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11-16-2010, 05:56 AM
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#1
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Senior Member
Join Date: Sep 2006
Location: Chicago, IL
Posts: 105
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5-Year Cancerversary for Stage IIIA
Hi. I have been lurking for the past year or two. You are all such an inspiration to me. I was hoping I could share this day with you ... my five-year cancer anniversary from Stage IIIA. Five years ago today they removed two tumors, invasive and DCIS, along with 7/12 positive nodes (which were all matted). My initial prognosis from my first oncology appt: Lisa has a medium to poor prognosis with a high risk of systematic failure. Thanks to my family, friends and those on this board including Joe who helped me so much, I am here today. I hope to share this story for another 40 years!
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11-16-2010, 06:55 AM
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#2
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Senior Member
Join Date: Sep 2009
Location: Kensington, CT
Posts: 394
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Re: 5-Year Cancerversary for Stage IIIA
Lisajones;
I am so very happy for you and hope you have forever cancerversarys. You are a true inspiration and give me great hope that I can get to where you are.
Enjoy.
Kris...
__________________
06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++
Nottingham 6/9 - Grade 2 5.2cm, several nodes
06/23/09 - Neoadjuvant - TCH Herceptin til June
10/07/09 - Finished Chemo
10/27/09 - Mastectomy RB
Path Report: RB No residual tumor pCR,
2 of 15 pos - .5mm largest micromets
12/18/09 - Radiation started (28)
02/05/10 - Finished Radiation
01/11/10 - Started Femara
06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best.
11/15/10 - Started Walter Reed BC Vaccine trial at
1/04/11 - Sibley Mem. Had to withdraw due to met
01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm
02/03/11 - Gamma Knife (2 fracts to minmize necrosis)
03/01/11 - Gamma Knife
6/11 - Necrosis
7/11 - Necrosis stopped & Tumor progression
8/11 = Now think it's really necrosis
9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking.
12/11 - Necrosis gone AVASTIN worked.
12/11 - Bone &CT found
Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!
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11-16-2010, 06:56 AM
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#3
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Senior Member
Join Date: Nov 2010
Location: PA
Posts: 297
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Re: 5-Year Cancerversary for Stage IIIA
Hello Lisa. Congratulations for 5 years!!!!! Job well done. I have stage IIIB and I just celebrated my 7th year last month. Isn't it a great feeling to beat the odds? I hope you do something fun to celebrate. Mary L
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Mary L from PA Diag: Oct 2003 w/6mm mass, IDC grade III ductal carcinoma in-situ, IBC stage IIIB. tx A/C followed by Taxotere(only able to have 2 tx, allergic), mastectomy, 3 0ut of 7 positive nodes. 35 rads. Recurrence 9 months later, skin mets to mastectomy site. Tx Carboplatin/Herceptin. Stayed on Herceptin almost 5 years, had 3 more recurrences when I had to stop Herceptin due to my ejection fraction getting too low. Herceptin stopped and ned 3 years in Oct. 2010.
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11-16-2010, 07:16 AM
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#4
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Senior Member
Join Date: Oct 2010
Posts: 123
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Re: 5-Year Cancerversary for Stage IIIA
Lisa,This is wonderful news,esp.right before the holidays,I wish you many more,I hope you celebrate & thoroughly enjoy all of your holiday season,Be Happy & God Bless,Joanna J
__________________
found susp.lump Feb 2009
DX Feb 2009 ...Her2+ stage IIa ER/PR- grade 3
partial mast. Right breast,clear margins
chemo (2) carboplatin & Taxotere
could not finish chemo (hospitalized because of infection)
37 rounds radiation
Herceptin (1 yr.)
No clinical trials
Jan.2011 BRAC 1/BRAC 2 Neg
Aug.2011 clear bone/catscan NED
Apr.2012 clear digital mammo
& ultra sound of breasts
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11-16-2010, 11:26 AM
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#5
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Senior Member
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
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Re: 5-Year Cancerversary for Stage IIIA
Great news!!!
Many more anniversaries to come!
__________________
[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~
Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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11-16-2010, 01:28 PM
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#6
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: 5-Year Cancerversary for Stage IIIA
Thanks for sharing.
Amelia
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11-16-2010, 02:05 PM
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#7
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Senior Member
Join Date: Feb 2006
Posts: 437
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Re: 5-Year Cancerversary for Stage IIIA
Hi Lisa, Welcome to the 5 year club. It's great isn't it?
__________________
Linda
Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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11-16-2010, 03:22 PM
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#8
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Re: 5-Year Cancerversary for Stage IIIA
Yay Lisa!! Very happy for you and wish you many many more healthy years ahead!
Hugs,
Lexi
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11-16-2010, 03:33 PM
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#9
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: 5-Year Cancerversary for Stage IIIA
Wonderful news Lisa, congrats and welcome to the five year club!!!! 
