HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Reply
 
Thread Tools Display Modes
Old 09-11-2016, 02:25 AM   #1
Paula O
Senior Member
 
Paula O's Avatar
 
Join Date: Jul 2011
Posts: 954
Diagnosed with 2nd Primary

Hi guys,

After 5 1/2 + years since my first triple positive diagnosis (Stage 3A) in my left breast, and enjoying NED status since being treated with "the works", I recently had the shockaroo of a brand new primary in my right breast (also triple positive, looks like Stage 1) Now I am awaiting my PET scan results and surgery soon followed by chemo and Herceptin.

I'd be interested in hearing about the experiences of others who had cancer pop up in the opposite breast after treatment. Was it Her 2 positive both times? Thanks!

Paula
My blog: http://jpoliver.com/wordpress/
Paula O is offline   Reply With Quote
Old 09-11-2016, 01:59 PM   #2
tricia keegan
Senior Member
 
tricia keegan's Avatar
 
Join Date: Nov 2005
Location: Ireland
Posts: 3,460
Re: Diagnosed with 2nd Primary

Oh Paula I'm so sorry, just sending good wishes to you as you face this again!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
tricia keegan is offline   Reply With Quote
Old 09-11-2016, 03:41 PM   #3
Carol Ann
Senior Member
 
Join Date: Dec 2013
Posts: 1,045
Re: Diagnosed with 2nd Primary

I'm so sorry, Paula! I had a HER2 Stage 1 suddenly show itself in my left breast right after a non HER2 was found in the right ... the first, an ILC, was found during surgery to remove an "infected" nipple that turned out to be Paget's Disease. So my tumors were found 2 months apart, one in July and one in September.

Both tumors, right and left, were ER+, very much so. Only the second one, found in the left after the double mastectomy I insisted on (caught alot of flack and pushback) was HER2 +++.

The HER2 was also triple positive. My onc put me on Arimidex right after I finished the T and the C, because "The Herceptin isn't doing anything for the ER+".

My signature below outlines everything ... please feel free to PM me with any questions!

Carol Ann
__________________
July 24, 2013: "Infected" Right Nipple and benign cyst removed, pathology report revealed Paget's, DCIS, and ILC 1.25 cm, ER+/Pro+/HER2 equivocal, Grade 2 under benign cyst, previous diagnostic mammo/ultrasound said I was perfectly healthy in both breasts.

Aug 18, 2013: MRI report says Left breast is perfectly healthy "consistent with previous studies".

Sept 2013: I insist on a bilateral mastectomy anyway. Too nervewracking to let left breast remain with higher risk after 3 cancers in right, nipple in right is already gone anyhow.

Sept 18, 2013: Bilateral mastectomy, 11 right nodes removed, ALL negative BUT -- ER+/PRO+/HER2+ tumor, 1.0 cm, Grade 2 found in a piece of "grossly unremarkable" breast tissue from prophylactic mastectomy of left breast, no nodes removed.

Oct 25, 2013: 13 left side nodes removed, ALL negative, Stage 1 across the board, NO RADS needed, YAAAAY! Port also installed.

Nov 25, 2013 Begin 6 rounds TCH.

March 10, 2014 Just finished 6th and LAST Chemo today, YAAAAAY!

March 24, 2014 Echocardiogram to make sure I'm still good for Herceptin every 3 weeks.

March 31, 2014 Echo results NORMAL, first Herceptin all by itself. Now if only my eyes would stop streaming from the Taxotere ... :)

April 21, 2014 Started Arimidex and therapy for "mild" lymphedema in left hand and arm

May 2014 Therapy completed, I have sleeves and gloves for both arms, a Flexi touch lymph pump to hook up to for an hour every day, and I've become an arm bandaging expert. :)

June 2014 Begin Fosamax to prevent osteoporosis; bone scan revealed osteopenia

Nov 17, 2014 FINAL Herceptin!

Dec 4, 2014 My right thigh muscle has been extra achy for days ... I discover a blister rash cluster on the side of my right thigh while taking a shower. Port appointment cancelled until Dec 17, my doc is working me in tomorrow afternoon to see me and the rash. My muscle at least feels less achy.

