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12-26-2009, 04:44 PM
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#21
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: Our Anniversary
Christine & Joe,
Where would I be without this wonderful site with its amazingly brilliant and valiant community of friends and fellow Her-2 sojourners? Many heartfelt "thank yous" for all you have done and continue to do for us.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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12-26-2009, 06:27 PM
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#22
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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Re: Our Anniversary
I join all the others in Thanking you for this website
and all the information and comfort I have received.
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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12-27-2009, 03:00 PM
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#23
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Senior Member
Join Date: Oct 2005
Location: Saratoga Springs New York
Posts: 136
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Re: Our Anniversary
Happy Anniversary !! This has been my main source of information and support since '04. Thank you for all of your time and devotion, it is very generous of you. I think of everyone who has passed on all the time. They all meant so much and had so much wisdom to share way back in the beginning. I wish you and everyone else a Happy Healthy New Year and many more to come. Sally
__________________
Dx March 2004 HER2+ er/pr+ 8/16 + lymphnodes mets to the liver Stage IV / 6 cycles of TCH and 33 rads . NED Continued Herceptin 3 years w/ Femara. Tumor markers start to rise in Jan of 2007 and swiched to Tamoxifen. August of 2007 found more mets to liver and lymphnodes outside of liver. Went on Tykerb/Xeleoda--spots on liver gone found large mass between intestines. March 2008 started TCH. Stopped Carboplatin due to allergy. Still on Taxotere and Herceptin. Nov 2008 mass is gone. 3 new spot on liver and one on spine. Radiation on spine. tykerb/gemzar for liver mets. PET in April 09 showed shrinkage still a little activity, continue tykerb/gemzar until Aug 09. PET showed new spot on my spine more on my liver and a bunch of enlarged lymphnodes in upper chest. Start Adriamycin Sep 09. more radiation on spine . April 2010- Still on Adriamycin 3wks on 1 wk off and zometa every 28 days. PET -May 2010 showed progression. Starting Herceptin/Navelbine on June '10
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12-27-2009, 09:27 PM
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#24
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Re: Our Anniversary
Adding my thanks to Joe and Christine for their devotion to others in advancing treatment and lending support.
My day is not complete until checking on my 'family' here. Early in my dx, this site and the friends here kept me sane (or a reasonable facsimile thereof). This site and a wonderful onc has kept me NED!
Thanks for all,
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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12-28-2009, 10:48 AM
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#25
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: Our Anniversary
Thank you Joe and Christine from England.Your vision for the support forum was truly brilliant.
To all my her2 sisters thank you for helping me through each and every day.May 2010 finally find the key that turns this disease off!
Ellie
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12-29-2009, 03:01 PM
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#26
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Senior Member
Join Date: Nov 2006
Location: South Carolina
Posts: 183
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Re: Our Anniversary
Thank you Christine and Joe for this wonderful site. I can't imagine going on this journey without it. This site has given me and many others so much hope. I think of the ones we have lost everyday and pray for the ones they left behind. I believe that one day soon, a cure will be found for all types of cancer.
Merry Christmas and Happy New Year to everyone one on this site. I pray that 2010 brings us several steps closer to the end of this dreadful disease.
Love the new avatar DonnaD and WomanofSteel!!
TriciaK I think of you so often, your post always means the world to me!
__________________
Anita
er, pr-, Her2+++
Stage 2b, grade 3
negative nodes
4 rounds AC
3 months of weekly taxol
1 yr of Herceptin
Finish Herceptin May 2007
35 rounds of Radiation
Reconstruction completed Dec 2007
Implant replaced due to infection Mar 2008
4 Years NED!!!
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12-29-2009, 11:27 PM
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#27
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: Our Anniversary
Christine & Joe, Many thanks for such a wonderful gift you gave all of us when you launched this Her2 board. I know many of us, if not all would be lost without it. I was feeling so desperate when first dx with this Her2 bc. I found so many websites and information on regular bc...but I wanted Her2 related information and support. It was a big sigh of relief when I stumbled across your board. It had everything I needed to know about Her2 bc & then some. Then to add to that the greatest group of women and men for support...I couldn't ask for more. I hit the "jackpot" when I found your board. I really would be lost without this board...I really can't thank you two enough for all your efforts & hard work to keep this board up and running for us. Bless you both. 
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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