HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 07-15-2009, 08:34 PM   #1
Sherryg683
Senior Member
 
Sherryg683's Avatar
 
Join Date: Feb 2006
Posts: 1,014
Touchy subject here

Ok, I am going to ask my Her2 sisters about this. It's not the cheeriest of subjects. My husband and I have been getting along dreadfully for the longest and I am sick of it. I am tired of his anger issues and yelling. I feel like I am pretty much stuck in this awful hell because I have never worked and need his medical insurance. Being a stage IV and having life long herceptin and regular scans, I could in no way get the care that I get now in the charity hospital here. I have a young daughter and I have to stay alive for her till she's grown. After that I may say "screw it" and leave. Has anyone else faced these issues and how do you handle them. Other than that, I have remained healthy and am blessed ..sherryg
__________________
Sherry

Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year

Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
Sherryg683 is offline   Reply With Quote
Old 07-15-2009, 09:03 PM   #2
Believe51
Senior Member
 
Believe51's Avatar
 
Join Date: Jun 2007
Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
Oh Lovey, I am so sorry that you are dealing with such issues. Seems to me that fighting to beat breast cancer is hell all by itself and should exclude you from any other fighting. I do not have the advice you seek but I am sure someone, somewhere does. I send you a hug and let you know I wish I could be by your side.

What I do know Sherry is that when we face the most challenging parts of our lives and feel doomed, look into your heart for it holds the answer. I think the most difficult part of this is when children are involved. Whatever you chose I have faith will be what is best for all parties involved. As for the medical, Ed lost his when he was unable to work. Besides some of the hoops we had to jump through, he has gotten the care he deserves....and this is Rhode Island!! The rest will work through somehow, it always does, sometimes though, it is not easy.

You are a lovely person Sherry and someone who has fought so hard to conquer cancer. I believe you deserve peace and happiness at the least. Only beauty and love should surround you today and always. I pray for the clarity you will need to see this through. I know your strength and feel that given time you will do what is best. Remember to include what you desire and deserve in life to help you with any decisions you may have to make. Here is to you making the choice that will bring you the gifts of life that you are entitled to. I love you.>>Believe51

PS: If you need reinforcements let me know, lately I am a force to be reckoned with!! (smiling)
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
Believe51 is offline   Reply With Quote
Old 07-15-2009, 09:06 PM   #3
Cal-Gal
Senior Member
 
Cal-Gal's Avatar
 
Join Date: Jun 2009
Location: Los Angeles, CA
Posts: 309
Dear Sherry,

I am single and dealing with this cancer nonsense by myself-so I cannot give advice as to what to do about a spousal situation--

I will however send positive thoughts your way that you have the strength you need to remain NED-healthy and strong for you and your daughter.

I do know that as trite as this sounds, I do believe that everything will work out for you. I wish for you to be NED for many years to come so that you can enjoy not only your child but your grandchildren too--(they are a blessing--I am 53 and have 7 grandkids!!!!)

My thoughts are with you during this difficult time.
__________________
DX: 11/08 Age: 53
Surgery: 1/09
Bilat Mastectomy, no reconstruction
ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm
DCIS-11 cm
All tumors Grade 3
All tumors ER-0%/PR-0%
All tumors HER2+
IHC-all tumors Overexpression/borderline
FISH 2 tumors Her2-Negative
FISH 2 tumors Her2+ Equivocal
Stage I, 0/1 nodes
LVI-Indeterminate(treated as positive)
SPR Score 8/9
Ki-67 20%
BRCA genetic test 1/2=negative
Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta
Herceptin: 6/12/09-6/4/10 52weeks
HNPCC genetic test: negative
Port Placement-9/23/09 Port Removal 6/25/10
Echo's every 3 months-All normal
2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets--
6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged
1/10-PET/CT-uptake in nasopharynx-
1/10-MRI All normal
6/10-Bone Scan-clear
12/10-PET/CT-All Clear-NED
12/11-PET-All Clear-NED

