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Old 06-18-2010, 04:48 AM   #1
Delaney
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Have to get a port - anything I should know?

Hi, I have to have a port put in next Wed cos my veins are all shot in my one workable arm. Is it straight forward or is there anything I should know beforehand? I thought it was a small procedure but they're bringing me in for an overnight. Can anyone tell me how to look after it and how to avoid any problems? Thanks.
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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Old 06-18-2010, 05:38 AM   #2
tricia keegan
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Re: Have to get a port - anything I should know?

I had a bard chest port which was done as a day procedure, they sedated me for it so I felt nothing and awoke fairly quickly and was allowed home about two hours later.
It was a little sore for a week but that was all, when you have chemo they'll probably give you some emla cream to rub over the port beforehand which numbs it a little before the infusion.
Good luck Delaney, I'm sure you'll be fine and for me the port placement was'nt a big deal
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
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Old 06-18-2010, 06:31 AM   #3
Colleen007
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Re: Have to get a port - anything I should know?

I'm going to be up for a new one soon and am offering a suggestion from another woman I know who just got a new port. Put on some of your bras before surgery and make lines with a sharpie marker where the straps fall...then ask your surgeon to do what he can to place the port in such a way that your bra straps don't rub against it. Good luck to you!
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Diagnosed 10-03-2005 (34 wks pregnant, 38 yrs old)
Lumpectomy Nov-2005. 10/18 Lymph Nodes impacted
Mets to liver, spine & femurs (thus being stage IV right from the get-go)
ER-, PR-, HER2+
Taxol/Herceptin/Zometa started Dec-2005. 11 cycles of Taxol.
Sept-2006: PET/CT scan of mets to liver, spine and femurs - Stable. Activity in R breast & mediastinum (not seen in prior scans).
Navelbine (3 wks on/1 wk off) as of Oct--2006 & continued Herceptin (every 3 wks) & Zometa (every 6 wks)
Jan-2007: PET/CT Scan - Stable. Continued Nav. through March-2007, then Herc./Zom. only after that.
June-2007: PET/CT Scan - activity in mediastinum. Back on Navelbine as of July-2007.
Scanned Quarterly since Oct-2007 - a few small scares, but otherwise stable due to continuing weekly Navelbine, Herceptin and Quarterly Zometa.
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Old 06-18-2010, 11:42 AM   #4
Delaney
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Re: Have to get a port - anything I should know?

Thanks for the tips.
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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Old 06-18-2010, 06:17 PM   #5
1rarebird
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Re: Have to get a port - anything I should know?

Getting my weekly Herceptin infusions via the Bard port has been a very easy procedure for me. I think you will be glad you are getting one.

Like, Tricia, I recommend using a numbing creme on infusion days. I put a dab of Lidocaine Creme on the surface of skin directly over the port about 1 hour before the IV stick. I don't rub it in but place a small piece of plastic wrap over the dab and hold the plastic in place with small pieces of tape. This keeps the creme from getting rubbed off by clothing. If I do this at least 1 hour before the stick, there is virtually no pain when the needle goes in. Without the Lidocaine, the sticks feel like bee stings. Your experience could be entirely different. I'm a big baby when it comes to needles.

Good luck---
bird
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Old 06-18-2010, 07:02 PM   #6
Rich66
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Re: Have to get a port - anything I should know?

Colleen's tip makes a lot of sense. Lots of complaints around on that issue. Am I right in thinking that the better one is the "power port"?
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Old 06-18-2010, 08:17 PM   #7
kiwigirl
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Re: Have to get a port - anything I should know?

Hi Guys. My surgeon cut around my nipple of my good boob. They pushed the port into place and i have no scar to be seen. My port is a vita port. This sounds bad but it was all good just a day stay surgery. No problem and no scar. This is new technology according to my surgeon. It work great for me.
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Oct 2009 Masectomy 6 cm Tumor . Sentinal node biopsy , Node Positive . Her2 + er/pr -.
Nov 2009 X3 Taxane and Herceptin, X3 FEC
March 2010 25 Rads
March 2010 continued on Herception untill 16 Dec 2010
May 2010 Ultra Sound .... ALL CLEAR... NED
August 2010 started vaccine trial University of Washington
7th Dec 2010 finished vaccine trial
20th Dec 2010 Port removed
3rd Feb no longer ned brain mets
23r Feb start VMAT radiation
August 2011 two new mets to brain and others starting to grow again !!!!
August start tykerb and xeloda
Dec 1 MRI all small brain mets gone. Largest shrunk by 50% only three small ones to go 17mm,8mm,6mm. Mets on there way out. Yeah
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Old 06-19-2010, 04:55 AM   #8
Sandra in GA
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Re: Have to get a port - anything I should know?

When I had my power port, the only problem I had was a reaction to the Tegrederm sp?) tape they used for the dressing. Where the tape touched, my skin became very irritated and red that night and later sloughed off. I would only let them put paper tape on me after that. They put the port in place and I received my first chemo treatment the nex day.
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Surgery: 8/14/08 Bilateral mastectomy; tumor left breast, node dissection; right prophylactic with expanders: 1/12/10 latisimuss dorsi flap on left side: 9/22/10 implants in
Pathology Report: ER/PR-; HER2+ (3+); Grade 3, StageIII; 3cm tumor plus 21/21 lymph nodes positive; 5cm DCIS
Chemo: A/C; Taxol/Herceptin/Tykerb; phase II study at Mayo adding Tykerb for early stage
Radiation: 25 rads
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Old 06-19-2010, 07:49 AM   #9
Darlene Denise
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Re: Have to get a port - anything I should know?

Delany: Insist on a Barrd Power Port which will enable you to have your scan contrast via the port also. I had a regular Barrd port in 1/08 and asked for a power port then and they weren't using them in my area at the time. I had a Power Port put in 6 months ago, it is smaller and so much nicer on scan day.

You can check them out on Barrd's web site. Be sure to ask in advance for it, otherwise, I have known gals who got stuck with the old one.

It is an easy procedure and I'm sure it will go well!!

Darlene
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12/14/07 IDC ER- PR- HER2+++ LIVER METS AT DX CONFIRMED BY LIVER BIOPSY
01/14/08 2 AC TREATMENTS-NOT WORKING
02/04/08 13 TAXOL, CARBO, HERCEPTIN TREATMENT-EXCELLENT RESULTS!
05/12/08 HERCEPTIN EVERY 3 WKS
08/22/08 BRAIN METS! 8 <5MM
09/17/08 CYBERKNIFED BRAIN METS
10/20/08 BRAIN METS SHRINKING
12/29/08 BRAIN SCAN SHOWS 1 LESION GONE, 7 SHRINKING & STABLE, 1MM ? SPOT
01/16/09 LIVER REOCUR-XELODA/HERCEPTIN
03/02/09 BRAIN SCAN 2 LESIONS GONE, 5 STABLE, 1MM ? SPOT STILL A ?
3/27/09 REGRESSION OF 2 LIVER LESIONS XELODA & HERCEPTIN
06/08/09 STUPID BRAIN HAS 3 LESIONS
06/29/09 CYBERKNIFE
07/01/09 LIVER REGRESSION NO NEW METS
07/07/09 TYKERB XELODA HERCEPTIN
11/11/09 GEMZAR/HERCEPTIN FOR LIVER PROGRESSION
03/22/10 BRAIN MRI GOOD-3 SMALL NECROSIS LEFT FROM ORIG 11!!
03/26/10 CHANGE TO NAVELBINE/HERCEPTIN 3 LIVER LESIONS PROGRESSING IN SIZE
05/21/10 NAVELBINE/HERCEPTIN WORKING!
07/19/10 GOOD BRAIN MRI
08/20/10 LIVER PROGRESSION
09/08/10 TDM1 - NASHVILLE TN
01/10/11 LIVER RESPONDING TO TDM1
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Old 06-19-2010, 02:08 PM   #10
Chelee
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Re: Have to get a port - anything I should know?