Dec 5, 2014 Yep, I have shingles. Boo! I start acyclovir and also have a prescription for a painkiller just in case for over the weekend.

Dec 17, 2014 Port is OUT!

January 2016 Shingles again and this time it started where my left breast (where the hidden HER2+++ tumor was!) used to be. My onc nurse got me a same day appointment to see my doc when I called and told her I had a rash on the site. The antiviral meds are working once again, though, so that is good news. :)
Carol Ann is offline   Reply With Quote
Old 09-11-2016, 04:26 PM   #4
Paula O
Senior Member
 
Paula O's Avatar
 
Join Date: Jul 2011
Posts: 954
Re: Diagnosed with 2nd Primary

Thanks for the encouragement and well wishes Carol Ann and Tricia.

Paula
Paula O is offline   Reply With Quote
Old 09-11-2016, 05:02 PM   #5
Laurel
Senior Member
 
Laurel's Avatar
 
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,002
Re: Diagnosed with 2nd Primary

Paula,

I was sorry to hear your news! I bet that was a shockaroo! Goodness! I have heard of women who have a new primary in the opposite breast many years later, so I suppose we continue to be at risk for BC due to our "femaleness."

I am so sorry you have to face the "works" a second time. May you sail through treatment without any difficulties and get back to NED and remain there. Wishing you the very best!
__________________

Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

13 Years NED
I think I just might hang around awhile....

Laurel is offline   Reply With Quote
Old 09-11-2016, 05:07 PM   #6
jaykay
Senior Member
 
Join Date: Oct 2012
Posts: 641
Re: Diagnosed with 2nd Primary

Hi Paula,

So sorry to hear about the new primary. Same thing happened to me 12 years later. Same pathology (her+, ER+, PR-) but Stage 2b (right) while the first (left) was Stage 1A.

Details are in my signature. I did not have chemo or Herceptin the first time around because it was not the standard of treatment for early stage back in 2000. But I did have 10 years of anti-estrogen. Go figure...

You'll be okay, please reach out to me privately if you want to talk

Best
Janis
__________________
March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
jaykay is offline   Reply With Quote
Old 09-11-2016, 05:10 PM   #7
jaykay
Senior Member
 
Join Date: Oct 2012
Posts: 641
Re: Diagnosed with 2nd Primary

One more thing I forgot to mention - please talk to your oncologist about adding Perjeta to the mix. I just missed out the last time around (2012).

Janis
__________________
March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
jaykay is offline   Reply With Quote
Old 09-11-2016, 05:42 PM   #8
MaineRottweilers
Senior Member
 