12/12-PET-All Clear-NED
12/13-CT w/contrast Head, Torso-All Clear
12/14-CT w/contrast Head-All Clear
2/15-Core needle biopsy-R scar line

Cal-Gal is offline   Reply With Quote
Old 07-15-2009, 09:35 PM   #4
ElaineM
Senior Member
 
ElaineM's Avatar
 
Join Date: May 2006
Posts: 3,142
Wink Touchy subject here

I am sorry to read your news Sherry. I don't know anything about dealing with cancer and family issues at the same time, but I think Joe posted something about disability rights recently. If you can look for that post and get the website address and check to see if they might have something about family issues and disability.
Is there someone (nurse or other professional) at your doctor's office or hospital who can suggest someone you can talk to in your area--------like a social worker or counselor who might be able to suggest resources in your area or help you and your family in other ways.
You mentioned you did not work outside your home. I wonder if you can still apply for social security disability?
Then after two years you would probably get Medicare.
Good luck. Hugs to you.
__________________
Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
ElaineM is offline   Reply With Quote
Old 07-15-2009, 11:17 PM   #5
SoCalGal
Senior Member
 
SoCalGal's Avatar
 
Join Date: Apr 2007
Location: LA LA Land
Posts: 1,607
I would say you should get a private consultation, pay in cash, with a top notch divorce attorney and see what your options really are. Write down a list of questions and buy an hour of someone's time.

Have you tried couples counseling? It can be quite helpful or marriage encounter weekends? You have built a life together and did vow "till death due us part". If you can salvage your marriage that would be the best for all. A long term marriage with kids, divorce is so much more than the breaking up of two people. It is a ripple in the center of a pool (your kids, family and friends) and the ripples are felt by many. This ripple effect affects even your community.

I will be supportive of whatever path you walk, just wanted to say that wishing to be divorced is gravely different than going thru that divorce and watching it rip up your life and the life of your kids.
Flori
__________________
1996 cancer WTF?! 1.3 cm lumpectomy Er/Pr neg. Her2+ (20nodes NEGATIVE) did CMF + rads. NED.
2002 recurrence. Bilateral mastectomy w/TFL autologous recon. Then ACx2. Skin lymphatic rash. Taxotere w/Herceptin x4. Herceptin/Xeloda. Finally stops spreading.
2003 - Back to surgery, remove skin mets, and will have surgery one week later when pathology can confirm margins.
‘03 latisimus dorsi flap to remove skin mets. CLEAN MARGINS. Continue single agent Herceptin thru 4/04. NED.
‘04 '05 & 06 tiny recurrences - scar line. surgery to cut out. NED each time.
1/2006 Rads again, to scar line. NED.

3/07 Heartbreaking news - mets! lungs.sternum. Try Tykerb/Xeloda. Tykerb/Carbo/Gemzar. Switch Oncs.
12/07 Herceptin.Tykerb. Markers go stable.
2/8/08 gamma knife 13mm stupid brain met.
3/08 Herceptin/tykerb/avastin/zometa.
3/09 brain NED. Lungs STABLE.
4/09 attack sternum (10 daysPHOTONS.5 days ELECTRONS)
9/09 MARKERS normal!
3/10 PET/CT=manubrium intensely metabolically active but stable. NEDhead.
Wash out 5/10 for tdm1 but 6/10 CT STABLE, PET improving. Markers normal. Brain NED. Resume just Herceptin plus ZOMETA
Dec 2010 Brain NED, lungs/sternum stable. markers normal.
MAR 2011 stop Herceptin/allergy! Go back on Tykerb and switch to Xgeva.
May-Aug 2011 Tykerb Herceptin Xgeva.
Sept 2011 Tykerb, Herceptin, Zometa, Avastin.
April 2012 sketchy drug trial in NYC. 6 weeks later I’m NED!
OCT 2012 PET/CT shows a bunch of freakin’ progression. Back to LA and Herceptin.avastin.zometa.
12/20/12 add in PERJETA!
March 2013 – 5 YEARS POST continue HAPZ
APRIL 2013 - 6 yrs stage 4. "FAILED" PETscan on 4/2/13
May 2013: rePetted - improvement in lungs, left adrenal stable, right 6th rib inactive, (must be PERJETA avastin) sternum and L1 fruckin'worsen. Drop zometa. ADD Xgeva. Doc says get rads consultant for L1 and possible biopsy of L1. I say, no thanks, doc. Lets see what xgeva brings to the table first. It's summer.
June-August 2013HAPX Herceptin Avastin Perjeta xgeva.
Sept - now - on chemo hold for calming tummy we hope. Markers stable for 2 months.
Nov 2013 - Herceptin-Perjeta-Avastin-Xgeva (collageneous colitis, which explains tummy probs, added Entocort)
December '13 BRAIN MRI ned in da head.
Jan 2014: CONTINUING on HAPX…
FEB 2014 PetCT clinical “impression”: 1. newbie nodule - SUV 1.5 right apical nodule, mildly hypermetabolic “suggestive” of worsening neoplastic lesion. 2. moderate worsening of the sternum – SUV 5.6 from 3.8
3. increasing sclerosis & decreasing activity of L1 met “suggests” mild healing. (SUV 9.4 v 12.1 in May ‘13)
4. scattered lung nodules, up to 5mm in size = stable, no increased activity
5. other small scattered sclerotic lesions, one in right iliac and one in thoracic vertebral body similar in appearance to L1 without PET activity and not clearly pathologic
APRIL 2014 - 6 YRS POST GAMMA ZAP, 7 YRS MBC & 18 YEARS FROM ORIGINAL DX!
October 2014: hold avastin, continue HPX
Feb 2015 Cancer you lost. NEDHEAD 7 years post gamma zap miracle, 8 years ST4, +19 yrs original diagnosis.
Continue HPX. Adding back Avastin
Nov 2015 pet/ct is mixed result. L1 SUV is worse. Continue Herceptin/avastin/xgeva. Might revisit Perjeta for L1. Meantime going for rads consult for L1
December 2015 - brain stable. Continue Herceptin, Perjeta, Avastin and xgeva.
Jan 2016: 5 days, 20 grays, Rads to L1 and continue on HAPX. I’m trying to "save" TDM1 for next line. Hope the rads work to quiet L1. Sciatic pain extraordinaire :((
Markers drop post rads.
2/24/16 HAP plus X - markers are down
SCIATIC PAIN DEAL BREAKER.
3/23/16 Laminectomy w/coflex implant L4/5. NO MORE SCIATIC PAIN!!! Healing.
APRIL 2016 - 9 YRS MBC
July 2016 - continue HAP plus Xgeva.
DEC 2016 - PETCT: mets to sternum, lungs, L1 still about the same in size and PET activity. Markers not bad. Not making changes if I don't need to. Herceptin/Perjeta/Avastin/Xgeva
APRIL 2017 10 YEARS MBC
December 2017 - Progression - gonna switch it up
FEB 2018 - Kadcyla 3 cycles ---->progression :(
MAY30th - bronchoscopy, w/foundation1 - her2 enriched
Aug 27, 2018 - start clinical trial ZW25
JAN 2019 - ZW25 seems to be keeping me stable
APRIL 2019 - ONE DOZEN YEARS LIVING METASTATIC
MAY 2019 - progression back on herceptin add xeloda
JUNE 2019 - "6 mos average survival" LMD & CNS new single brain met - one zap during 5 days true beam SBRT to cord met
10/30/19 - stable brain and cord. progression lungs and bones. washing out. applying for ds8201a w nivolumab. hope they take me.
12/27/19 - begin ds8401a w nivolumab. after 2nd cycle nodes melt away. after 3rd cycle chest scan shows Improvement, brain MRI shows improvement, resolved areas & nothing new. switch to plain ENHERTU. after 4th cycle, PETscan shows mostly resolved or improved results. Markers near normal. I'm stunned but grateful.
10/26/20 - June 2021 Tucatinib/xeloda/herceptin - stable ish.
SoCalGal is offline   Reply With Quote
Old 07-16-2009, 07:30 AM   #6
AlaskaAngel
Senior Member
 
AlaskaAngel's Avatar
 
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
I very much admire the simplicity and dignity of your post.

