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01-04-2008, 07:21 PM
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#1
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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An Idea
Hi Everyone! I hope you're all having a wonderful New Year. I was thinking, at drs. apps. and at chemo., Nikki would tell everyone at every opportunity about this wonderful site, both as a source of information and support, and how close everyone was here. What if I kicked it up a notch or two, and I had some flyers made up or business cards and left them at the chemo room and hospitals and drs. offices we went to. And what if we all did that? Alot to consider. It would probably reach and help more people that way, but would it overwhelm the site or change things too much? I guess alot of this is up to Joe and Christine. I'm relatively new here, and don't know that much about the technicalities of maintaining a website. Alot of new people, possibly all at once, here could help with information, but would it be beneficial to the site or just wreck everything? I'd like to hear from you all. Also, if something like this would be beneficial, perhaps one uniform national flyer or business card should be used. I understand the expenses of operating the site and that Joe and Christine do it out of the goodness in their hearts, but hopefully the increase in new members may result in more donations. I don't know how many members this site has, but thinking outside the box, and thinking politically, once a large group of like-minded people come together, they can become an unstoppable force, so, this site could potentially become a large enough "voting block" that the politicians would have to acknowledge it at the very least, and perhaps allocate more funding to the studies of breast cancer research. Keep fighting the good fight, Bill
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01-04-2008, 07:31 PM
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#2
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Bill
Joe and Christine have business cards and flyers, we used to be able to pront the flyer from the website.....maybe Joe will respond...great idea for leaving them at the chemo centers....Nikki is sitting on your shoulder!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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01-04-2008, 07:36 PM
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#3
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Thanks Sheila! I can feel her. She still gives me great advice. Love, Bill
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01-04-2008, 09:12 PM
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#4
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Senior Member
Join Date: Oct 2005
Posts: 823
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I have done this at the place I went to for treatment and now my follow up's.
I printed a flyer from this site and went and had copies made.
This is wonderful idea you have Bill, so many people to reach and this can really help.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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01-04-2008, 09:36 PM
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#5
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Senior Member
Join Date: Apr 2006
Location: FLORIDA
Posts: 148
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Yes, This Is A Great Ideal. When I Was First Diagnosed, I Didn't Understand Anything About What Was Fixing To Happen To Me, Frankly I Thought I Would Not Be Around In A Few Months. Half The Time I Couldn't Remember What My Doctor Said To Me. I Found This Site Just By Luck, Surfing The Internet. Just Reading All The Posts & Learning Bits Of Information and hearing what others had survived gave me hope.
__________________
SHEILA (45)
09/2005--BREAST CANCER/8 POS NODES --A/C, MASTECTOMY,TAXOTERE, RADS, TAMOXIFEN,HERCEPTIN
02/2007--B/C METS TO OVARIES--HYSTERECTOMY, FASLODEX
12/2007--ENLARGING LYMPH NODES IN ABDOMEN--IXEMPRA, THEN TYKERB
08/2008--COLON TUMOR--A/C AGAIN,
12/2008--ABDOMEN TUMOR--AVASTIN/NAVELBINE FEMARA
05/2009--MET TO SPINE (L2) RADS
CURRENT TREATMENT
07/2009- START ZOMETA MONTHLY, XELODA & ABRAXANE......SURVIVING THE BEST I CAN
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01-05-2008, 07:54 AM
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#6
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Senior Member
Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
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Wonderful idea Bill. The more people we reach the more informed they are and maybe the government will take notice and we will have better treatments available to all men and women
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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01-05-2008, 08:03 AM
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#7
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Senior Member
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
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I think thats a wonderful idea too. I had no clue what a ride this would be and the more you know about it the easier it is a times. I happened upon this site buy doing my own research on the web and have been here ever since. I would be lost with out this site. Thank you so much Joe and Christine and all of the wonderful members!
__________________
Love and Hope
Karen
IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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01-05-2008, 08:22 AM
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#8
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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great idea
Hi Bill
I think that's an excellent idea. The best thing about it is that the info. regarding breast cancer is always changing ... books and pamphlets become out-dated, but the Her2Support site is always current.
I would put the card and flyer in my little chemo room - right now I am the only Her2+ person in our small town. My chemo nurse had never given Herceptin before. It was very isolating for me before I found this site (thanks to AlaskaAngel).
Great idea!
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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01-05-2008, 09:58 AM
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#9
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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Talk to Joe first. A few years back, Joe sent me flyer's, mouse pads and business cards that I left at several cancer centers in my area. Scary huh??? I actually live in the middle of 3 major cancer centers, and these are all within 5 minutes of each other.
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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01-05-2008, 10:03 AM
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#10
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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Thanks Bill
that was a great thing you did and I am sure that Niki is so proud of you for carrying for her.
There are still lots of people out there who do not know about this site and just how informative it is. I try to mention it every time I speak to someone but putting out the info is even better.
Thanks again Bill
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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01-05-2008, 01:16 PM
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#11
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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I had my her2 breast cancer 1 year before I joined this site. I did not know of it either. I read about the site in CURE MAGAZINE at one of my oncology visits at Froedtert and that's how I came to this site. Business cards, flyers etc. would be a great idea to bring this site to people's attention.
Like Bill said though, I don't have any knowledge of the technical aspect of operating a site like this or what would happen if the site was inundated with people.
Thanks for sharing this brilliant idea Bill.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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01-05-2008, 03:15 PM
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#12
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Bill, Great idea and I feel its needed. I'm exactly two yrs out from my surgery and I don't know HOW MANY times the social worker at my cancer center brought up the topic of support to me and asked where I find my support? I ALWAYS told her about the her2support board. It wasn't until about 4 months ago she FINALLY came up to me & asked for the her2support groups website url. (About time.)
I wished someone would of given me the *url* to this site the day I was DX. I always told this social worker you just can't get this kind of vaulable information, or support any where else when it comes to Her2 bc. Depending on what Joe's thoughts are on this I would be happy to put flyers, cards or whatever in our chemo room...and hand some to my surgeon's NP. She is the one that pulls the women aside when first DX.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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01-05-2008, 03:48 PM
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#13
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Senior Member
Join Date: Sep 2005
Location: Lumberton, Mississippi
Posts: 118
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Hi Bill: I too think this is a great idea. Again, I don't know any of the legal things that go along with this sort of thing.
When I was going through my treatments, my oncologyst was great. There was only one other person who was Her2 at that time. We always had the same chemo appointment. No one I talked to who had had breast cancer had ever heard of her2. I just happened across this site one day while I was surfing looking for info. Thank God I found it because it has been a mind easer on many occasions.
Take care
Linda
__________________
Diagnosed 12/23/04
Biopsy 12/28/04
Lumpectomy 1/04/05
IDC, ER-PR-, HER2Neu+++
7mm tumor, Stage 1, Grade 3
6 CAF's
38 Rads
Finished 10/05
"Worry looks around. Sorry looks back. Faith looks up."
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01-05-2008, 06:27 PM
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#14
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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I meant to grab brochures when at SABCS, but I totally forgot. I have been wanting to put the info out at my clinic... thanks for reminding me, Bill.
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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01-05-2008, 06:46 PM
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#15
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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If we can get brochures, I would love to put them out at my center and also at the main center for WFU.
Maybe Joe can tell us how to get them.
As for the site being inundated, I think they went thru that in 2005 when the HERA trial was released and Herceptin became available for early stage. Joe recently listed contacts by year since the inception of the site and you could see the phenomenal jump in 05. My guess is Joe can handle whatever additional exposure to the site may bring. If he needs help, I'm sure we would all be glad to do whatever we could.
From Joe's earlier post:
 Web Statistics
<HR style="COLOR: #cc0033" SIZE=1><!-- / icon and title --><!-- message -->Stats for years 2003 - 2007
<TABLE class=standard><TBODY><TR><TD class=tableHeaderLeft></TD><TD class=tableHeaderRight>Page Loads</TD><TD class=tableHeaderRight>Unique Visitors</TD><TD class=tableHeaderRight>First Time Visitors</TD><TD class=tableHeaderRight>Returning Visitors</TD></TR><TR><TD class=tableContent2LeftSpaced> Total</TD><TD class=tableContent2RightSpaced> 5,382,617</TD><TD class=tableContent2RightSpaced> 966,210</TD><TD class=tableContent2RightSpaced> 665,908</TD><TD class=tableContent2RightSpaced> 300,302</TD></TR><TR><TD class=tableContent2LeftSpaced>Average</TD><TD class=tableContent2RightSpaced>1,076,523</TD><TD class=tableContent2RightSpaced>193,242</TD><TD class=tableContent2RightSpaced>133,182</TD><TD class=tableContent2RightSpaced>60,060</TD></TR><TR><TD class=$leftClass colSpan=6></TD></TR><TR><TD class=tableHeaderLeft>Year</TD><TD class=tableHeaderRight>Page Loads</TD><TD class=tableHeaderRight>Unique Visitors</TD><TD class=tableHeaderRight>First Time Visitors</TD><TD class=tableHeaderRight>Returning Visitors</TD></TR><TR><TD class=tableContent2Left>2007</TD><TD class=tableContent2Right>1,999,307</TD><TD class=tableContent2Right>433,883</TD><TD class=tableContent2Right>334,240</TD><TD class=tableContent2Right>99,643</TD></TR><TR><TD class=tableContent1Left>2006</TD><TD class=tableContent1Right>1,589,289</TD><TD class=tableContent1Right>263,891</TD><TD class=tableContent1Right>175,649</TD><TD class=tableContent1Right>88,242</TD></TR><TR><TD class=tableContent2Left>2005</TD><TD class=tableContent2Right>1,572,735</TD><TD class=tableContent2Right>184,838</TD><TD class=tableContent2Right>125,160</TD><TD class=tableContent2Right>59,678</TD></TR><TR><TD class=tableContent1Left>2004</TD><TD class=tableContent1Right>199,626</TD><TD class=tableContent1Right>68,582</TD><TD class=tableContent1Right>20,759</TD><TD class=tableContent1Right>47,823</TD></TR><TR><TD class=tableContent2Left>2003</TD><TD class=tableContent2Right>21,660</TD><TD class=tableContent2Right>15,016</TD><TD class=tableContent2Right>10,100</TD><TD class=tableContent2Right>4,916</TD></TR></TBODY></TABLE>
We did not have the counter installed for 2001 until first half of 2003.
<!-- / message --><!-- sig -->
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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01-05-2008, 08:04 PM
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#16
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Thanks!
Hi everyone! Hope you're all doing well and full of pep, vim, and vigor for the upcoming new year. I know it's going to be a good one, with awesome new developments coming our way. Thanks for all of the input. It helps to clarify everything. Love to you all, Bill
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01-06-2008, 03:58 PM
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#17
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Flyer
Attached is a brochure that we hand out at bc meetings.-
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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01-06-2008, 04:07 PM
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#18
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Thank you, Joe! Take care, Bill
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01-06-2008, 05:30 PM
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#19
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Thanks Joe, I start printing!
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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01-11-2008, 05:58 PM
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#20
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Senior Member
Join Date: Nov 2006
Location: Bedford, Virginia
Posts: 134
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Joe, thank you for the pdf files. I just emailed to my oncologist and my surgical oncologist at the UVA Breast Care Center. I am constantly telling my Oncologist what a great resource this website is. Now, he can research it himself. I also hope UVA makes it available in their library.
Thank you for all that you do.
Louise
__________________
- Diagnosis 06/06 - Stage II-A BC; BC was 2.5 cm, grade 2; ER/PR negative & HER-2/neu positive;
- Mastectomy w/ reconstruction (implant) in 09/06;lymph nodes - negative;
- AC/Cytoxin combo - 4 treatments (dose dense);
- Taxol/Herceptin combo- 12 weekly treatments;
- Completed chemo - 2/07; completed restruction 02/07; reduction of left breast.
- BRCA 1 and 2 negative - 6/15/07;DX high risk for distant recurrence
- MRI, 08/02/07 - NED
- 1 year Anniversary - 09/07; completed Herceptin 11/07.
- Mammo 02/14/08 - NED; MRI - 08/2008 - NED
- 2 year Anniversary - 09/08
- Mammo 02/09 - NED; MRI - 08/09 - NED
- 3rd year Anniversary - 09/09
- 5th Annivery - 09/2011 - NED
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