![Reply](http://her2support.org/vbulletin/images/buttons/reply.gif) |
|
06-19-2019, 12:53 PM
|
#1
|
Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
|
Happy and grateful to be joining the fourteen year club!
My Dr just called this morning with the results of my Mammo which thankfully is clear again for another year! When I was diagnosed I couldn't even imagine getting to five years! ![Smile](http://her2support.org/vbulletin/images/smilies/smile.gif)
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
|
|
|
06-19-2019, 02:07 PM
|
#2
|
Senior Member
Join Date: Jun 2007
Posts: 49
|
Re: Happy and grateful to be joining the fourteen year club!
Very many congratulations. May you have many more years like this! Nancy
__________________
Found lump myself 8 months after routine mammogram.
29/11/06-WLE and then re-excision to get clear margins.
Tumour was 1.2cms; Grade3; Er+ Pr+ HER2 3+++; SNB negative out of 9 nodes.
Chemo was Epirubicin every 3wks x4 then Xeloda (2wks on, 1wk off) for 4 cycles. ( I am part of the TACT2 trial.)
Rads x25
Arimidex for 5 yrs.
Hoping to start Herceptin within the next 2 weeks (we have to follow the HERA protocol to qualify for Herceptin in the U.K.) I worry about the delay in starting Herceptin!! Started 8/10/07
|
|
|
06-19-2019, 02:30 PM
|
#3
|
Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
|
Re: Happy and grateful to be joining the fourteen year club!
Thanks Nancy,wishing the same for you! I see you're in the U.K, I'm in Ireland so not too far from you.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
|
|
|
06-21-2019, 04:00 PM
|
#4
|
Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
|
Re: Happy and grateful to be joining the fourteen year club!
Congrats Tricia!
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
|
|
|
06-22-2019, 01:05 AM
|
#5
|
Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
|
Re: Happy and grateful to be joining the fourteen year club!
Fourteen and counting! Enjoy the good news, and thanks for coming to share with us.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
|
|
|
06-22-2019, 04:23 AM
|
#6
|
Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
|
Re: Happy and grateful to be joining the fourteen year club!
Always love the good news! Here's to the next 14!!! Cheers!
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
|
|
|
06-22-2019, 09:04 AM
|
#7
|
Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
|
Re: Happy and grateful to be joining the fourteen year club!
Congratulations Tricia. You've been a cyber friend of mine for 14 years! Here's to many more.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
|
|
|
06-22-2019, 12:33 PM
|
#8
|
Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
|
Re: Happy and grateful to be joining the fourteen year club!
Thank you Caya, Steph, Laurel and Becky, I don't know what I'd have done without you ladies sharing your knowledge so freely with me and everyone over the years. I'm wishing good health and NED for all of us here on the her2 site!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
Last edited by tricia keegan; 07-24-2019 at 01:52 PM..
|
|
|
07-21-2019, 07:22 PM
|
#9
|
Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
|
Re: Happy and grateful to be joining the fourteen year club!
Congratulations to you Tricia. I’m so very happy for you.
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
|
|
|
07-24-2019, 01:52 PM
|
#10
|
Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
|
Re: Happy and grateful to be joining the fourteen year club!
Thank you Mary Jo, so glad all is well with you too!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
|
|
|
07-27-2019, 07:17 AM
|
#11
|
Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
|
Re: Happy and grateful to be joining the fourteen year club!
Congratulations Tricia! Thank you for the wonderful news! This is my first check in to our site in about 3 months and i was delighted to see your post. Happy summer and Happy 14 years. I think it has been a little hot for you recently if you got part of the Europe heat wave. Hugs to you!
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
|
|
|
07-29-2019, 12:56 PM
|
#12
|
Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
|
Re: Happy and grateful to be joining the fourteen year club!
Hi Catherine and thank you! We're fortunate that we get our weather from the Atlantic so while we had warm sunny comfortable days the people in the U.K and Europe were far from comfortable. I really prefer spring or Autumn weather so was very glad it didn't get too hot here. Wishing you a very happy summer too.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
|
|
|
08-17-2019, 08:09 PM
|
#13
|
Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
|
Re: Happy and grateful to be joining the fourteen year club!
Hey .... I forgot my birthday ... I’m 14 too. Congrats Tricia and thank you herceptin!
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
|
|
|
08-18-2019, 01:18 PM
|
#14
|
Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
|
Re: Happy and grateful to be joining the fourteen year club!
Hi Pink..congrats to us both and thank you Dr Slamon! ![Smile](http://her2support.org/vbulletin/images/smilies/smile.gif)
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
|
|
|
12-27-2019, 11:33 AM
|
#15
|
Senior Member
Join Date: Apr 2008
Posts: 1,477
|
Re: Happy and grateful to be joining the fourteen year club!
I also forgot my anniversary during May, 2019. That seems to have happened the last two years. However, I think of my cancer and cancer in general a lot.
In any event, I made it to 14 years NED last May. Incredibly grateful and continuing to pray. Happy Holidays to all.
|
|
|
12-27-2019, 12:57 PM
|
#16
|
Senior Member
Join Date: May 2014
Posts: 307
|
Re: Happy and grateful to be joining the fourteen year club!
Congrats on the continued NED status. And Happy Holidays!
|
|
|
12-29-2019, 04:01 PM
|
#17
|
Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
|
Re: Happy and grateful to be joining the fourteen year club!
Thank you Donna and a Happy and healthy New year to you!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
|
|
|
01-17-2020, 03:38 PM
|
#18
|
Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
|
Re: Happy and grateful to be joining the fourteen year club!
Happy upcoming Chinese New Year to everyone! Year of the Pig starts January 21.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
|
|
|
01-02-2020, 02:08 PM
|
#19
|
Senior Member
Join Date: Jun 2007
Posts: 216
|
Re: Happy and grateful to be joining the fourteen year club!
Happy New Year Tricia and everyone on this site. I have not been on here for a long time with my other half having cancer problems. He is okay now and so glad that you are well Tricia 14 years later and I will be joining you soon for 14 years. Time flies! Never expected to be here. Happy New Year again to everyone
|
|
|
01-03-2020, 01:52 PM
|
#20
|
Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
|
Re: Happy and grateful to be joining the fourteen year club!
Happy New Year Jan and I'm so pleased you and your husband are doing well. I can't believe how fast the years go by but grateful to be here still alive and kicking!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 05:41 AM.
|