Thank you to Joe and Christine for providing a place where diverse and friendly discussion about sensitive topics is so aptly provided.

If you have access to visit a support group for people dealing with spousal abuse, consider going to that source, even if only to see whether it offers you meaningful help for deciding what things others have learned in that situation. You can choose whether to continue to explore that avenue or not, but the key is to explore possible alternatives. Feeling blocked in not knowing how to make things better in your life is not helpful in dealing with breast cancer. Consider opening some new doors even if you decide after looking in and listening a bit that some of them aren't what you are interested in. Support groups (like this one) who are going through what you are going through are priceless, not only in terms of refuge and solace but in terms of new friendships and perspectives.

AlaskaAngel
AlaskaAngel is offline   Reply With Quote
Old 07-16-2009, 08:23 AM   #7
rl2
Guest
 
Posts: n/a
check with lawyer in your state, but you can probably legally separate without a divorce and remain on his health insurance.

And if there is health insurance reform, hopefully you (and everyone else) will be able to get an individual policy even in the event of a divorce (or unemployment or any other change that forces any of us off a group policy) - if that happens, you could try to get payment of the benefit as part of a property settlement.
  Reply With Quote
Old 07-16-2009, 08:41 AM   #8
Mary Jo
Senior Member
 
Mary Jo's Avatar
 
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
Sherry, I'm sure it took a lot of courage to post this here. I'm glad you did. Your feelings are real and if you are unhappy you are unhappy.

I would ask if you and your husband have really sat down and discussed, in depth, what's on your heart... his as well. Does he know you'd like to end the marriage? Does he? Possibly he's feeling as unhappy as you are and you are both masking your true feelings?

Sherry, I pray you seek good counsel before you end your marriage. Coming from a divorced home (in which my parent's definitely should have divorced - cheating - alcoholism etc) I can attest to the fact (as Flori said) it is no walk in the part for the children. If you and your husband do decide to go ahead with a divorce, I do pray you both work together, civally (spelling?) for the sake of your child.

I'm sorry you are going through this. It must be incredibly sad each day to carry on with a heart that is heavy and unhappy.

Praying you feel guidance as to where you should turn and what you should do....

Hugs and love,

Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
Mary Jo is offline   Reply With Quote
Old 07-16-2009, 08:48 AM   #9
MJo
Senior Member
 
MJo's Avatar
 
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
I think the idea of seeing a good lawyer is great. Also, a legal separation which will keep you on his insurance, give you a chance to apply for disability, try living apart, etc. I hope your husband will be reasonable (!).
__________________
MJO

IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
MJo is offline   Reply With Quote
Old 07-16-2009, 08:53 AM   #10
suzan w
Senior Member
 
suzan w's Avatar
 
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
Even though it has already been said, I agree that a good attorney should be able to make sure that even if you do split with your husband, because you have never "worked" (although it is so unfair that Moms don't get credit for all the "work" we do!), that you should be able to maintain your lifestyle for the most part, especially as far as health insurance goes. My english teacher just spoke to me from the beyone about my run-on sentence!!! Good luck! Living in an unhappy place is not healthy for you or your kids.
__________________
Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
suzan w is offline   Reply With Quote
Old 07-16-2009, 10:06 AM   #11
Shobha
Senior Member
 
Join Date: Feb 2008
Location: Bayarea,CA
Posts: 679
Dear Sherry,

Your situation is a difficult one and for the sake of your young daughter you do need to stay alive for many more years! For this you do need a good insurance and your children will have a very difficult time if you get divorced.

The only way to deal with an argument or someone yelling at you, is to NOT react...walk away for a few minutes. Make sure you cannot hear what he is saying otherwise you will be provoked into responding. This is by no means a trivial task, but try to practice this and it will reduce your stress and slowly he will calm down too.

