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Old 10-14-2011, 04:21 AM   #1
Ais4Abbott
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Join Date: Sep 2010
Posts: 15
Re: Neuropathy

Please let us know if you are better, and what the neurologist gave you.
__________________
2007 DX DCIS ER-/PR-/Her2+
2007 3x lumpectomy, radiation
2010 DX DCIS ER-/PR-/Her2+
Mastectomy
Tram Flap - 1) wish I could delete that.
2)Interested if anyone did this, and then got implants. 3)Ruined stomach muscle. (Appreciate info about fixing this).
Recommend New Orleans instead of MD Anderson for all surgery.
12/17/2010 TCH 6x/3wks Herceptin 3/wks til 11/17/11.
12/23/2010 Lost Hair - 10/5/2011 Wig free - 4/14/2013 Long Hair again.
Severe nail detachment-(Past) 10/2011 - toenails still trying to grow back. 4/14/2013 - Normal toenails & fingernails.
Severe neuropathy (upper thighs/upper arms) - taser sensation - (in the past), light touch finger or toes = burning. Sock free (still). Can bend knees and ankles, now. Dr. stopped Docetaxel after 5th, due to possible permanent nerve damage. (now in hands/fingers, feet/toes - pain, interested in help). 4/14/2013 - Neuropathy much less. Nerve damage is permanent in fingers & toes, hands & feet. Toekini ($10) from CVS pharmacy works great for my CIPN - feet at night. Nothing can touch my toes without burning me. I can not braid hair - fingertips do not work right.
Severe constipation - (made worse by drinking small swallow of water with Senecot instead of a full glass of water - caused concrete type blockage of bowels - drink lots of water with it!)-(Past)
Severe Reflux - (great medicine available for this) - Carafate (past)
4/14/2013 Much happier now. Smiling a lot. Started working in the yard again, but must wear toeless sandals. Blessed. Best wishes & Blessings to you all. Has anyone had success with Rick Simpson Oil in curing HER2? Very interested in hearing details. I live in Texas and do not know anyone that has tried it. We can not use it here.
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