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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11-16-2010, 03:37 PM
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#10
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Senior Member
Join Date: Aug 2009
Location: Moultrie, GA
Posts: 431
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Re: 5-Year Cancerversary for Stage IIIA
What a milestone! I hope to join you in about 2 and 1/2 more years. You are an inspiration~Sandra
__________________
Diagnosed: 7/25/08 ~ age 63, no family history
Surgery: 8/14/08 Bilateral mastectomy; tumor left breast, node dissection; right prophylactic with expanders: 1/12/10 latisimuss dorsi flap on left side: 9/22/10 implants in
Pathology Report: ER/PR-; HER2+ (3+); Grade 3, StageIII; 3cm tumor plus 21/21 lymph nodes positive; 5cm DCIS
Chemo: A/C; Taxol/Herceptin/Tykerb; phase II study at Mayo adding Tykerb for early stage
Radiation: 25 rads
Vaccine: Walter Reed GP2/AE37 vaccine study ~ last booster 9/17/2012
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11-16-2010, 03:47 PM
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#11
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Member
Join Date: Oct 2010
Posts: 7
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Re: 5-Year Cancerversary for Stage IIIA
Wow! That's so awesome! Congrats! It gives all of us that have just started our journey so much HOPE to hear things like this. YEAH, CONGRATS!
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11-16-2010, 04:40 PM
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#12
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Senior Member
Join Date: Sep 2010
Location: Northern California
Posts: 64
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Re: 5-Year Cancerversary for Stage IIIA
Thank you so much for sharing your wonderful news. It gives hope to us that are just starting our journey...
__________________
41 Years Old
Dx w/IDC in August '10
No family history
ER+/PR-/HER2+
2.2cm tumor/Stage 2A
No node involvement
Tested negative for BRCA 1/2
Participated in a UCLA clinical trial testing TCH and/or Lapatinib in stage 1/2/3 bc patients that can be removed by surgery.
Underwent neo-adjuvant therapy to shrink tumor prior to surgery.
1st Surgery date: 2/16/11
Pathology report indicated ADH/DCIS in margin.
2nd Surgery: 3/21/11
Clean margins!
Started radiation: 4/11/11
Completed radiation: 7/8/11
1st post-surgical mammogram: 8/16/11 - CLEAR!
6 Weeks of Tamoxifen - Failure to Respond
Started Lupron/Arimidex: 8/29/11
Herceptin until September '11
Recurrence - August 2018
Same profile - ER+/PR-/HER2+
Undergoing neo-adjuvant therapy prior to surgery;
Gemzar, Carboplatin, Herceptin & Perjeta
Chemo through the end of 2018...
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11-16-2010, 08:52 PM
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#13
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Senior Member
Join Date: May 2009
Posts: 510
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Re: 5-Year Cancerversary for Stage IIIA
Congratulations!!! And thanks so much for inspiring us!
__________________
ER+ (30%)/PR-/HER-2+, stage 3
Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin
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11-16-2010, 09:11 PM
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#14
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: 5-Year Cancerversary for Stage IIIA
Lisa,
Fireworks are in order - for your wonderful celebration of 5 yrs. Wishing you many many more.
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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11-16-2010, 10:20 PM
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#15
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Senior Member
Join Date: Jun 2010
Location: TN
Posts: 83
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Re: 5-Year Cancerversary for Stage IIIA
Congratulations!!!
Thank you for taking the time to come back to the board and inspiring us and giving us hope.
__________________
DX 5/17/10 IDC & DCIS
BMX 6/3/10-Stage 1, 0/2 nodes
ER+/PR-, Her2+
Chemo 7/8/10-10/21/10
FEC X 3, T X 3, Herceptin weekly for 9wks
Start Arimidex for 5 yrs-11/22/10
12/16/10 NED!!!!!
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11-17-2010, 02:00 PM
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#16
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: 5-Year Cancerversary for Stage IIIA
Sending along my best wishes too, Lisa! As my oncologist used to say, "Keep up the good work!"
Barb A.
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11-19-2010, 09:31 PM
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#17
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Senior Member
Join Date: Sep 2006
Location: Nebraska
Posts: 154
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Re: 5-Year Cancerversary for Stage IIIA
congrats!!!
__________________
Michele Ulmer
Dx.2003 Stage 3b 35 pos nodes
Dx August 2003 Stage 3B with 35/35 nodes IDC age 39
Lumpectomy
A/C x4 Taxol x12
35 radiation tx
1Year Herceptin in trial
HER2 vaccine trial Seattle
3 months Tykerb off label
NED
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11-22-2010, 12:29 PM
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#18
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Re: 5-Year Cancerversary for Stage IIIA
God bless Herceptin. I have a Stage IIIB friend who is 5 1/2 years out and feeling fine.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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11-24-2010, 12:37 PM
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#19
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Senior Member
Join Date: Jun 2007
Posts: 216
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Re: 5-Year Cancerversary for Stage IIIA
Lisa
Many congratulations.
I was diagnosed stage 111a, join you for my 5 years in three months.
Hope you have had a wonderful celebration.
Janie
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11-29-2010, 11:22 AM
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#20
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Senior Member
Join Date: Aug 2006
Location: PA
Posts: 188
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Re: 5-Year Cancerversary for Stage IIIA
Many Many Congratulations !
__________________
Susan V - Pittsburgh PA
DX Age 37 on August 3, 2006
Stage 1 Grade 3
ER/PR + (Highly Positive)
Her 2 +++
1.3 & 1.2 tumors right breast
node negative
lumpectomy 8-15-06
A/C Began 9-5-06 Finished A/C 11/6/06
Port Placement 9-15-06
Negative Test for BRAC1 & BRAC2 10-25-06
Began Tamoxofin November 21, 2006
First Herceptin November 27, 2006 Continues every 3 Weeks
First Radiation Treatment December 11, 2006
35 Rads Completed
Final Herceptin Treatment November 12, 2007
Port Removal November 19, 2007
Living Life to the Fullest !!
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