The idea of seeing a marriage counsellor is good. Like Flori said, wanting to get divorced and actually going through a divorce are very different.

As always my prayers for you to find peace and harmony at home. This cancer battle is hard enough and you should not have to deal with this issue as well.

hugs and positive thoughts,
shobha
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
Shobha is offline   Reply With Quote
Old 07-16-2009, 12:26 PM   #12
lkc Gumby
Senior Member
 
lkc Gumby's Avatar
 
Join Date: Feb 2006
Posts: 437
Dear Sherry, I am so sad to read your post. Why is it that having Breast Cancer can bring out the worst in spouses, and sometimes relatives?
I pray that you somehow can resolve this. (either with him or without )
I have always been thankful, I was not married to my ex when i was diagnosed .He would of walked out cold.
Anyway, I pray that you continue to be healthy, enjoy your little one, and life gets better for you.
__________________
Linda

Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
lkc Gumby is offline   Reply With Quote
Old 07-16-2009, 09:27 PM   #13
ElaineM
Senior Member
 
ElaineM's Avatar
 
Join Date: May 2006
Posts: 3,142
Wink Touchy subject here

Couples or family counseling might be good. Also can you talk to him and suggest he see his doc for a check up to see if there may be a physical problem causing his stress, anger and yelling? He may not want to go. Sometimes guys don't like to go for check ups unless they are in bad shape.
I might put a little "secret" money aside every week from the household budget (whatever you can afford---even a few dollars a week or throwing loose change in a jar that can be hidden someplace might help), which will help pay for whatever I decide to do if I were in your position. That gives a person a few more more options.
__________________
Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.

Last edited by ElaineM; 07-16-2009 at 09:29 PM.. Reason: mistake
ElaineM is offline   Reply With Quote
Old 07-17-2009, 02:24 PM   #14
Ruth
Senior Member
 
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
Dear Sherry:

What a brave thing to do is come out and admit this. It is such a hard thing to do, I know personally and sometimes in hindsight I wish I had talked about what my prior marriage was all about. I did talk to a therapist but kept all the private thoughts private with family and friends and it was quite a shock for everyone when I decided it was enough and I was done. I was you about 4 years ago and after therapy and lots of soul searching I am now divorced from my Ex and married to Mr. Wonderful! It wasn't an easy road and it certainly wasn't easy on the kids (or anyone) but we have all come out of it OK. Kids are thriving, happy campers and love life. My situation may not be the norm but it worked out for me and we are all in a good place (ex included).
Now about insurance, you legally are entitled to COBRA for 36 months following a divorce. Same health insurance you have now but premium paid by you. However, you can have your husband pay for it in the settlement agreement (my ex is an attorney & I was stay at home mommy). From then on things do become more tricky. What state do you live in? Some states have conversion policies and it doesn't mean that you won't get insurance as long as you don't have a break in coverage of more than 62 or 63 days. That said you HAVE to always pay the COBRA and never let it lapse. I am on a state mandated conversion policy.
Counseling is a great idea because I think in many cases counseling saves many, many marriages. Talking about it really helps and if you are to the point where you don't like him anymore then you really need to go asap to talk to someone. My therapist said that love feelings can come back but liking someone again after not caring is much harder.

I am so sorry that you have to deal with this and having cancer diagnosis is enough stress on someone. Divorce is very stressful no doubt but living in a toxic relationship is destoying in its own way. I always remembered that I didn't want my kids to think that my prior marriage was what a marriage was all about. I was worth more than how I was treated. One of my sons said to me a few months ago that he got it now. He understood why and that he accepted it. You can pm me anytime and I'd love to help.
Hugs ~ Ruth
__________________
[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~

Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
Ruth is offline   Reply With Quote
Old 07-17-2009, 05:06 PM   #15
Cannon
Senior Member
 
Cannon's Avatar
 
Join Date: Oct 2007
Posts: 203
Ok, I am coming with a different perspective. I was divorced 4 years before my bc diagnosis. When I was dx, I was SO grateful that I was already divorced, because my ex is one of those who would have left me (no breasts? what? what about me?).

I had already built other strong relationships, and found support in many places. My ex was a peach during my treatment, cause he likes to be a hero (and though the divorce was contentious, he did not wish me dead, if only for the kids' sake).

My younger son (now 15, 8 at the time we got divorced) was VERY angry at the time, but has adjusted over time. I knew I had to leave the marriage because I could not live in a situation where I was treated poorly and let my kids believe that was ok.

My parents' marriage was very tense, and they separated and reconciled when I was 15. I was angry when they RECONCILED, cause it was that bad. They eventually divorced when I was 25.

IMHO, a bad marriage does no one any good.

A consultation with a lawyer is a good idea. Entirely likely that you could get child support, and alimony. I think other posters are right that to be on his insurance you still have to be married, but I believe you can be on it via COBRA for 18-36 months due to divorce (and who pays for it is something to be negotiated).

It's not me, but I think that if it were, I would be determined to live my best life -- without someone who is adding to my stress.

Best wishes always,
Rebecca
__________________
Dx 8/06 Age 43 Stage IIIA multifocal throughout breast, largest tumor 5 cm, grade 3, comedo, ER+PR+HER+++
Neoadjuvant A/C 4X Dose Dense
11/06 Bilateral Mastectomy (no choice on the right, my choice on the left)
Taxol+Herceptin weekly x12, continuing with Herceptin, finished one year in 12/07
33 Rads
Femara for 5+ years, staying on (started with Arimidex, switched after about a month, much happier)
Abnormal brain MRI shows no cancer, but "extensive white matter diease" - unknown cause
BRCA negative - lots of cancer in my family
survivor of thyroid cancer
also have Crohn's disease
CT and bone scan say NED as of 5/13
dx with severe cardiomyopathy 5/12 (likely due to chemo and Herceptin), ejection fraction in low 20's, now up to 40, went to 50, latest read 12/13 is back down to 35
1/13 Acute pancreatitis - are you kidding me?
9/13 started Humira for Crohn's. starting to have some energy again
B12 and Vit D both needed supplementation
Cataracts in both eyes noted 6/12 - surgery in the next 2-4 years?
4/14 Kidney stones/blockage/infection - related to Crohn's Disease
5/14 My aunt passed away - she was diagnosed after I was with Stage I - not Her2+, then Stage 4 for about one year
6/14 Scans - still NED, thank God. However, broken rib (I didn't notice) lots of bone degeneration osteopenia/osteoporosis. I also still have cardiomyopathy secondary to chemo.
Cannon is offline   Reply With Quote
Old 07-17-2009, 06:45 PM   #16
DanaRT
Senior Member
 
DanaRT's Avatar
 
Join Date: Dec 2007
Location: Avilla, Indiana
Posts: 261
Dear Sherry, You are getting really good advice here. You may be entitled to more than you realize if you seek out good counsel. Although, I was young I remember feeling relieved when my parents divorced.

Sending good energy,
Dana
__________________
-Dana-

]
Diagnosed - Nov. 2, 2007 at 45
Lumpectomy - Nov. 13, 2007
Tumor 1.2 cm
Stage 1 Grade 3
ER/PR - Her2 +++ (3.8)
Taxotere/Carboplatin/Herceptin- 6 rounds
Neulasta
Radiation 33 treatments - will be done 6/6/08
Herceptin through 12/08
12/07 MUGA 61%, 4/08 MUGA 60%, 7/08 MUGA 64%
three wonderful daughters, a terrific husband,
Life is Good
DanaRT is offline   Reply With Quote
Old 07-18-2009, 07:42 AM   #17
Lori R
Senior Member
 
Join Date: Jan 2008
Location: Evergreen, Colorado
Posts: 454
Sherry,
Here is one more vote for marriage counseling. If you express to your husband that there are aspects of your relationship that you would like to work on and he agrees to go, that is a HUGE sign that he wants the marriage to work. I would suggest the counseling question rather than a confrontational question such as "do you want to remain married"? (a question a threw out on the table when hurt and frustrated)

My cancer diagnosis caused me to rethink my marriage and I was shocked when my husband agreed to attend. Now I wish that we had pursued this years ago. (OK....this is one of cancers gifts) Turns out a lot of our frustrations were due to poor communication and the way in which we approached each other.