MaineRottweilers's Avatar
 
Join Date: May 2013
Posts: 568
Re: Diagnosed with 2nd Primary

I am sorry you have go through the process all over again. That just sucks. Praying your PET is clear.
__________________
Tracy Arcari
___________________________________________
11/12 BSE ignored the lump for SIX months.
5/1/13 IDC ER/PR- HER2/neu+++
5/14/13 Mastectomy and SN biopsy
5/20/13 IDC Stage IIb Grade 3 Nodes 1/4 also IDC and DCIS multi focal in remaining dissected tissue.
5/30/13 MUGA and CT thorax, abdomen & pelvis, establish baseline.
6/4/13 Installed my little purple power port.
6/14/13 Chemo started TCH
6/14/13 Informed of suspicious ares on scans scheduled PET.
7/1/13 PET Scan NED!
9/27/13 FINAL CHEMO taken! ----well, maybe not.
10/15/13 Three little tattoos.
10/24/13 Radiation begins and fourth tattoo placed.
11/27/13 Perfectly radiant! Radiation completed the day before Thanksgiving and so, so much to be thankful for this year and every day hereafter.
1/2/14 Happy New Year, you have a Goiter? Muga down to 59%.
1/17/14 Hashimoto's Dz Dx'd. Now maybe I'll feel BETTER!
5/2/14 Herceptin completed! New kitten!
8/19/14 Prophylactic mastectomy (right) and PORT OUT! I'm DONE and now I really am a SURVIVOR.
2/15 Started not feeling so swell. Memory lapses and GI issues with nausea and blurry vision.
4/30/15 U/S cystic gallbladder, cyst on right ovary and mass in my uterus. GYN consult scheduled---and cancelled. I'm not ready.
5/4/15 Brain MRI clear (big sigh of relief)
7/30/15 Back Pain
8/31/15 Radiograph: compression fracture L2
9/10/15 Bone Scan positive
9/21/15 CT scan conclusive for tumor
10/1/15 CT guided biopsy & Brain to Pelvis MRI reveal additional lesions on spine C6, T10, T11 and L2 is collapsing.
10/8/15 Abbreviated pathology: new tumor(s) poorly differentiated carcinoma consistent with known breast primary.
ER-/PR+ (40%)
HER2/neu+++ Ki-67 4% Pancytokeratin AE1/3 Strong Positivity in all malignant cells.
10/13/15 Abnormal Dexa: moderate risk of fracture to both femoral head/neck R&L. Significant risk to lumbar spine.
10/14/15 Radiation consult back to the cooker.
10/20/15 MUGA 50% down from 54% after a year off Herceptin (???)
10/21/15 Kyphoplasty L2
10/22/15 Re-start Chemo: Perjeta, Herceptin & Taxotere
10/26/15 PET Scan confirms C6, T10-11, L2, new lesion noted at L4 but no visceral involvement---Happy dance!!!
10//29/15 Xgeva
10/29/15 Radiation Simulation--three new tattoos to add to my collection. Just call me Dotty.
10/30/15 CA27-29 63 U/mol (<38 U/mol)
11/3/15 First Trip to see Dr. E. Mayer at DFCI
11/4/15 Surgical consult to re-install my little purple power port.
11/9/15 Radiation treatment one of five.
11/10/15 Installed my little purple power port and not a moment too soon, took them four tries to get an IV started today.
Yes, we really are going down this road again.
12/5/15 CT for suspected pulmonary embolism demonstrates increase in T10-11 mets.
12/8/15 Bone Scan uptake at T10-11 (not seen 9/17/15) & Right 8th Rib (not evident on PET 10/26/15)
12/10/15 Consult Re: PROGRESSION. Halt THP due today. Schedule PET and order TDM1 for next week. PLAN B.
12/14/15 PET scan: NO PROGRESSION! THP is working, metabolic activity minimal. Merry Christmas to me! Sticking with PLAN A, it's working.
1/7/16 Start Taxol weekly instead of Taxotere (has been too taxing and not rebounding between txs.) Zometa instead of Xgeva.
3/28/16 CT shows new sclerotic lesions on T12, L3, L5, L6, right ilium and head of right femur. No uptake on Bone Scan (progression????)
3/31/16 Discontinue Taxol start Arimidex, still getting H&P.
6/2/16 Discontinue Arimidex and start Exemestane.
6/18/16 PET is NEAD!!
7/1/16 Discontinue Exemestane and restart Armidex (SEs)
8/29/16 CT/Bone Scan Stable (still uptake at T10-11)
10/3/16 BSO pathology negative
10/10/16 MRI: Brain clear!
10/14/16 Switched care to Harold Alfond Center for Cancer Care
11/24/16 Xgeva, New MO preference to Zometa
12/12/16 CT/Bone scan Mostly stable significant uptake at L2 plan to PET
1/12/17 PET shows NEAD celebrate with a new puppy!
3/29/17 CT & BS = NEAD
7/31/17 Aetna denies access to H&P <gearing up for a fight>
8/4/17 CT& BS= STABLE
8/9/17 No treatment, Aetna still denying H&P
8/14/17 Aetna appeal approved H&P through February 2018!
2/5/18 CT & BS = STABLE

//
MaineRottweilers is offline   Reply With Quote
Old 09-12-2016, 05:04 PM   #9
Paula O
Senior Member
 
