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Old 04-06-2021, 09:00 PM   #21
Catherine
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Join Date: Dec 2006
Location: Oregon
Posts: 709
Re: its back

Hi Donna, just checking in after not being on line for quite a few months. So sorry to hear your news. I concur with the others, treatment has come to be more and more sophisticated and definitive. No fun though to have back pain and not be able to sleep on your back. Sending hugs and support your way. We will be here for you!
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Catherine


Found my own lump in the shower
April 06 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
13 years and no recurrence as of April 2019
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Old 04-20-2021, 06:35 AM   #22
Donna H
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Join Date: May 2014
Posts: 267
Re: its back

I had my second chemo last Friday. Yesterday was miserable but I feel human again today so hot damn to that! I get a pet scan on the 28th - trying not to pin too much hope on the results, but hope springs eternal. My husband I are going to take a quick trip to the ocean after the scan - be gone for about a week. I do not want to hear my results until I see my doctor on the 7th of May. Wish me luck not peeking at the patient portal! BTW- I'm bald again. Sure does save time getting ready in the morning.
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Old 04-21-2021, 05:52 PM   #23
Mary Jo
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Location: Sheboygan, WI
Posts: 2,577
Re: its back

Donna...thinking of you and praying for you tonight. I hope your trip to the ocean is wonderful and you and your husband are able to enjoy this time away.
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

15Years NED

<>< Romans 8:28
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Old 04-25-2021, 05:22 AM   #24
JessicaV
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Join Date: Apr 2014
Posts: 201
Re: its back

Hi Donna, I just dropped in to the page after months away. I am so sorry to hear this is happening to you. I am so glad you are sharing this time and experience with the group, where there are so many good news stories of quality survival in Stage 4, and you can share hope and despair and be here however you are. I send love and hugs and enormous good wishes that the days will each be better and the treatments you go through will bear fruit.
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1997-2004 many cysts, many MG & U/S: polycystic breasts.
Sept 2013 found lump,Cyst?? forgot lump.
Dec 2013 GP check, Referred for U/S, MG,FNA.
7 Jan 2014 Radiology: Radiologist turned screen away from me. When asked she said "Not a cyst, very suspicious.See your GP asa results avail."
Cancelled my psych clients for the week.
8 Jan 14 GP: 2.2cm IDC in 6cm DCIS field. FNA=malignant cells. Referred to Surgeon.
Cancelled my psych clients for the month.
13 Jan
14 Surgeon said L mastectomy not lumpectomy, offered neoadjunctive trial, agreed adjunctive chemo after surgery a good choice for me. Booked Body scan and bone scan for staging (both fine) Surgery for16 Jan,
16 Jan 14 Surgeon also agreed in preop meeting to also remove 6cm fatty cyst in job lot. Good job done.
19 Jan 14 discharged home with 1 drain.
22 Jan 14 drain partly pulled out overnight, serious seroma (600 ml reducing removed every 2 days for a month) Serious staph infection because nurse said wait 3 days for yr surgeon appointment.
26Jan 14 pathology: 2.2cm Grade 3(3,3,2)ER-, PgR-, HER2+2 so to be confirmed by Sish test. Node negative. No vascular or lymphatic involvement. No metastases in scans.
30 Jan 14 HER2+ high amplification, 13 gene copies per cell.
21st Feb 14 Began 3wkly TCH adjuvant treatment at The Mount Hospital Perth, with 3monthly MUGA heart tests +Oncologist or Surgeon full physical check-up.
Cancelled my psych clients for 6 months.
Feb 14 First MUGA test: 71%,
First C15.3 test: 20
7th March 14 began Neulasta self-applied injections 24hrs after each TCH treatment. Bonepain helped by spa, heatpacks and
Claritin, reflux/indigestion helped by Somac.
July 14 completed docetaxol and carboplatin, ongoing herceptin to 12 months. Severe cognitive deficit/fatigue after 1pm daily.
Sept 14 Second MUGA test: 69%
Cancelled my psych clients for 2014
Dec 14 Third MUGA test: 70%
Second C15.3 test : 20
Cognitive fatigue delays return to work.

March 2015 Tachycardia pulse 168, night in hospital. Cardiologist says no heart disease, ALIVE ECG attachment for my mobile phone now regular monitoring.
July 2015 Worktrial, up to 8hrs per wk. Fatigue ongoing
Aug 2015 Heart good, no evidence of cancer, just Fatigue.
May 2019 Melanoma 1.5cm Stage 1 by right collarbone(was present as large freckle in 2014 and cut through by breast surgeon to remove fatty cyst at same time as mastectomy.) Melanoma removed leaving scar from shoulder to breastbone. In hospital twice for IV antibiotics. Told catagorically this could not be BC mets.
Dec 2019 Still NED, still fatigue in late afternoon, but have my brain back in the early mornings. So most days I watch the sunrise and hear the birds morning chorus in my bush backyard and am glad to be alive and to be me still.

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Old 05-01-2021, 05:47 PM   #25
Melissa
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Join Date: Jan 2008
Location: Virginia
Posts: 115
Re: its back

Donna,
Thinking of you and wishing you and your husband the greatest time at the beach!
-
Melissa
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Melissa

04/06, (42), 2cm tumor, 7/13 nodes, one positive node under clavicle
mastectomy/reconstruction
grade 3, stage lllb, er-65+, pr-90+, her2+++(80%)
4/AC, 12wks TH then 6wks rads
40 wks herceptin, and tamoxifen.
onc test tamoxifen resistance = poor metabilizer
04/07 ooph & on arimidex
08/07 completed herceptin

04/2020 a 14 years NED
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Old Yesterday, 08:52 AM   #26
Donna H
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Join Date: May 2014
Posts: 267
Re: its back

It was great to get away and to put my toes in the sand. Tomorrow is treatment day and I will get the results of my pet scan.
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