I've had two ports put in since my orignal dx. Each time I have had a port placed it took about 2 hrs total. They were both day procedures...just needed someone to drive me home. I felt absolutely nothing..painless. However as Sandra said I too had a bad reaction to that clear tape they placed over my port...so keep an eye on that. Mine got so red, sore and almost looked infected. Once it was removed it cleared up.

I was talked into the Bard Power Port which is nice since it can be accessed for PET/CT's...saves the arms. But yes the procedure is straight forward as you said. The only thing is some minor discomfort for about a wk after it's placed. When you get home they just want you to keep it clean and dry which is easy with the dressing they place over it. There really isn't much too it. Colleen had good advice...you really don't want your bra strap rubbing on your port as it can get painful. So don't forget the sharpie. You will be glad you got one placed...makes things so much easier on you. Good luck.

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Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 09-21-2010, 02:04 PM   #11
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Re: Have to get a port - anything I should know?

just had a leaking power port removed,months after infusion nurses kept having increasingly difficult access,finally a nurse refused to access it which precipitated a flow test which showed it had been leaking monocloned antibodies(rituxan) into my chest.there are some horror stories on other websites that you probably shouldn't read if you get upset easily.the catherters can come loose and they will have to call in radiologists to try and locate where it is in your body and try to retrieve it before,well you can quess what,just read one on website pulled up on google where the cath wound in the heart,another where they had to retrieve it thru the jugular.i'm glad i didn't read it before my replacement with a rita double,and will have the stress of this along with the rest.
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Old 09-21-2010, 03:40 PM   #12
ElaineM
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Wink Re: Have to get a port - anything I should know?

I got my double port in March, 2000. I have used the same port for over 10 years. I lost weight, so it moves around a bit, but according to a recent xray it is okay.
I love it for blood tests, because I don't have to deal with people poking my veins.
The procedure was outpatient in the hospital. I even woke up during that surgery which was a little scary at first, but I heard them talking about stitches, so I calmed down and just waited for them to finish.
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Old 09-21-2010, 04:17 PM   #13
Jackie07
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Re: Have to get a port - anything I should know?

I had never had any problem with my port (installed in 2007) until end of July when I allowed an inexperienced technician to access it. The Clinic of Internal Medicine had a newly trained staff on Board and the staff at the front desk insisted that I should get it done there instead of going to the Cancer Center to flush my port.

The staff did everything wrong and literally made me jump off the chair. Finally I went back to the Cancer Center and luckily one of the experienced staff I know were on duty. She was surprised at the news about the 'trained staff' over at the Center for Diagnostic Medicine.

Tomorrow I'm going to flush the port (every 6 weeks) again. It's been more than 7 weeks because of our insurance problem with Texas Risk Pool. The initial payment was not 'logged' in and the 2nd one we sent in was 'in process'. Today I received another call asking us to fax a 'blank' check for the automatic draft. I told the lady that in our initial contact, that blank check was received - only the payment check was missing. Since she said we could just fax the blank check, we went ahead faxed the photocopy that we had made from the very first ones that were never received.

The same lady called me back and told me that (obviously realizing the mistakes they had made) everything's been taken care of and we can choose to have our insurance start at the original date (September 1) on the application or October1. I asked her how about 'today' since we did not use the insurance at all for the last 21 days in September. Surprisingly she said that would be the date and we should receive everything in the mail by next week.

So tomorrow I'm going to get my port 'flushed'...
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Old 09-21-2010, 04:51 PM   #14
kklouisiana
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Re: Have to get a port - anything I should know?

I have the brad power port. It was put in on a Monday and I had my first chemo the next morning. I tried the lidocaine then keep forgetting it. If the nurse is well trained, then I can stand the short pain but get a bad nurse and OMG. I have had 6 of 8 treatments as of today, so I'm celebrating my next to last chemo in October. I still have blood drawn from my veins but they are so good at this, I don't mind a bit.
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