HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 09-22-2010, 05:17 PM   #1
CourtneyL
Senior Member
 
CourtneyL's Avatar
 
Join Date: Aug 2008
Location: San Francisco
Posts: 260
More Brain Mets - New Plan Thoughts?

Hello lovely ladies and gentlemen - I've been quiet on the boards lately because things have been going really well and I've been trying to push back cancer to the far corners of my mind. Well it just pushed back.

My latest brain MRI shows 8 new lesions. Crap, crap, crap. Will it ever end? So I guess we know that the super charged t-cells from the vaccine are not robust enough to go in and take care of any activity in the brain. Let's hope they're working below the neck to keep everything else at bay. My last PET/CT in August showed bone-only disease so that is a blessing.

But now, what to do about the brain? Here's what the plan is and then I would like the collective brain mets trust on this board to chime in with any thoughts/ideas/suggestions/feedback. Your opinions are invaluable to me and saved me from WBR almost two years ago - for which I will always be grateful.

Plan is to Gamma Knife all 8 lesions, hopefully in the next week or so. I started back on Tykerb today as we know it is thought to cross the blood brain barrier and I had much success on it last time. Then, after Gamma, my onc wants to add in Temodar (pill form of chemo also known to cross the BBB). There may be a chance that I can still continue on the clinical trial and receive my last two vaccine injections in November and January, respectively.

Thoughts? Is this a good plan? Do you think I should be doing something else? Is it time for WBR?

Love and healing light to you all.
__________________
4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.

Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial

Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED

Send me a PM if you'd like to follow my journey on Caringbridge.
CourtneyL is offline   Reply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 02:30 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter