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07-16-2013, 07:31 AM
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#1
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Member
Join Date: May 2010
Posts: 6
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How many years NED? Give others hope
I was diagnosed in September 2009, finished all treatments in November 2010. I am still NED. Just checking in to give others hope. I am ER/PR- HER2+, Had partial mastectomy, chemo, rad and herceptin.
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07-16-2013, 09:46 AM
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#2
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Senior Member
Join Date: Apr 2008
Posts: 1,477
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Re: How many years NED? Give others hope
8 years here
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07-16-2013, 10:57 AM
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#3
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Senior Member
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
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Re: How many years NED? Give others hope
5 years, 8 months. I finished my last treatment (vaccine trial) last summer.
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes
Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"
Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla
Reconstruction: TRAM flap, partial loss, Revision
The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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07-17-2013, 07:29 AM
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#4
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,809
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Re: How many years NED? Give others hope
Just got a clean bill from the oncologist last Tuesday (except I needed to get more sunlight/Vitamin D... 
It's been exactly six years (now 9 years - as of summer, 2016) since my mastectomy for stage 2B ...
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
Last edited by Jackie07; 08-27-2016 at 05:28 PM..
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07-17-2013, 09:41 PM
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#5
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Senior Member
Join Date: Oct 2010
Posts: 36
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Re: How many years NED? Give others hope
Stage III-5 years, 10 months and counting NED. Praise God and MD Anderson.
__________________
5/07-clean mamo
8/07-found lump in right breast
9/07-diagnosed HER2+++, IDC, ER-PR-, 6.2 cm tumor, stage 3, 1/18 nodes, grade 3, modified radical mastectomy
10/07-power port installed, chemo begins
12/07-finished 4 rounds AC
1/08 began taxol/herceptin
3/08-finished taxol, herceptin only till end of 08
4/08 30 rads
12/08-last chemo I pray
1/09-port out, YEA!!!
Currently NED and pray I stay that way.
Thank God and MD Anderson!!!
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07-19-2013, 09:57 AM
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#6
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Senior Member
Join Date: May 2011
Location: El Paso ,Tx
Posts: 436
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Re: How many years NED? Give others hope
3 years and counting.
__________________
 dx: DCIS 6/8/10, HER 2+ 7/26/10; Stage I Age 41
Double mast w reconstruction
6 TCH w 1yr herceptin
Tamox.
25 radiation tx
Removal of expander on L due to infection. Tried to save it had 3 bouts of antibiotics and went to see plastic surgeon 2-3x wk to get drained. Saving it was my idea not his. But lost it anyway.
Reconstruction set for December 21st,2011
Finished chemo 12/2010
Finished Herceptin 8/26/11
Reconstruction 12/21/11
Expanders exchanged for silicon 3/19/12
Nipple reconstruction 5/18/12
Nipple tatooing- 7/9/12- All done yay!
11/22/12-Went back to get scar tissue stretched to even the outside of breast, didn't work due to it being radiated skin.
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07-23-2013, 06:32 PM
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#7
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Re: How many years NED? Give others hope
8 years. :-)
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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07-23-2013, 10:16 PM
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#8
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Senior Member
Join Date: Feb 2013
Location: Lincoln, NE
Posts: 265
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Re: How many years NED? Give others hope
AMEN...Glory to God!!
__________________
10/18/12 Found pea size lump right breast
11/7/12 Biopsy
12/14/12 Lumpectomy
1/4/13 Rexcision, NO CLEAR MARGINS!! :(
2/11/13 Mastectomy with Expander Placed
2/15/13 INFECTION at Mastectomy site...emergency Surgery!!! Expander removed :(
DX: DCIS, IDC, Stage 2a, 2.7cm, 1/5 nodes positive
ER/PR-, HER2+++
3/28/13 Port placed
4/1/13 Begin 6 Cycles TCH Therapy
4/1/14 Finished Herceptin!!
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07-28-2013, 05:50 PM
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#9
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Senior Member
Join Date: May 2006
Posts: 46
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Re: How many years NED? Give others hope
13.5 years, Stage IIIb. No recurrence. Keep the faith.
All the best,
-Gabrielle
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07-28-2013, 09:40 PM
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#10
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Senior Member
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
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Re: How many years NED? Give others hope
WooHoo! SusanN . . . 6 days post final chemo and counting! Are you feeling better yet?
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes
Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"
Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla
Reconstruction: TRAM flap, partial loss, Revision
The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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07-29-2013, 03:35 AM
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#11
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Re: How many years NED? Give others hope
In a few weeks, I will be 9 years
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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07-29-2013, 04:47 AM
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#12
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Senior Member
Join Date: Apr 2011
Location: Port Hedland, Australia
Posts: 382
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Re: How many years NED? Give others hope
2.5 yrs in to a long lifetime x
__________________
Diagnosed Nov '10 IDC whilst pregnant with 2nd child
Her 2 ++ ER/PR + but weak and patchy 50% + 5%
Left mastectomy Dec '10, 6cm tumour 1 of 2 lymph (micro mets)
Clear margins but lymphovasculer invasion
Stage 3a Grade 3
Fec 100 x 3 Jan '11 Taxotere X 3 and Herceptin X 1yr
Staging scans - CT brain & body and bone - May '11 - NED!!
Start Femara - in chemo induced menapause
25 Rads June '11
Dec '11 Menstruation resumed - zoladex inj monthly and Tamoxifen
Feb '12 Back on Femera and Zoladex
March '12 CT brain & body & bone scan all clear
Zometa x2/yearly
April '12 - Oopherectomy
Praying the Herceptin is as good as its hype!!
