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01-14-2008, 04:52 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Simi Valley, CA
Posts: 94
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38 here, er/pr- her2+++ Grade 3, stage 3a
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Jen
DX 10/04 IDC Grade 3
ER/PR-, Her2+++
4/20+ Lymph nodes
Stage 3a
Age 38, CA
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01-21-2008, 08:22 AM
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#2
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Senior Member
Join Date: May 2007
Location: Northern Michigan
Posts: 68
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I was 39 at dx
__________________
Sept. 2003- 5cm tumor in left breast Her2+ Er- Pr- grade 3,
Mastectomy & 11 nodes removed, all negative.
4 rounds A/C + 12 wky Taxol
25 rads
Dec 2006- recurrence Stage IV (diagnosed 3 days before Christmas!) Lymph nodes in chest, liver, 3 ribs
January 2007- 3 tri wkly rounds of Taxol/Herceptin
Response to lymph nodes in chest, but several more bone mets (skull, shoulders, more ribs, femur, several on spine), liver tumors still growing.
March 2007- 8 wkly rounds of Navelbine/Herceptin/ every 4th wk Zometa
Lymph nodes in chest look great, but more bone mets (of course!), Clavicles, hips, and sacrum (above tail bone) to add to the list. Liver mets still growing.
June 5- started Tykerb/Xeloda
Aug 14- Scans are showing great progress! Tumor shrinkage and bones are healing!
Nov 21 CT scan shows tumor growth in liver & bones next Doc appt on 11-27
Dire need of a lot of prayers and a miracle.
Stay at home mom, 5 yr old girl & 8 yr old boy.
Wife of loving husband
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01-21-2008, 12:03 PM
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#3
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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I have a very close friend who is 3 yrs past diagnosis and she was around 31 yrs old at the time. Triple negative. She is also very active with a young women and cancer coalition. She is also BRCA1 positive. If anyone is interested, I can give you more information and you can contact her. She's a wonderful person.
Harrie
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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08-05-2010, 05:06 AM
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#4
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Senior Member
Join Date: Jul 2010
Posts: 120
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Re: under 40 when dx?
Two children in my mid 20s. Yes, birth control for many years. Stats in signature.
__________________
6/14/2010 - Self discovered Lump; Age 39
6/24/2010 - Biopsy results confirm breast cancer
Right breast, invasive ductal adenocarcinoma
HER2neu positive, BRAC I & II negative
7/8/2010 - Lumpectomy right breast, sentinel lymph node biopsy, & port-a-cath installed on left
Stage II, Size 3.2cm, Clear Nodes, Clear Margins
8/19/2010 - Chemo begins - Taxotere, Carboplatin, Herceptin & Tykerb all simulanteously; ALTTO trial arm 4
9/9/2010 - Chemo dose #2
9/30/2010 - Chemo dose#3
10/21/2010 - Chemo dose#4
11/11/2010 - Chemo dose#5
12/02/1010 - Chemo dose #6 - WooHoo, it is complete!
12/14/2010 - Simulation & Planning session for radiation
02/18/2011 - Completed radiation treatment (33 rounds)
08/04/2011 - Completed Herceptin & Tykerb
09/30/2013 - ultrasound guided biopsy (following annual MRI)
10/1/2013 - new cancer in left breast. 6mm discovered via MRI
10/28/2013 - bilateral mastectomy - no reconstruction
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08-05-2010, 05:50 AM
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#5
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Senior Member
Join Date: Mar 2010
Location: Mechanicsburg, OH
Posts: 109
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Re: under 40 when dx?
Turned 40 month before dx. Birth control pill on and off for 15 years, child at 23.
__________________
~Anna
DX April 2009 age 40
IDC Triple Positive
7 of 14 nodes positive
Lumpectomy May 2009
Port May 2009
AC done in Sept 2009
T done Dec. 2009
Herceptin (should finish Oct. 2010)
Mastectomy January 2010
Radiaition x 33 done April 2010
Tamoxafin for five years
Herceptin done!
