Johns Hopkins University, said that while labeling Douglas as "cured" is at least five years off, this first step provides some good news.

"We don't know the future," she wrote in an e-mail, "but in the face of a complete response to treatment there is every reason to be optimistic."

This article was developed in collaboration with ABC News.
Lani is offline   Reply With Quote
Old 01-12-2011, 10:06 AM   #13
PinkGirl
Senior Member
 
PinkGirl's Avatar
 
Join Date: Jul 2007
Location: Canada
Posts: 2,190
Re: From the CBS Early Show Do you agree with this thought?

You can't dismiss the role of a positive attitude ... but ... these kinds of comments drive me CRAZY ... look what it did to my hair ...

Sign me up for the Crap Shoot Society. How do you explain the dead
positive people and the living SOB's??? To me this is just another way
of blaming the patient ... this disease can take it's course regardless of
our attitudes.

That being said, I think stress puts added pressure on our bodies and
being happy and positive can't hurt ... but geez ... to say that Michael Douglas went into his treatments determined to beat the cancer ... so did I .. . celebrities shouldn't throw this crap in our faces .. it's not fair ... they aren't experts in anything ...
__________________
PinkGirl

Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

My Photo Album
PinkGirl is offline   Reply With Quote
Old 01-12-2011, 12:05 PM   #14
Joan M
Senior Member
 
Joan M's Avatar
 
Join Date: Oct 2007
Posts: 1,850
Re: From the CBS Early Show Do you agree with this thought?

My maternal grandmother lived to 96, dying in 2000, and she was a miserable complainer and worried about everything, and drove everybody crazy. She wasn't sick a day in her life until she was 95 1/2. So I'm not even sure whether constant stress even damages our immune system.

Overall, I think such a theory puts a lot of pressure on cancer patients by implying that positive thinking can help cure us. Conversely, that kind of theory can also inadvertently put the blame on the patient.

I'd rather go to my grave happy -- with or without cancer. And of course everybody has a bad day, myself included. And Pink, you're having a bad hair day.

Jaon
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
Joan M is offline   Reply With Quote
Old 01-12-2011, 12:41 PM   #15
Ellie F
Senior Member
 
Join Date: Feb 2009
Posts: 1,526
Re: From the CBS Early Show Do you agree with this thought?

Joan
That's really intersting about your gran. As each tumour has it's own biology it's perhaps resonable to assume that the 'triggers' may be different also. While stress maybe an issue for one person it could not be for someone else.
I just wish they would hurry up and find the CURE for all of us

Ellie
Ellie F is offline   Reply With Quote
Old 01-12-2011, 05:14 PM   #16
suzan w
Senior Member
 
suzan w's Avatar
 
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
Re: From the CBS Early Show Do you agree with this thought?

I agree with Steph, but I also thing that it can't hurt to have a good positive attitude (then people can stand to be around when you need them!!!) I have lost far too many dear friends, all with amazing stamins etc. to this horrid disease to think that mind over matter is the "cure"
__________________
Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
suzan w is offline   Reply With Quote
Old 01-12-2011, 06:29 PM   #17
krisvell
Senior Member
 
krisvell's Avatar
 
Join Date: Sep 2009
Location: Kensington, CT
Posts: 394
Re: From the CBS Early Show Do you agree with this thought?

Of all the things my friends and family told me most was Oh! you're so positive. I bet that's why you're doing so well. I always doubted it but it kept my stress level down and got me to deal with the treatments. I knew it was going to take more than thinking away this cancer to stay in remission. It's a real crap shoot.

Kris.....
__________________
06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++
Nottingham 6/9 - Grade 2 5.2cm, several nodes
06/23/09 - Neoadjuvant - TCH Herceptin til June
10/07/09 - Finished Chemo
10/27/09 - Mastectomy RB
Path Report: RB No residual tumor pCR,
2 of 15 pos - .5mm largest micromets
12/18/09 - Radiation started (28)
02/05/10 - Finished Radiation
01/11/10 - Started Femara
06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best.
11/15/10 - Started Walter Reed BC Vaccine trial at
1/04/11 - Sibley Mem. Had to withdraw due to met
01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm
02/03/11 - Gamma Knife (2 fracts to minmize necrosis)
03/01/11 - Gamma Knife
6/11 - Necrosis
7/11 - Necrosis stopped & Tumor progression
8/11 = Now think it's really necrosis
9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking.
12/11 - Necrosis gone AVASTIN worked.
12/11 - Bone &CT found


Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!
krisvell is offline   Reply With Quote
Old 01-12-2011, 09:25 PM   #18
Jean
Senior Member
 
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
Re: From the CBS Early Show Do you agree with this thought?

Interesting thread, let’s remember that Mr. Douglas is an ACTOR does anyone think he would come on national TV and complain, cry or show any fear? He is showing his game face and maybe even trying to help others by putting on a brave and positive front. Of course the man is
worried about his cancer dx.

While a positive attitude is good and does offer a better quality of living it does not cure cancer.
What I have always found extremely fascinating are the men women and children that survived the Nazi prison camps. Some women even giving birth during their imprisonment.. The will to survive under the worst possible conditions is an interesting subject, beating the worst odds.
Luck does play its role and our own body chemistry.

A perfect example of luck is the recent horrific shootings in Tucson those who survived and the poor souls who lost their life. In short there are no guantees in life. You can be a strong healthy person and lopse your life in a moment to a madmen. So – what is the take away…walk around being an angry, depressed or just plain negative and miserable person? Or enjoy each day with the people you love and those who matter in your life. Cancer has taught us to appreciate each day.

Jean




__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
Jean is offline   Reply With Quote
Old 01-12-2011, 09:44 PM   #19
Jackie07
Senior Member
 
Jackie07's Avatar
 
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,806
Re: From the CBS Early Show Do you agree with this thought?

It's not a coincidence that 'positive attitude' is listed on the very top of the 'Cancer Treatment Myths' link of the Mayo Clinic site.

http://www.mayoclinic.com/health/can...3/METHOD=print

There is proof, however, that physical activity increases the release of endorphins which improves our mood:

http://en.wikipedia.org/wiki/Endorphin

This entry validates the healing power of a certain type of endorphin:

http://en.wikipedia.org/wiki/Beta-endorphin
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 01-13-2011 at 08:25 PM..
Jackie07 is offline   Reply With Quote
Old 01-12-2011, 09:56 PM   #20
Gerri
Senior Member
 
Gerri's Avatar
 
Join Date: Oct 2006
Location: Southern California
Posts: 898
Re: From the CBS Early Show Do you agree with this thought?

Yep, it's a crap shoot. Don't we all wish it were as simple as mind over matter?

While I don't believe that a positive attitude plays any part in curing cancer, I do believe that it can have a huge impact in helping us and our loved ones deal with the challenges we face.
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
**********
Enjoy the little things, for one day you may look
back and realize they were the big things.
- Robert Brault
Gerri is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 12:36 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2021, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter