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Old 09-05-2009, 01:46 AM   #1
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Posts: 4,778
spanking new articles on IBC

Inflammatory Breast Cancer: Current Concepts in Local Management.
Bristol IJ, Buchholz TA.
Breast Dis. 2009 Sep 3;22:75-83. [Epub ahead of print]
PMID: 19729824 [PubMed - as supplied by publisher]
Surgical Aspects of Inflammatory Breast Cancer.
Kell MR, Morrow M.
Breast Dis. 2009 Sep 3;22:67-73. [Epub ahead of print]
PMID: 19729823 [PubMed - as supplied by publisher]
Systemic Treatments for Inflammatory Breast Cancer.
Yang CH, Cristofanilli M.
Breast Dis. 2009 Sep 3;22:55-65. [Epub ahead of print]
PMID: 19729822 [PubMed - as supplied by publisher]
Clinical Aspects of Inflammatory Breast Cancer.
Walshe JM, Swain SM.
Breast Dis. 2009 Sep 3;22:35-44. [Epub ahead of print]
PMID: 19729820 [PubMed - as supplied by publisher]
Molecular Biology of Inflammatory Breast Cancer: Applications to Diagnosis, Prognosis, and Therapy.
Wu M, Merajver SD.
Breast Dis. 2009 Sep 3;22:25-34. [Epub ahead of print]
PMID: 19729819 [PubMed - as supplied by publisher]
Epidemiology of Inflammatory Breast Cancer (IBC).
Anderson WF, Schairer C, Chen BE, Hance KW, Levine PH.
Breast Dis. 2009 Sep 3;22:9-23. [Epub ahead of print]
PMID: 19729818 [PubMed - as supplied by publisher]
The Patient Advocate View.
Johnson GO, Kirschenbaum M, Mason G, Rush LR.
Breast Dis. 2009 Sep 3;22:3-8. [Epub ahead of print]
PMID: 19729817 [PubMed - as supplied by publisher]
Inflammatory Breast Cancer.
Swain SM.
Breast Dis. 2009 Sep 3;22:1. [Epub ahead of print] No abstract available.
PMID: 19729816 [PubMed - as supplied by publisher]
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Old 09-05-2009, 08:38 AM   #2
Midwest Alice
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Posts: 455
Re: spanking new articles on IBC

Thanks Lani. It's great to get new information and these are very informative. I thought there was more people with ibc.
One said 200,000 a year, I guess that means that many living with ibc in the US.
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!

1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
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Old 09-07-2009, 02:54 PM   #3
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Re: spanking new articles on IBC

Yes, it must be talking about the 'total' number of all IBC survivors. Below is the statistics I found about IBC:

Although there is some disagreement in the numbers, IBC probably accounts for about 1% to 3% of all breast cancers diagnosed in the United States.

And below is the number from CDC (Center for Disease Control):

In 2005, (the most recent year for which statistics are available), 186,467 women were diagnosed with breast cancer, and 41,116 women died from the disease.† Although more white women get breast cancer, more black women die from it.

† U.S. Cancer Statistics Working Group. United States Cancer Statistics: 1999–2005 Incidence and Mortality Web-based Report. Atlanta (GA): Department of Health and Human Services, Centers for Disease Control and Prevention, and National Cancer Institute; 2009.

Based on the numbers given, IBC will be approximately in between 1864 (1%) to 5592(3%) in 2005.

Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.

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Last edited by Jackie07; 09-07-2009 at 02:58 PM..
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Old 09-07-2009, 03:16 PM   #4
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Location: Hunterdon Cty, New Jersey
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spanking new articles on IBC

Lani, Okay maybe it's chemo brain but how do I see these articles that you posted? I only see their names but no link to them. SOS!
Thanks, Leslie
3-15 Age 48 -found lump
Dx 4/15/09: IBC Stage III w/extensive lymph node involvement HER2+++
5/1/09: Adria/Cytoxan for x 3-no response
6/12/09: Taxol/Herceptin for 1 tx -no response
6/24/09: added Carboplatin to T/H x 3 - no response
7/09 -added F5U -no response
7/29/09: Herceptin/Xeloda/Tykerb no response
8-18-09: 2nd opinion at MDA - IDC not IBC! First Onc disagrees,
BRCA 1/2 Neg
8-19-09: continue on Herceptin/Xeloda/Tykerb-slight response
9-24-09 MRM right breast 10x10 cm tumor! (Huge!) no necrosis - Got clear margins! A miracle!
13 of 18 nodes positive
11-2-09 -12/10 started radiation
12-10-2009 - Finished with radiation!!
1/13/2010-Back on Xeloda x six cycles (have been on Tykerb/Herceptin all along)
4/4/14 - stopped Xeloda/Tykerb one cycle early. Liver enzymes high!
4/20/2010 Clear PET Scan!! NED
6/10/2010 - Finished Herceptin11/8 - Brain METS! CRAP! WBRT only option given. Four mets, separate locations in brain, no SRS
12/10 - Herceptin/Tykerb/Xeloda
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