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Old 09-23-2014, 01:51 PM   #1
eva9310
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Anyone have to quit neoadjuvent chemo bc of side effects?
My oncologist said the other day if the side effects get worse that it's possible we stop treatment and move on to surgery.

I've already done my a/c and after tomorrow I will only have 6 of 12 taxol/perjeta/herceptin treatments left.

I almost wish she would not have said that because I never realized it was an option and now it's all I can think about!!

Damn taxol! If it were not for the rash and constant itching I might could keep going but it's making me loose my mind!! I think they lump all this in with the neuropathy. They shouldn't. This is not lose of sensation or tingling. Insert angry face. I can deal with the other side effects.

Scares me not to finish and I think that would remove any grey area and any choice of not having radiation.

I read all your signatures (which I had yet to figure out) and it seems like everyone was Abel to press on and finish treatments. I guess I just need to suck it up like everyone else. I was all set to press on till she said that. Now I'm like a dog with a bone!!!
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Old 09-23-2014, 02:20 PM   #2
tricia keegan
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Re: Anyone have to quit neoadjuvent chemo bc of side effects?
Eva were you due to have a year of Herceptin as well?? I find it odd your Onc would stop the treatments for this rather than give you a med to help with it, I know itching can be very uncomfortable of course but can be helped and hardly a reason to quit. (although I would have loved a reason too lol)!!

Maybe you can quit the Taxol and continue the Herceptin? Either way I wish you well and do keep us posted.
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
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2014 Normal Dexa scan
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Old 09-23-2014, 02:22 PM   #3
eva9310
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Re: Anyone have to quit neoadjuvent chemo bc of side effects?
Tricia - and everyone else, let me clarify.

I would only be quitting the taxol, going to surgery and keeping up with the Herceptin for a year.

My side effects are from the Taxol, nothing really helps unfortunately. She is giving me meds and options it's just not working. :-(
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Old 09-23-2014, 02:31 PM   #4
BonnieR
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Re: Anyone have to quit neoadjuvent chemo bc of side effects?
My TCH was stopped after 4 doses because my neuropathy was increasing. Continued with year of Herceptin
Keep the faith
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Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 09-23-2014, 07:34 PM   #5
Carol Ann
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Re: Anyone have to quit neoadjuvent chemo bc of side effects?
Hi Eva, sorry you're having such a rough time with the Taxol.

To make your signature, click on Quick Links in the upper right hand corner ... then Edit signature under User Control Panel. It took me awhile to figure it out too.

Carol Ann
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Aug 18, 2013: MRI report says Left breast is perfectly healthy "consistent with previous studies".

Sept 2013: I insist on a bilateral mastectomy anyway. Too nervewracking to let left breast remain with higher risk after 3 cancers in right, nipple in right is already gone anyhow.

Sept 18, 2013: Bilateral mastectomy, 11 right nodes removed, ALL negative BUT -- ER+/PRO+/HER2+ tumor, 1.0 cm, Grade 2 found in a piece of "grossly unremarkable" breast tissue from prophylactic mastectomy of left breast, no nodes removed.

Oct 25, 2013: 13 left side nodes removed, ALL negative, Stage 1 across the board, NO RADS needed, YAAAAY! Port also installed.

Nov 25, 2013 Begin 6 rounds TCH.

March 10, 2014 Just finished 6th and LAST Chemo today, YAAAAAY!

March 24, 2014 Echocardiogram to make sure I'm still good for Herceptin every 3 weeks.

March 31, 2014 Echo results NORMAL, first Herceptin all by itself. Now if only my eyes would stop streaming from the Taxotere ... :)

April 21, 2014 Started Arimidex and therapy for "mild" lymphedema in left hand and arm

May 2014 Therapy completed, I have sleeves and gloves for both arms, a Flexi touch lymph pump to hook up to for an hour every day, and I've become an arm bandaging expert. :)

June 2014 Begin Fosamax to prevent osteoporosis; bone scan revealed osteopenia

Nov 17, 2014 FINAL Herceptin!

Dec 4, 2014 My right thigh muscle has been extra achy for days ... I discover a blister rash cluster on the side of my right thigh while taking a shower. Port appointment cancelled until Dec 17, my doc is working me in tomorrow afternoon to see me and the rash. My muscle at least feels less achy.

Dec 5, 2014 Yep, I have shingles. Boo! I start acyclovir and also have a prescription for a painkiller just in case for over the weekend.

Dec 17, 2014 Port is OUT!

January 2016 Shingles again and this time it started where my left breast (where the hidden HER2+++ tumor was!) used to be. My onc nurse got me a same day appointment to see my doc when I called and told her I had a rash on the site. The antiviral meds are working once again, though, so that is good news. :)
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Old 09-23-2014, 11:54 PM   #6
sarah
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Re: Anyone have to quit neoadjuvent chemo bc of side effects?
I had taxol weekly because it was thought to be more tolerable. I had insane itching and found covering myself with calamine lotion was the only solution but I did the chemo weekly for 6 months and then Herceptin continued. Maybe you can have the surgery and then try the chemo again weekly????
take care
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Old 09-24-2014, 08:05 AM   #7
eva9310
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Re: Anyone have to quit neoadjuvent chemo bc of side effects?
Thanks Sarah! I will try the calamine lotion!!

Eva
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