Hearing Loss Anyone?

Donna · 09-23-2006, 10:29 AM

Hi All, and wishing you a great day!

I was wondering if anyone else had inner ear and hearing problems related to their chemotherapy regimen? I just finished my four dose dense treatments with Adriamycin/Cytoxan and during the last two, my hearing has changed dramatically. I am not sure, but headaches may be related???

Ototoxicity is not a side effect listed for these meds - there are other chemos where this would be a common side effect.

Anyone else experience this and if so, what can be done for it if anything?

Thanks so much. This group and all the information I garner from it is wonderful.

Donna Milliron

sadie · 09-23-2006, 04:27 PM

What's that? Hearing loss? eh?
lol
Oh boy, do I have the hearing loss! I always did have Tinnitus; but during my AC regimen, my hearing starting getting worse. Ringing in the ears became louder and louder. Got worse during Herceptin/Taxol regimen. Once I finished the Taxol, it stopped getting worse, but never got better.
Eye-sight is really bad too. I notice that it's worse the week after having my Herceptin-only treatment. It slowly improves, then it's time for another treatment.
Hope you have better luck than I have had. Of course, compared to the alternative......
A couple of months ago, I remember another thread having to do with hearing loss.
Maybe people just wrote about it in the Herceptin side-effects thread.
Check it out, because there were alot of responses about the hearing loss.
Take care.

tousled1 · 09-23-2006, 08:07 PM

And I thought I was the only one with eyesight and hearing problems! I thought it was just age related! Mine too is getting worse since starting Herceptin.

Joy · 09-24-2006, 09:34 AM

Hi Donna, i swore that my hearing decreased during carbo/taxol even though i found inconsistent information to support my experience. I have been off of those for about 2 months and i'm sure it is better. I really didn't want my mom to be right about all those concerts catching up to me

.

I hope your hearing issues resolve swiftly.

Her2nSue · 09-25-2006, 06:50 AM

I haven't been on in a while, but this sure caught my eye. I'm not alone in having to sound like an old woman with "can you repeat that, I couldn't hear you". I just thought either I'm not connecting the dots when someone speaks to me or any background noise drowns out the conversation. But when it continues at home and between me and my daughter, I know theres a problem. Currently still doing herceptin since Feb. and still have a couple of more months to go. I hope my hearing improves after this is all done with.
Good luck to you all, too.
Sue

Bev · 09-25-2006, 08:22 PM

After AC, during T & H my ears blocked up with some ringing. That has cleared up 7 mos down the road. My vision has been worsening. I hope that will level off as well. BB

G. Ann · 09-25-2006, 10:16 PM

I'm so glad you brought this point up. I've had ringing in ears for 10 years or so, but it's much worse now and a higher pitch. It's very annoying. Perhaps it is the Herceptin that has made it worse.

G. Ann

lisahammo · 09-26-2006, 01:40 AM

Hi Donna

I haven't been on for a couple of months either, but I too have experienced hearing loss. My onc told me it was caused by the chemo. I can actually pinpoint the night it started. It is tinnitus, and I had an MRI to check for brain mets, but thankfully that was all clear. So, just hearing loss, and I have also noticed my eyesore has also become worse, however the optometrist tells me that's just age.

Good luck

Love Lisa

heblaj01 · 01-19-2007, 10:39 AM

Since a few of the responders in this thread are afflicted with ringing in the hears I thought that the following might be of interest.
Tinnitus sufferers have reported some relief taking one of these supplements or drug:
melatonin
zinc citrate or zinc methionine
Cytotec (misoprostol)

As usual check with your caregiver before trying supplements.

http://www.peoplespharmacy.com/archi...n_the_ears.asp
New Hope for People with Ringing in the Ears April 3, 2006

Hopeful · 01-19-2007, 11:08 AM

I started tinnitus when I added an AI to Herceptin. Originally, it was Femara, but the ringing got so bad, my onc switched me to Arimidex. It has improved, but is still there. I did some research and found that there are estrogen receptors on the cells in the inner ear; I believe my tinnitus is related to low estrogen. I think Femara is supposed to get the levels a little lower than Arimidex. The change in drug made the difference for me between something that was driving me nuts every waking minute to a side effect that I am not always conscious of unless I focus on it.

Hopeful

MGordon · 01-19-2007, 11:47 AM

As is dealing with the disease is not enough - you all find it within yourselves to deal with the effects of these treatments everyday.

Let's see...

Memory Loss/Chemo brain
Dry AND Teary eyes
Hearing loss
Surgical/Port placement
Neuropathy
Bone pain
Anxiety

And this just scrathes the surface...

WOW -

Love and Light
Mel