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Old 09-20-2010, 07:23 AM   #1
nitewind
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Partial update on me

Ok, update on me. As I think you all know, I had a heart attack back on Memorial day weekend. Saw my heart doctor this morning. What a shock, bp 170 over 100. Don't know about you but sky high for me. He doubled the bp med I'm taking and added another blood pressure med and another cholestrol med and is setting me up for cardiac rehab. Weight gain is not good, have to get serious about that. That's how my morning went, can't wait to see my cancer doctor this afternoon. Going in for my usual checkup and now I'm worried about that.
If anyone knows a good site for tips on lowering blood pressure, I sure would appreciate it. Let's just hope my cancer is still in check.
I'll check in later, love you all.
susan
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Susan
Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
Herceptin finished 12/07/07 Yippee!
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Old 09-20-2010, 01:41 PM   #2
Becky
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Re: Partial update on me

Hi Susan

Some things you can do on your own besides losing weight which always helps is to walk and watch the sodium levels. Also, drink your daily 8 glasses of water too. Those are the only intuitive things I know of. You will be fine but you do have to get the blood pressure under control. I believe self meditation may help.

If you remember, halfway thru treatment, I switched oncs within the same practice and the original onc was also (and still is) my mom's onc. Everytime I would go there, my blood pressure was high (not as high as yours but high for me). I would see the old onc and he would treat me like I broke up with him at the Senior Prom!. I started getting in a zone when I would go. I would sit in the chair and imagine I was floating on a float in a swimming pool - I would close my eyes and imagine that and my blood pressure was normal. Maybe yours is high but it was higher today because of the "pressure" of it having to hopefully be lower. There is a "syndrome" for this and I think it is called the "White Coat Syndrome" in which the blood pressure goes up just from being at the doctor's office. Try visualizing next time. You will probably get a better picture of what your pressure really is next time.

Also, pharmacies tend to have those blood pressure machines. It is a private way to check on things yourself and see if the visualization really works - visualize something serene and then visualize something stressful - I bet you will see the difference.

I am sure your onc appointment went well too.
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Found lump via BSE
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2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
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4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
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Old 09-23-2010, 05:11 AM   #3
Sheila
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Re: Partial update on me

Susan
Glad to hear from you...you have had a year! Hoping they can get the B/P undercontrol...its all about finding the right medicine for YOU! And exercise, low sodium etc....I have found Lisinopril and Coreg are keeping mine under control....
Thinking of you!
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 09-23-2010, 12:12 PM   #4
Jackie07
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Re: Partial update on me

Susan:

I found the following information from the website at the bottom:

If you have hypertension or prehypertension, you may be able to lower your
blood pressure by:
  • losing weight if you are overweight or obese
  • getting at least 2 hours and 30 minutes of moderate physical activity or 1 hour and 15 minutes of vigorous activity each week.
  • limiting alcohol to one drink per day
  • quitting smoking if you smoke
  • reducing stress
  • following the DASH (Dietary Approaches to Stop Hypertension) Eating Plan, which includes cutting down on salt and sodium and eating healthy foods, such as fruits, vegetables, and low-fat dairy products
Source: http://womenshealth.gov/faq/heart-disease.cfm
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http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
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1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
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Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
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