Still clear May 2011
3 years out May 2012, all good!
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08-07-2010, 08:55 PM
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#6
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Senior Member
Join Date: Jul 2008
Location: New Boston, NH
Posts: 275
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Re: under 40 when dx?
I was 34. I had my first child at 27 and my second at 29. Nursed my first for 7 months and my second for 11 months. Family history mother was dx at 54 (breast surgeon and others said that had no bearing on my dx and that I would have had my first mammo at 40... if I hadn't found the lump myself). I was dx 4 yrs (should have been 3) after she was.
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-Sarah-
Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
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08-08-2010, 10:10 PM
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#7
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Senior Member
Join Date: Apr 2007
Posts: 292
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Re: under 40 when dx?
34--three years out. 
Edited because some of our sweet friends on this thread are no longer with us. 
__________________
Krista
Diagnosed 3/29/2007 @ age 34
Stage 1, Node Neg. (SNB), Grade 2, 1.4 cm. IDC
ER/PR 90%+ HER2 +
6 TCH started 5/25/2007, ended after #5 due to steroid "reactions" and neuropathy in feet and hands
BUT--#6 CH w/o Taxotere
Begin Herceptin alone 9/28/2007
30 rads completed 12/19/2007
Finish Herceptin 5/9/2008
Stopped Tamoxifen early--HATED it.
Married 17 years
13-year old son
3 embies on ice (from 1999)
GA, USA
Last edited by kcherub; 08-08-2010 at 10:14 PM..
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08-09-2010, 01:30 PM
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#8
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Member
Join Date: Jul 2010
Location: Bradenton, Fl
Posts: 8
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Re: under 40 when dx?
I was 36 when dx. see signature for other details
__________________
Age 36
Diagnosised- Dec 23, 2009 IDC
tumor size 2.1 ER+, PR+, HER2+++. Grade 3 Stage 2, Node negative.
Jan 14th, 2010- Bilaterial Mast.,
Feb 2010 began Chemo( Taxoter, Charboplatin/Herceptin)
June 1st, 2010 Finished Chemo
June 12th 2010 began Herceptin every 3 weeks for a year and tamoxifin daily
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08-17-2010, 08:18 PM
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#9
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Senior Member
Join Date: Dec 2009
Posts: 56
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Re: under 40 when dx?
Age 38 and breastfeeding my 3rd child at the time (she was 6 months old.) I was taking fenugreek at time of diagnosis to increase milk supply because baby was a poor sucker. I still wonder if the fenugreek had anything to do with it.
__________________
Diagnosed 7/09 with 7mm IDC ER weakly +, PR -, Her2+
TCH chemo 8/09-12/09
Ooph/hysterectomy 4/10
Started Femara 6/10
Completed year of herceptin 10/11
Zometa 1/11 (2X/yr for 2yrs)
Hopefully nothing else!!!!
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08-22-2010, 01:07 PM
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#10
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Senior Member
Join Date: Aug 2009
Location: Owasso, OK
Posts: 185
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Re: under 40 when dx?
I was diagnosed at 39, three months before I turned 40. I had my first child at 31 and my second at 33. No family history, but was on birth control for about 15 years. Rest of the stats below.
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Hayley
Oklahoma
3/35/2009 - Diagnosed, age 39
5/7/09 - Mastectomy and reconstruction started. Two tumors found. Tumors were side by side. DCIS tumor was 2.8 cm, ER-, PR-, grade 2. Invasive tumor was 1.1 cm, poorly differentiated, grade 3, ER+90%, PR+95%, HER2+3. Thankfully, no node involvement.
5/29/09 - Second surgery resulting from difficulty healing from mastectomy.
6/2/09 - Began Herceptin treatments
6/23/09 - Began Taxotere and Carboplatin treatments along with Herception every 3 weeks.
