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03-02-2007, 03:30 PM
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#21
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Senior Member
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
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Sending you good thoughts and prayers!
__________________
Love and Hope
Karen
IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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03-02-2007, 10:37 PM
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#22
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Hi Joy, I don't remember you mentioning that you are from St Charles, but that doesn't mean you didn't because I don't remember "jack *#%!" either anymore! I hope your sister didn't run into any of our horrible winter storms while she was here for the show. Cool that she got to meet Mike Ditka. Our Bears did alright this year but to bad about the Super Bowl. Just wasn't their year. Thanks for the congrats everyone and I hope the same for everyone else here.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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03-02-2007, 10:53 PM
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#23
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Senior Member
Join Date: Jan 2007
Location: Adelaide, South Australia, Australia
Posts: 144
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YYaaaaaayyyyyyyy!!!!!!!!!!!!!!!!!!!!!!!!!!!
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Belinda
- Diagnosed 3 Jan 2007, Stage IIb, Mastectomy and axillary clearance 10 Jan 07, 6 of 19 nodes affected, multi-focal cancer, HER2 positive. Second mastectomy (prophylactic). Chemo - AC 3 months, Taxol 3 months - then radiation 5 weeks.
- Aug 2011 - Diagnosed with Stage IV mets to lung, sternum and 12 or so thoracic nodes - Rads to Sternum, then weekly abraxane and herceptin for 12 weeks.
- May 2012- good scans - all nodes still about normal size, hole in sternum repairing, lung tumour 'obliterated'.
Ongoing herceptin every 3 weeks. Bloods still all good! Life good!
- March 2013 - recurrence - tumours in lungs and mediastinum (coughing up blood) - immediate radiation treatment to right lung and mediastinum, still on Herceptin, and 3 months of Vinoralbine - stable for a little while!
- Coughing and breathlessness started again September 2013, treated as radiation-induced fibrosis (which can be seen on scans - albeit stable). ie puffers, steroids
- January 2014 - cough becomes bloody again, scans show big mediastinal tumour wrapped around and choking the life out of my right main bronchus, radiation deemed off limits as my lungs are hypersensitive to radiation (measured by existing damage from 2013) .....................- ie I am in the 5% of people likely to suffer severe radiation damage to the lungs that they warn you about before starting treatment! (so special! :) )
- Started chemo Feb 2014 - continuing Herceptin (continuous since Aug 2011), with Carboplatin and Gemcitabine. Discontinued Gemcitabine because of se's. Starting cycle 5 Herc/Carbo 5 May 2014.
- Meantime.....coughing and breathlessness increased to SCARY levels with racing heartbeat that won't slow down, breath that won't come back, even just walking to the bathroom or up 3 or 4 steps.
- ICU from May 5 2014, collapsed right lung due to tumour, small pulmonary embolism (left), tumours growing in mediastinum left and right, dvt lower right leg
- Plan seems to be bronchoscope next week to see if tumour can be lasered and stent inserted in right bronchus to reopen air access to lower parts of right lung. If that is successful might be able to have brachytherapy to worst tumour, otherwise no more options for external radiotherapy.
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03-02-2007, 10:59 PM
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#24
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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Great news!
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03-03-2007, 08:43 AM
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#25
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Senior Member
Join Date: Jul 2006
Location: Memphis, Tennessee
Posts: 35
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Just a thought
Hi Friend!
Just a thought. My husband is a surgeon as well as my number one support in my battle. I know that your surgeon would not cancel an appointment if he has any worries about your condition. I know that if he had major concerns, you would be his very first priority. I know that some things just have to be a matter of prioritizing limited time. I would hope that he sees you as a patient who is sailing through this journey (medically speaking) and can enjoy the fact that he sees no major problems on your horizon. Don't mean to minimize the stress you are going through, just trying to offer a different perspective.
Love to you, Kathy H
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03-03-2007, 04:52 PM
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#26
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Senior Member
Join Date: Sep 2005
Location: .
Posts: 211
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Sorry - late post - just wanted to express my relief at your clear scan.
love
linda
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03-03-2007, 10:20 PM
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#27
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Thank you everyone for your good thoughts and prayers. I am so relieved right now and it feels darn good. I guess getting mammograms will always cause some anxiety from now on but I will deal with them at the time and not before. Kathy, thanks for that perspective about surgeon cancelling. I am sure he didn't just cancel me but the entire schedule that day. I am not sure he even knew who was on his schedule that day. Most doctors are too busy to keep track of their daily schedules so I really highly doubt he knew exactly who he was cancelling out. I am sure he just tells his staff when he has a schedule change and lets them handle the rescheduling. I don't take it personal as I know he is not only busy with his practice but also with his other committments.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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