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Old 12-09-2010, 10:32 PM   #1
Lauriesh
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Join Date: Oct 2005
Location: Lakeville, Minnesota
Posts: 199
Good Scan Results

I received an early Christmas gift today. I found out that my 11 cm liver tumor, after 4 rounds of Taxotere and 2 rounds of Taxotere and Carboplatin, plus weekly Herceptin, has shrunk to 5 cm. I also had a 2 cm tumor that was not visible on the Pet Scan. I remained clear everywhere else.

I also found out that the suv value dropped from 5 to 2. I know that this is a good sign, as my onc was very happy about it, but don't really know what the significance of it is. So if the tumor is not as active, does it mean that it is dying?

I have also been taking a lot of supplements that people here have reccomended ( with my onc's ok) and have been trying to follow a healthy diet( trying is the operative word, as dealing with the side effects from the chemo and having to cook for my three kids makes it somewhat difficult).

I will be going to Mayo next month to see if I can have a procedure done to remove what is left of the tumor.


Laurie

Diagnosed stage 4- 7/19/2010
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Old 12-10-2010, 12:53 AM   #2
Trish
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Location: Melbourne, Australia
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Re: Good Scan Results

Fantastic news. Thanks for sharing it.
Trish
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5/2004 (R) 30mm bre gr3 infiltrating ductal ca 16/18nodes er (2+) pr (3+) HER2 (3+)
6/2004
6 cycles(FEC), Oct 40 rads, Tamoxifen
5/2006
oopherectomy, Arimedex
12/2006
liver mets largest 9cm
1/2007
Herceptin,
3/2007
Taxol + Herc
1/2008
Herc alone
4/2008
Multiple bone mets,Zometa
7/2008
Herc + Gemcitabine
8/2008
Herc+Navelbine/vinoralbine
10/2008
Herc+Carboplatin+Taxol
12/2008
Tykerb+Xeloda
2/2010
Herceptin + trial drug
5/2010
Herceptin+Tykerb
8/2010
Tykerb+Abraxane
9/2010
Abraxane
12/2010
Abraxane+Tyk+Herc
4/2011
Tyk+Herc+Femara
6/2011
Liver and bone mets prog.Abraxane continue Herceptin,Tykerb,Femara and Zometa
8/2011
Probable liver progression and increased neuropathy. Xeloda with Tyk+Herc. Zometa 6 weekly.
9/2011
Liver progression,TM +++. Cyclophosphamide and Methotrexate metro Herc Zometa
10/2011 liver mets prog.Herc, 3 Tykerb +2mg decodron daily,Zometa
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Old 12-10-2010, 03:12 AM   #3
Chelee
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Re: Good Scan Results

Laurie,
That is great news! The TCH is doing a wonderful job kicking cancers butt. Woo hoo. Yes, you are correct...the lower SUV rate along with your tumors shrinking that much does mean it's dying! Your getting a fantastic results from your chemo just in time for Christmas. Way to go.

Don't be hard on yourself about what your eating right now. When your still doing chemo the most important thing is to make sure your eating. Once your finished with chemo then you can work harder at eating better. For now eat what tastes good and enjoy what you can. Congrats on your good results.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 12-10-2010, 05:18 AM   #4
Pam P
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Re: Good Scan Results

Laurie -So glad to hear the news! Pam (a fellow Minnesotan - your neighbor in Minneapolis)
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6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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Old 12-10-2010, 05:42 AM   #5
Ellie F
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Posts: 1,526
Re: Good Scan Results

Very pleased to hear such good news. Hope you have a very happy Christmas.

Hugs
Ellie
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Old 12-10-2010, 06:22 AM   #6
laureen
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Re: Good Scan Results

Yes. Great news. talking about your suv, i have a subaru forestet suv but really want a honda pilot suv. Ha ha. No seroiysly hreat news about suv numbers too....
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Laureen (laurie)
Diagnosed 8/10/06 (found own lump)at 35

Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagnosed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David born Feb. 6th 2009
Pregnant with baby #2, due in early june 2011.

*reach to recovery volunteer
*survivor recruitment committee -relay for life
*imerman angels
*making strides- team courage
*livestrong
*young survivor coalition YSC

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Old 12-10-2010, 12:43 PM   #7
tricia keegan
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Re: Good Scan Results

You're having an amazing response Laurie, so happy to share your news
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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