Paula O's Avatar
 
Join Date: Jul 2011
Posts: 954
Re: Diagnosed with 2nd Primary

Thanks to you too Laurel, JayKay, and MaineRottweilers! The addition of perjetta is one of three proposed chemo protocols oncologist mentioned depending on size of tumor at surgery and if there is lymphatic involvement. Right now as per ultrasound, mammo, and MRI, the mass might be too small to qualify for perjetta. I missed it last time even though I was at stage 3A then as it wasn't offered in 2011. I might be getting it in addition to the carboplatin, Taxotare, and Herceptin that I had last time or Taxol and Herceptin depending on tumor outcome at surgery. I had happy news today: http://jpoliver.com/wordpress/archives/1341 Such a relief. That mammo cartoon in the post cracks me up--can't seem to copy and paste it here though or I would. When I try it says:
Image result for breast cancer cartoon.
Wishing you guys the best! Thx again for your encouragement. I sure wish I could figure out how to quit growing these things and get to the root of whatever is causing it and FIX IT! Paula
Paula O is offline   Reply With Quote
Old 09-12-2016, 05:48 PM   #10
Carol Ann
Senior Member
 
Join Date: Dec 2013
Posts: 1,045
Re: Diagnosed with 2nd Primary

YAY! What a relief!!

That cartoon is funny!

Carol Ann
__________________
July 24, 2013: "Infected" Right Nipple and benign cyst removed, pathology report revealed Paget's, DCIS, and ILC 1.25 cm, ER+/Pro+/HER2 equivocal, Grade 2 under benign cyst, previous diagnostic mammo/ultrasound said I was perfectly healthy in both breasts.

Aug 18, 2013: MRI report says Left breast is perfectly healthy "consistent with previous studies".

Sept 2013: I insist on a bilateral mastectomy anyway. Too nervewracking to let left breast remain with higher risk after 3 cancers in right, nipple in right is already gone anyhow.

Sept 18, 2013: Bilateral mastectomy, 11 right nodes removed, ALL negative BUT -- ER+/PRO+/HER2+ tumor, 1.0 cm, Grade 2 found in a piece of "grossly unremarkable" breast tissue from prophylactic mastectomy of left breast, no nodes removed.

Oct 25, 2013: 13 left side nodes removed, ALL negative, Stage 1 across the board, NO RADS needed, YAAAAY! Port also installed.

Nov 25, 2013 Begin 6 rounds TCH.

March 10, 2014 Just finished 6th and LAST Chemo today, YAAAAAY!

March 24, 2014 Echocardiogram to make sure I'm still good for Herceptin every 3 weeks.

March 31, 2014 Echo results NORMAL, first Herceptin all by itself. Now if only my eyes would stop streaming from the Taxotere ... :)

April 21, 2014 Started Arimidex and therapy for "mild" lymphedema in left hand and arm

May 2014 Therapy completed, I have sleeves and gloves for both arms, a Flexi touch lymph pump to hook up to for an hour every day, and I've become an arm bandaging expert. :)

June 2014 Begin Fosamax to prevent osteoporosis; bone scan revealed osteopenia

Nov 17, 2014 FINAL Herceptin!

Dec 4, 2014 My right thigh muscle has been extra achy for days ... I discover a blister rash cluster on the side of my right thigh while taking a shower. Port appointment cancelled until Dec 17, my doc is working me in tomorrow afternoon to see me and the rash. My muscle at least feels less achy.

Dec 5, 2014 Yep, I have shingles. Boo! I start acyclovir and also have a prescription for a painkiller just in case for over the weekend.

Dec 17, 2014 Port is OUT!

January 2016 Shingles again and this time it started where my left breast (where the hidden HER2+++ tumor was!) used to be. My onc nurse got me a same day appointment to see my doc when I called and told her I had a rash on the site. The antiviral meds are working once again, though, so that is good news. :)
Carol Ann is offline   Reply With Quote
Old 09-13-2016, 07:20 AM   #11
jra40
Senior Member
 
jra40's Avatar
 
Join Date: Mar 2011
Location: Pittsburgh, PA.
Posts: 260
Re: Diagnosed with 2nd Primary

So sorry to hear of news on the first post but glad to hear the PET was clear! Fight on warrior woman! We are all praying for you