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08-05-2013, 09:06 AM
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#13
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Senior Member
Join Date: Feb 2006
Posts: 437
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Re: How many years NED? Give others hope
8 years and 3 mos from Stage IIIC and doin the happy no BC dance everyday!
__________________
Linda
Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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08-21-2013, 08:52 PM
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#14
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Re: How many years NED? Give others hope
Eights and a half years!
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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08-22-2013, 09:58 AM
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#15
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Senior Member
Join Date: Apr 2008
Location: WA State
Posts: 199
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Re: How many years NED? Give others hope
I am 5 years NED! Giving thanks to God for all of you that He's keeping safe in His arms.
__________________
Cindy
L/IDC, 1.2 cm, Stage 1, Her2+, ER+/PR+ at age 48
4/15/2008 Lumpectomy + sentinel node biopsy
Margins neg and Nodes neg (2 tested)
MUGA score 55 on 5/6/2008
Treatment starting 05/08/2008:
Chemo 4 cycles, 3 weeks apart with Taxotere & Cytoxan - Chemo - Done 7/24/2008!
Herceptin for 1 year
Radiation starting in 9/2008
MUGA score 61.9 on 9/04/2008
33 Rads with boost - Done 10/13/2008
MUGA score 58 on 12/01/2008
MUGA score 59 on 3/16/2009
Herceptin for 1 year - Done 4/27/2009
MUGA score 64 on 6/22/2009
All scans - NED 6/24/2009
MRI - NED 11/10/2009
All scans - Still NED 8/25/2011
Still NED 2017!
I am calling this my pink journey
Follow my journey into the pink at my blog here
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08-22-2013, 06:17 PM
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#16
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Senior Member
Join Date: Jun 2009
Location: Mississippi
Posts: 253
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Re: How many years NED? Give others hope
4 years, 3 months. Giving thanks to my Heavenly Father with a humble heart and glad to have found all of you!
__________________
4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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10-09-2013, 07:57 PM
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#17
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Re: How many years NED? Give others hope
Next week I will be 7 years out, no recurrence.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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10-21-2013, 02:45 AM
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#18
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Senior Member
Join Date: May 2010
Location: New Roads, LA
Posts: 35
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Re: How many years NED? Give others hope
I am now 5 years NED....and still loving whatever God blesses me with
Toni
UPDATE!!! As of May 11,2015, I made 5 years and grandbaby #4 (my daughter's first baby) just turned 1 in April! God is so good!!!!
__________________
Toni
Found lump...Oh, crap!
Dx 4/29/10
Invasive Poorly Differentiated Ductal Carcinoma. BRCA 1&2 no mutations(although 2 cousins also are HER2+)HMMM....
Stage IIB, G3
ER/PR -, HER2+++
5/11/10 Lumpectomy/Axillary node dissection/Mediport placement
Tumor 3.5cm, 1/15 nodes + Both Sentinel nodes negative!
6/24/10 - Started TCH.
10/14/10 - Finished chemo...yea!!!!!
12/27/10 - PET scan and MRI-NED!!!!!
03/09/11 - Bilateral Mastectomy and reconstruction (DIEP Flap)
03/16/11 - NED! Path report negative!
6/9/11 - Revision of both breasts, and port removed. Two lumps removed...both benign!
6/23/09 - LAST HERCEPTIN!!! Wohooooo!
My son Tim and his wife Nicole just had their first born...a son, Brayden...my first Grandchild! My daughter Hanna is working her way through college, and I am so proud! God has blessed me.
Update...as of 10/2013...still NED, and my son and daughter-in-law just had identical twin girls!!! They have blessed me with 3 beautiful grandchildren in 27 months!! Haha!
My beautiful daughter, Hanna, is still working toward her degree and working full-time.
God is so good:)
Last edited by tfabre; 09-05-2015 at 12:23 PM..
Reason: Updated
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11-19-2013, 07:59 PM
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#19
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Senior Member
Join Date: Sep 2013
Posts: 65
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Re: How many years NED? Give others hope
It is heartwarming and encouraging to read these NED stats. Thank you all for sharing!
__________________
age 60, postmenopausal
8/13 suspicious mammogram, left breast
9/13 core biopsy
9/13 dx invasive ductal carcinoma
9/12/13 lumpectomy with SNB, ER/PR/HER2 +, nodes negative, clear margins, 2 cm tumor, stage 1a, grade 2
10/21/13 port surgically implanted
10/28/13 first chemo today, TCH
3/3/14 Started H alone every three weeks
3/10/14 Started radiation
4/29/14 Completed radiation
10/28/14 Completed Herceptin
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11-26-2013, 07:19 PM
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#20
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Senior Member
Join Date: Oct 2010
Posts: 36
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Re: How many years NED? Give others hope
6 years 2 months NED
__________________
5/07-clean mamo
8/07-found lump in right breast
9/07-diagnosed HER2+++, IDC, ER-PR-, 6.2 cm tumor, stage 3, 1/18 nodes, grade 3, modified radical mastectomy
10/07-power port installed, chemo begins
12/07-finished 4 rounds AC
1/08 began taxol/herceptin
3/08-finished taxol, herceptin only till end of 08
4/08 30 rads
12/08-last chemo I pray
1/09-port out, YEA!!!
Currently NED and pray I stay that way.
Thank God and MD Anderson!!!
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