10/06/09 - Completed Taxotere and Carboplatin - Yeah!!!
10/27/2009 - Herceptin maintenance and began Femara
12/10/2009 - 2nd stage reconstruction surgery
2/2010 - Body rejected saline implant
3/18/2010 - Second stage reconstruction using silicone implant
5/4/10 - Completed Herceptin - YEE-HAA!
May '10 - Body rejects silicone implant...taking a break.
11/29/10 - Hysterectomy
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08-22-2010, 07:47 PM
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#11
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Senior Member
Join Date: Mar 2010
Location: Missouri
Posts: 28
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Re: under 40 when dx?
Just turned 39 one month prior to having symptoms. No family history + BRAC 1 and 2 negative.
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Yvonne
Nov 09 - Grade 3 IDC + Grade 3 DCIS, ER/PR-, HER2+++, KI-67 91%; BRAC 1 and 2 negative
Dec 09 - Mastectomy LB, 2.4 cm, 1/27 nodes, Stage IIB
Jan 10 - Taxotere/Carboplatin/Herceptin (TCH) for 18 weeks (1X every 3 weeks); Herceptin every week for 18 weeks then every 3 weeks 'til week 51
Apr 10 - Blood transfusion to increase red blood cells
Apr 10 - Change regimen to Taxotere/Cisplatin/Herceptin
May 10 - Chemo done!
Jul 10 - Brain MRI normal
Dec 10 - PET scan NED
Dec 30 10 - Last Herceptin
Feb 11 - Port removed
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08-23-2010, 12:58 AM
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#12
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Member
Join Date: Sep 2009
Posts: 8
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Re: under 40 when dx?
39 at dx, super fit and healthy, discovered lump in shower. multifocal IDC, 2cm & 1.5cm, Triple Pos, 2 pos nodes.
I had kids in my 20's, breastfed for 12 months each. Never smoked, occational drink with special dinner, no risk factors except I'm femeale - mother 72 has never had a mammogram as she didn't think she was at risk of BC!
__________________
Dx Feb 09 Multifocal 2.1cm 1.5cm IDC
2/10 Nodes,Triple positve ER 40%, PR 20% ACx4 Taxol x 12, Herceptin, Arimidex
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09-02-2010, 11:24 AM
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#13
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Member
Join Date: Jun 2009
Location: Hixson, TN
Posts: 12
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Re: under 40 when dx?
I was diagnosed at age 39.
__________________
Diagnosed 3/13/2009 from FNA, 39 years old.
4/09 lumpectomy with SNB, did not obtain clear margins.
5/09 - BMX with full axillary dissection on right side.
Final pathology report: 4cm+ high grade DCIS tumor with micro-invasive idc, 2/32 lymph nodes, ER/PR-, Her2+++, Stage IIa
7/09 - started TCH, finished 10/09
11/09 - 9 more months of Herceptin, finished 7/10
Reconstruction scheduled for Jan 2011
Expander placement completed - January 2011
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09-02-2010, 01:24 PM
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#14
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: under 40 when dx?
So you just turned 40 this year! Good to see you. Love your picture!
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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09-02-2010, 01:34 PM
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#15
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Member
Join Date: Jun 2009
Location: Hixson, TN
Posts: 12
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Re: under 40 when dx?
I was diagnosed March 2009, so I am now 41. I guess I should update that picture. I have a full head of hair now.
__________________
Diagnosed 3/13/2009 from FNA, 39 years old.
4/09 lumpectomy with SNB, did not obtain clear margins.
5/09 - BMX with full axillary dissection on right side.
Final pathology report: 4cm+ high grade DCIS tumor with micro-invasive idc, 2/32 lymph nodes, ER/PR-, Her2+++, Stage IIa
7/09 - started TCH, finished 10/09
11/09 - 9 more months of Herceptin, finished 7/10
Reconstruction scheduled for Jan 2011
Expander placement completed - January 2011
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