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03-29-2013, 12:36 PM
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#1
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Senior Member
Join Date: Mar 2009
Posts: 508
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Back to Wills Eye on Tuesday...
for my first post plaque check up there. I saw the local retinal specialist two months ago here. It's a two day deal, so I'm guessing they will do the exam and ultrasound on Tuesday. I don't know what else is on Tuesday's agenda. Wednesday is the Avastin injection and perhaps a laser treatment. I am anxious to know if the tumor is still shrinking and if whatever they do will further affect my vision. The avastin is supposed to help the cause, but laser and continuing effects of radiation will essentially destroy central vision by 18 months. I don't see the very specialized ocular melanoma oncologist until May 1. Will probably be another liver scan before then. I'm really hoping I'm eligible for an adjuvant oral chemo pill called Sutent. But that's getting ahead of myself.... right now we're aiming for continuing tumor death. I pray for all of you every night.
Barb A.
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03-29-2013, 12:58 PM
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#2
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Senior Member
Join Date: May 2010
Location: Elizabethton, TN
Posts: 418
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Re: Back to Wills Eye on Tuesday...
Barb - I think many of us pray for this group on a daily basis. It means a lot to me to still know that there is so much caring here. So know that you are prayed for as well. Easter blessing to you, too.
__________________
Joni -64 yrs old -
3/01/10: found lump in rt.breast
3/12/10: mammogram/ultrasnd/biopsy-invasive bc & DCIS; 2 tumors (2cm er-/pr-/HER2-& 1.8 cm er-/pr-/HER2+); grade 3;poorly differentiated
3/24/10:sent.node biopsy clear
3/31/10:bi-lateral mx.;atypical ductal hyperplasia-lft side
4/21/10:wound revision-infection/scarring 4/28/10:seromas both sides
5/21/10:port installed,TCH chemo (6 x 3 wks); Herc,-1yr; 33 rad tx after chemo
07/2010: port not working-2nd port didnt'work;3rd port opposite side.
07/2010: 2 weeks after 3rd port surgery, threw 3 pulm. emboli-IVC filter installed; warfarin
08/2010: hospitalizations w/3 of chemos; decision to stop after 4th-on to radiation in Oct 2010;Herc cont.
12/03/2010 - finished 33 rads Hooray!! cont. Herc. every 3 wks
4/2011 - pneumonia ??? Nope-radiation pneumonitis. No more Herc.
5/2011 - NED!!! port out.
8/2011 - clean PET & CT scans.Still NED
7/2012 - Still NED/very blessed.
2/2013 - 6 mos checkup-all clear. CA2729 down frm 13 to 11.
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03-29-2013, 07:19 PM
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#3
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: Back to Wills Eye on Tuesday...
Barb,
Your little snowman sits right by my recliner and I am looking at his smiling face. He reminds me to pray for you. I will be praying for you as you go through the scary stuff at Wills. You will be in good hands--His and the staff at Wills.
Have a blessed Easter holiday. I will PM you soon to catch you up on my crazy week, but I know you will understand when I tell you now that I will be able to come up to see you soon. I was thinking of popping up this week sometime, but will wait now since you will be down in Philly this week.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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03-30-2013, 12:10 AM
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#4
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Senior Member
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
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Re: Back to Wills Eye on Tuesday...
Barb
Wow, you have a lot going on. Keep breathing through it. I hope you get all the good things you wish for,
best wishes for tumor destruction! Boom. Gone.
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes
Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"
Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla
Reconstruction: TRAM flap, partial loss, Revision
The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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03-30-2013, 12:41 AM
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#5
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: Back to Wills Eye on Tuesday...
Barb,
I hope the treatment/procedure will work out as planned. And I'm praying for your complete recovery - both physically and mentally.
Hang in there!
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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03-30-2013, 05:54 AM
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#6
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: Back to Wills Eye on Tuesday...
Thank you, dear Her2 sisters, for replying to my post. I am so grateful for your thoughts and prayers. I hope you have a most blessed Easter.
Laurel, will look forward to hearing from you.
Barb A.
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03-31-2013, 06:03 AM
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#7
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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Re: Back to Wills Eye on Tuesday...
Barb,
Thinking of you and praying that the tumor is much smaller.
Sending hugs and love,
Marcia
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03-31-2013, 07:54 AM
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#8
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Senior Member
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
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Re: Back to Wills Eye on Tuesday...
Barb,
I'll be in 'Town' for an appt on Tuesday myself...so my focused prayers will be even closer!
I hope all your news is good news, and that Avastin is exactly what you need!
Happy Easter, my friend!
Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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03-31-2013, 03:37 PM
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#9
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: Back to Wills Eye on Tuesday...
Thanks Marcia and Denise. Hope your appointment goes well too, Denise
Barb A.
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04-04-2013, 11:56 AM
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#10
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: Back to Wills Eye on Tuesday...
Back from Wills today. News about the eye itself was pretty good. The radiation has shrunk the tumor to half it's size, macula is healthy, there is little fluid and vision is barely affected (for now). The central vision will go by 18 months, and of course the main worry is still the possibility of mets. See the uveal malanoma oncologist in Philly on May 1. I'm really hoping that I will qualify for adjuvant therapy. Tired and ready to sleep in my own bed and eat home cooking! Thanks for your prayers, ladies.
I survived a laser procedure to the retina and an injection of
avastin into my eye. No pleasant, but doable.
Last edited by ammebarb; 04-04-2013 at 11:59 AM..
Reason: Want to add....
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04-04-2013, 03:39 PM
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#11
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Senior Member
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
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Re: Back to Wills Eye on Tuesday...
Barb...
You are a rock star!
All that "stuff" and here you are posting an update for us 2 days later.
Amazing! Prayers still headed your way!
Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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04-12-2013, 03:50 PM
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#12
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Senior Member
Join Date: Oct 2008
Location: Detroit, MI
Posts: 205
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Re: Back to Wills Eye on Tuesday...
Praying for you, Barb.
__________________
Maureen
My loves
IDC & DCIS, HER2+++ Diagnosis: October 1, 2008 - Tumor: 6.8 centimeters, never showed on mammograms
- ER-/PR-
- November 2008: Sentinal Lymph node surgery. 6 out of 9 lymph nodes with cancer
- Stage IIIc
- Lapatinib Clinical Trial start: November, 2008
- Surgery: May 5, 2009
- Started Herceptin: May 19, 2009
- Started Radiation (33 rounds): June 10, 2009
- September 2009: Moved to Michigan to be closer to family
- 12/09 - still on Herceptin until May 2010
- August 2010: Port out, port out, port out port out port port port out port ooooout...da da da dant! (to the music of the Pink Panther)
Blog: http://moonsfamily.blogspot.com
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04-15-2013, 01:16 PM
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#13
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: Back to Wills Eye on Tuesday...
Well, folks, saw our Barb last week. We went out to a cute little place near her thriving metropolis in the mountains of Pennsylvania and had the best cheese steaks! Seriously, Philly has nothin' over little Hillsgrove!
We had a wonderful time laughing our fool heads off! Barb looks terrific and her spirits are buoyant. I came over from our cabin in my 4 wheel drive pick up. It was two gray haired ladies in a truck doing the town (ok, village....barely). Whoohoo!
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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04-15-2013, 03:18 PM
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#14
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: Back to Wills Eye on Tuesday...
Enjoyed our day enormously! Waiting now for next mri of liver and ct of lungs to be scheduled. Then it's back to Philly to the specialist ocular oncologist on May 1.
Loved seeing you, Laurel. Hope there's a chance for another get together sometime this summer.
Barb
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04-15-2013, 03:51 PM
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#15
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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Re: Back to Wills Eye on Tuesday...
Cheese steaks and friendships make everything better!
Keep the faith!
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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