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Old 01-03-2015, 10:56 PM   #1
Saygoon
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Join Date: Jul 2013
Location: Hot Springs, South Dakota
Posts: 158
positive feedback

I just wanted to let everyone on this site know how great you are. Recently I joined some other sites just to add to my circle of support and I was very, very disappointed with all the negativity. OMG!!!! I realized I was getting depressed after reading post from these other sites. I am so thankful for all of you that have offered educated, informative and positive feed back and posts! I am Stage IV but I dont consider myself as dying a little each day as I read over and over WHEW! Wore me out! 2015 is here and I plan on being here for a lot more New Years - look forward to many more conversations with each of you. Thanks again for all your support!
__________________
Paula T. (saygoon means dog, yes I am Native)
DX March 2012
Stage IV w/ 5 bone mets to spine 2 on ribs
Herceptin, Zometa, Taxotere and Anasterole and of course radiation
2/14/2014 2 mets on pelvic bone
Stop Anasterole continue on Herceptin and Zometa start radiation (again)
2/24/2014 start T-DM1 continue Herceptin and Zometa
4/28 more radiation that brings total to 5 (10 days ea) - I think I will soon glow in the dark....
6/01/2014 Great news! Rib mets gone, 4 of 5 spine mets showing new bone growth and pelvic mets shrinking.
8/28/2014 T11 on spine is being stubborn started Perjeta, Herceptin, Zometa and Taxol - goodbye hair!
9/04/2014 Tomo therapy - pain finally gone
1/3/2015 - starting New Year out as still stable. Feeling positive
2/23/2015 - problems with left leg, bone met flaring up - MORE radiation Whew!
2/24/2015 Stress fracture in right side of pelvic - (great just great) back to wheelchair then walker then.....
2/26/2015 Off Taxol!! Still on Perjeta, Herceptin and Hormone Blocker starting to feel a little more human.
4/10/2015 Cancer has spread to spinal fluid - not sure where I go from here
6/29/2015 Omaya Port placed,begin IT Herceptin on 7/7/2015
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