Jess
__________________
11/17/10 - Diagnosed with 4.5cm tumor in right breast, IDC, Stage 2, Nuclear grade 2, ER+ PR+ HER2+
12/13/10 - Lymph node biopsy - negative
12/28/10 - Started neo-adjuvant treatment along with clinical trial with 4 rounds of AC chemo every 3 weeks
3/15/11 - Began weekly Taxol/Herceptin infusions along with 750mg of Tykerb taken by mouth daily
6/28/11 - Finished last cycle of Taxol
7/27/11 - Breast MRI shows tumor has dissolved, remarkable reaction to chemo
8/31/11 - Lumpectomy, Sentinel Node biopsy. Node negative, clear margins, 7mm of cancer left over from chemo.
10/05/11 - Started radiation, 5 days a week for 7 weeks.
11/8/11 - Finished radiation
3/21/12 - Last Herceptin!
3/26/12 - Port removed!
Tamoxifen for 5 years
8/4/15 - Hysterectomy & bilateral salpingo-oophorectomy. Due to large fibroids. No cancer!
8/8/15 - Started Arimidex
jra40 is offline   Reply With Quote
Old 09-13-2016, 08:41 AM   #12
Paula O
Senior Member
 
Paula O's Avatar
 
Join Date: Jul 2011
Posts: 954
Re: Diagnosed with 2nd Primary

JRA40 and Carol Ann

Anybody have any input from their research how in the world we can address the root cause of the cancer so we can fix that and stop growing these things? My oncologist has the chemo and my surgeon has the mastectomy to get rid of what's there right now.. I wish I could do something that makes my body and everybody's bodies totally uninhabitable to cancer. I've been working hard post the first diagnosis getting myself fit and healthy and building up my immunity and it still came back and I will soon temporarily wreck my immunity again with chemo...sure wish I could figure out something to fix whatever is causing it. I am an unwilling "culture medium" for cancer and want to evict it from my body permanently as I'm sure you guys do too.
Paula O is offline   Reply With Quote
Old 09-13-2016, 08:32 PM   #13
SusanN
Senior Member
 
SusanN's Avatar
 
Join Date: Feb 2013
Location: Lincoln, NE
Posts: 265
Re: Diagnosed with 2nd Primary

Hello Dearest Paula!! I have not been on here for MONTHS or more...soooo, had to be God...know I am praying for you!!!! Sending you huge, tender hugs!!!
__________________
10/18/12 Found pea size lump right breast
11/7/12 Biopsy
12/14/12 Lumpectomy
1/4/13 Rexcision, NO CLEAR MARGINS!! :(
2/11/13 Mastectomy with Expander Placed
2/15/13 INFECTION at Mastectomy site...emergency Surgery!!! Expander removed :(
DX: DCIS, IDC, Stage 2a, 2.7cm, 1/5 nodes positive
ER/PR-, HER2+++
3/28/13 Port placed
4/1/13 Begin 6 Cycles TCH Therapy
4/1/14 Finished Herceptin!!
SusanN is offline   Reply With Quote
Old 09-13-2016, 10:03 PM   #14
Jedrik
Senior Member
 
Jedrik's Avatar
 
Join Date: Dec 2015
Posts: 36
Re: Diagnosed with 2nd Primary

Hi Paula, I am so sorry you have to go through all those therapy steps again. And I am totally with you: We need to do more than just remove the symptoms, we need to do something against the cause. And it's not "stay slim, exercise, eat sensible, sleep enough". That will just help you through therapy, but obviously it never stopped cancer from trying to kill us. But to me it looks like nobody cares. Nobody even asked how I lived, where I lived, what I thought might have happened.
__________________
Dx 9/17/2015, IDC/Paget's, Left, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR-, HER2+ at age 57
Surgery 10/6/2015 Lymph node removal: Sentinel
Chemotherapy
start 10/19/2015 Carboplatin (Paraplatin), Taxotere (docetaxel)
Targeted Therapy start 10/19/2015 Herceptin (trastuzumab), Perjeta (pertuzumab)
Surgery 02/23/2016 MX Left, PMX Right
Jedrik is offline   Reply With Quote
Old 09-15-2016, 03:54 AM   #15
Paula O
Senior Member
 
Paula O's Avatar
 
Join Date: Jul 2011
Posts: 954
Re: Diagnosed with 2nd Primary

Nice to hear from you Susan and Jedrik.

Jedrik, I guess cancer probably has many, many things causing it but it sure would be great if we could get to the bottom of that and address that.

I am reading a book, "The Breast Cancer Pattern" by Dave Frahm who talks about out of balance hormones, iodine deficiencies and thyroid connections, etc.
Paula O is offline   Reply With Quote
Old 09-15-2016, 02:54 PM   #16
jacqueline1102
Senior Member
 
Join Date: Apr 2012
Posts: 180
Re: Diagnosed with 2nd Primary

Hello Paula,

I'm so sorry you have to go through all that again. You asked great questions. I attended a medical cancer conference about a year ago as someone who works in the health care arena. Breast cancer was dicussed during one with a special focus on Her2+. I can send you the information later as I am home now. The research basically said this: women who are already geneitcally Her2+ will be more likely to develop breast cancer than the Er/Pr + patients. Say, for example, out of 100 women who are ER/PR+ maybe 30-40% of these women will develop breast cancer. Out of 100 Her2+ women, 60-65% percent of these women will develop breast cancer. I will have to check back later to get the hard data for everyone. I then asked what can we do about prevention with let's say starting at the age of 18 for all women, would there be some genetic intervention for the Her2 women patients? The discussion then led to do all women starting at the age of 18 get testing to determine their hormone status and with armed with that data if disocvering one is Her2+ how would that help, since at this point in time we don't know how to circumvent the cancer cells? That being said, can you eat right, never ever drink alcohol, exercise, be lean into adulthood, etc....and still get breast cancer if you are Her2+ specifically? The data may suggest that. This is a WTF situation. And yet, some answers in that genetic markers are going to be huge in the future, even more so. Hope this helps. Enjoy a healthy salad tonight while eating some chocolate.

Take care,

Jackie
__________________
10/11 IBC Stage IV; 1 liver met 4.6 cm.
10/11-2/12 TCH for 6 rounds
3/12 Right MRM
5/12-7/12 33 Radiation treatments
8/1/12 Started Perjeta along with the Herceptin
10/12 Scans said NED for first time
5/15 UWSeattle Vaccine Trial 3 months
12/16 Scans still show NED. Herceptin and Perjeta continue indef.
8/17 Taken off Perjeta;staying on Herceptin. Still NEAD.
3/18 Still NEAD
8/19 Now on Subcutaneous Herceptin
10/21 Remain on Subcutaneous Herceptin (Hylecta)
11/21 CT showed lung mets. Discussed Enhertu for future treatment?
jacqueline1102 is offline   Reply With Quote
Old 09-15-2016, 06:22 PM   #17
IrvineFriend
Senior Member
 
IrvineFriend's Avatar
 
Join Date: Jan 2013
Location: Irvine, CA (Southern CA)
Posts: 414
Re: Diagnosed with 2nd Primary

I'm sorry to hear Paula. My family history is not HER2+ but sister, Mom, Aunt, etc. had it come back in the other breast within 5-10 years. Sorry you have to go through all this all over again.
-Julie
__________________
Julie
Live in Orange County, CA

Diagnosed with DCIS Oct. 2012

Bilateral Dec. 19, 2012
IDC, ER/PR-, Her2+++, Grade 3
Stage IIIa
15.6 cm
4/14 nodes + macrometastases
First thing each morning, I try on my bathing suit. Then, nothing worse can happen the rest of the day.
IrvineFriend is offline   Reply With Quote
Old 09-16-2016, 03:45 AM   #18
Paula O
Senior Member
 
Paula O's Avatar
 
Join Date: Jul 2011
Posts: 954
Re: Diagnosed with 2nd Primary

Thanks for sharing, Jackie and Julie.

I'd love to hear more about that study, Jackie when you have time to post it.

Have a great day!

Paula
Paula O is offline   Reply With Quote
Old 09-16-2016, 11:22 AM   #19
Mtngrl
Senior Member
 
Mtngrl's Avatar
 
Join Date: May 2011
Location: Denver, CO
Posts: 1,427
Re: Diagnosed with 2nd Primary

Jackie--I don't understand the "genetically HER-2 +" statement that you made. Can you please clarify?

Amy
Mtngrl is offline   Reply With Quote
Old 09-16-2016, 11:53 AM   #20
Mtngrl
Senior Member
 
Mtngrl's Avatar
 
Join Date: May 2011
Location: Denver, CO
Posts: 1,427
Re: Diagnosed with 2nd Primary

Paula--

So sorry you have to go through this again! Best wishes and oodles of luck to you.

Amy
Mtngrl is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 11:53 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2021, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter