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05-04-2011, 02:21 PM
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#41
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Member
Join Date: Apr 2011
Location: Marlborough, MA
Posts: 24
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Re: Once again - news is NED
Steph, thank you so much for the update on your eating habits - I spoke with my onco yesterday regarding changing my eating habits (started chemo for the second time in 4.5 years) - she stated to cut our sugar all together and eat organic when ever possible. Which I have been trying for some time - but I do love cookies...I can definately cut those out if it means a longer live with my family...thanks again and WooHoo!!!!!
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05-04-2011, 06:31 PM
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#42
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Re: Once again - news is NED
Steph,
Great news on your test results!
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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05-04-2011, 06:34 PM
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#43
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Re: Once again - news is NED
Hi Steph,
It is so uplifting to hear this news. I am so happy for you.
Best wishes,
Barbara H.
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05-04-2011, 08:18 PM
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#44
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Senior Member
Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 638
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Re: Once again - news is NED
WHOO HOO!! I am over the moon with your "hoo hum" results which we ALL know are not too hoo hum! Way to go girl friend! I love your trail blazing! You are such a bucket full of hope!
Love and Hugs,
Kim from CT
__________________
2001 - Stage 0, lumpectomy, radiation, tamoxifen
2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only.
2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle
2011 - Still Herceptin only and NED
2011, June - STOPPED Herceptin and kicked up my heels!
2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable.
2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only
Received U of W vaccine clinical "booster" Vaccine
2022 On Herceptin and NED continues - WOOT WOOT!
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05-04-2011, 09:42 PM
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#45
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: Once again - news is NED
Stephen,
Good News Indeed! Reading your wonderful news put a huge smile on my face. Oh happy days....wishing you continued blessings.
hugs,
jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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05-05-2011, 09:14 AM
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#46
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Re: Once again - news is NED
Steph
What great news....you are such an inspiration to those with liver mets, brain mets...may your health continue, and reach even higher levels....and may your affair with NED never end! I hope you and Emile had an amzing time in the south pacific...waiting to see photos!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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05-05-2011, 09:28 AM
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#47
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Senior Member
Join Date: Feb 2008
Location: Bayarea,CA
Posts: 679
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Re: Once again - news is NED
Congratulations!! You really are filling all of us with hope and joy! Just fantastic news! May you be blessed with continued NED status for ever....
hugs,
shobha
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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05-05-2011, 02:40 PM
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#48
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Member
Join Date: Apr 2011
Location: Ohio
Posts: 15
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Re: Once again - news is NED
Thank you so much for the great advice on eating! As far as sugar goes, do you eat food that has evaporated cane juice or do you check for the grams of sugar in foods like dry cereal? Also, do you eat any meat & how often and what do you think about an occasional glass of wine? So happy for you! Gail
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