Guaranteed....we could not have worked through some of our feelings without a "referee" to help us keep the discussions positive and loving.

Please ask him...it will be painful at first but I can only imagine the pain of a divorce.

Just another perspective.....Lori
__________________
2007
Oct - Diagnosed - Stage IV
5 c.m. IDC - Left Side er/pr- Her2+++
Node + 2/14 - Single Liver Met
Double Mastectomy
Nov - Begin T+H
2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
Lori R is offline   Reply With Quote
Old 07-18-2009, 01:23 PM   #18
Unregistered
Guest
 
Posts: n/a
to Sherri

Hello,

I hope you do consider counseling for you and your husband. My husband is my absolute best friend and at one time our marriage went through the ringer. I do believe that going through a crisis defines a person and shows their true character. It is no secret that often marriages crumble during times of illness but at one time you and your husband were inlove you can refind that love. He must want to work on things too. I shudder to think where I would be and where my family would be if I had just given up on my marriage. It would have been the easier thing to do but we got through it. And we are all better for it. We both know how important our family is and that our children are happy and stable. I wish you both well, may God bless you all, alaina
  Reply With Quote
Old 07-18-2009, 10:04 PM   #19
Believe51
Senior Member
 
Believe51's Avatar
 
Join Date: Jun 2007
Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
Sherry, I am just sending you more love today. It was so nice to read all of the wonderful advice from our sisters. I will keep you in heart as you sort things through and make those decisions to improve your lives. Peace to you>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
Believe51 is offline   Reply With Quote
Old 07-19-2009, 12:21 AM   #20
Chelee
Senior Member
 
Chelee's Avatar
 
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
Sherry, I'm not sure my situation is as bad...but my husband definitely has anger issues & a bad temper. It's very difficult to put up with at times. I'm on disability & like you I feel stuck! If I left there is no way I could live on what disability pays me...impossible. Plus I'm in the same boat...I'm covered through my husbands insurance, & since being dx with cancer I can't afford health insurance. (I would be entitled to medicare but I really don't want to lose the coverage I have now.) Big difference between the two.

There has been alot of good advice here but if your husband is anything like mine....counseling is out of the question...my husband refuses. He says he does not believe in it. (Just an excuse & it shows me how little he cares.) I use to have an escape planned which was moving back home with my Mother...but she passed away with advanced lung cancer not quite two yrs ago so now I have no where & nobody. I've went through this cancer nightmare all alone. I feel so isolated at times. My husband did alot of yelling through it. I realize he was tired and it isn't easy on him...but having cancer was NEVER on my "things to do list".

Flori's idea of seeing an attorney and finding out what all your options are is one of the best suggestions IMO. To be honest...I've done that in the past...and it did help. I'm in CA so this is a community property state so I would do ok in more ways then I first thought. The divorce attorney I went to had a good reputation & I was surprised that he gave me 45 minutes of his time at no charge. We covered alot of ground in that time & it helped me immensely. That's the best direction to go if your husband will not go to counseling with you.

Also the suggestion to put money away is a GOOD one. I started doing that right before I was dx with bc. Then I felt jinxed...the first time in my life I had a nice stash tucked away I was dx with bc. It makes me feel good to know it's there...but sad to know I might never get to use it.

My heart really goes out to you Sherry...I'm sure I can relate to some of what you’re dealing with. I've read other posts of yours in the past & was sad to see how similar our husbands sound.


Sending a big hug your way.

Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
Chelee is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 07:00 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter