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10-28-2009, 06:05 PM
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#1
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Would appreciate any help or advice
Hi everyone,
I had a bone scan that showed one area of suspicion, so they want to do an MRI.
This almost scares me more than the results as I'm claustrophobic.
I'd appreciate any advice or tips to get through this 
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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10-28-2009, 06:13 PM
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#2
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Senior Member
Join Date: Jun 2009
Location: Los Angeles, CA
Posts: 309
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Re: Would appreciate any help or advice
Hi Tricia-
Sending positive thoughts and prayers to you for a good outcome.
I never had an issue w/MRI's--never understood what this was all about and I am someone who gets claustrophobic---so someone else might be able to shed some light-might have something to do w/the type of machine--I might have had the more 'open' type---
__________________
DX: 11/08 Age: 53
Surgery: 1/09
Bilat Mastectomy, no reconstruction
ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm
DCIS-11 cm
All tumors Grade 3
All tumors ER-0%/PR-0%
All tumors HER2+
IHC-all tumors Overexpression/borderline
FISH 2 tumors Her2-Negative
FISH 2 tumors Her2+ Equivocal
Stage I, 0/1 nodes
LVI-Indeterminate(treated as positive)
SPR Score 8/9
Ki-67 20%
BRCA genetic test 1/2=negative
Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta
Herceptin: 6/12/09-6/4/10 52weeks
HNPCC genetic test: negative
Port Placement-9/23/09 Port Removal 6/25/10
Echo's every 3 months-All normal
2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets--
6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged
1/10-PET/CT-uptake in nasopharynx-
1/10-MRI All normal
6/10-Bone Scan-clear
12/10-PET/CT-All Clear-NED
12/11-PET-All Clear-NED
12/12-PET-All Clear-NED
12/13-CT w/contrast Head, Torso-All Clear
12/14-CT w/contrast Head-All Clear
2/15-Core needle biopsy-R scar line
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10-28-2009, 06:20 PM
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#3
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Senior Member
Join Date: Jan 2009
Location: Colorado Springs, CO
Posts: 430
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Re: Would appreciate any help or advice
Hi Tricia,
I'm so sorry to hear this news. I hope the MRI shows that this is nothing.
I have had only one MRI. I just kept my eyes closed, took deep breaths and tried to pretend that I was just going to sleep.
Hope this helps!
Alice
__________________
9/15/08 (age 52) - Mammo: calcifications
9/22/08 - Biopsy: DCIS, grade 3. ER,PR status: Pos. in 75-90% of tumor cells.
10/01/08 - Ob/Gyn appt.: found complex, mostly cystic mass on right ovary - 11cmx12cmx 8cm
10/15/08 - Hysterectomy & Oophorectomy, Lumpectomy: Cyst on uterus, not ovary - all was benign. Breast - 5 of 6 bad margins. 2 Sentinel Lymph nodes removed, both negative. Stage 0, Tis, N0
12/11/08 - Mastectomy & DIEP reconstruction: Surprise! 2 cm Invasive DC, grade 2 found. One benign internal mammary lymph node. Stage 1, T1c, N0, all clean margins. ER+ (Proportion Score = 2/5, Intensity Score = 2/3) and PR+(Proportion Score = 3/5, Intensity Score = 2/3)
HER2 score = 3+
1/09/09 - Oncotype DX: Recurrence S/core of 60 !?!?! ER status is NEG!! PR staus is NEG! HER2 score = 12.2 (still positive, greater than 11.5 is positive).
1/20/09 - Started chemo: TCH
5/26/09 - FINISHED CHEMO!
1/05/10 - FINISHED HERCEPTIN!
1/22/10 - Port-a-catheter removed!
3/07/18 - Still NED
9/10/23 - Still NED
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10-28-2009, 06:46 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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Re: Would appreciate any help or advice
Tricia, I do self-hypnosis, but still don't like MRI's. The only thing I ever know to do is to focus on the rhythm of the machine, ignoring the"knocks" as much as possible, and repeat over and over "No. Evidence. Of. Disease.", like a mantra, breathing as slowly and rhythmically as possible with the machine. The "open" MRI's are a little easier than the usual ones. Ask for a sedative and let them know your fears. I was told even grown he-men types get claustophobic and panic, so don't be embarrassed. Tell them to keep talking to you and to let you be able to express you feelings. I think they can take you out if you insist, but I'm not sure because I was told PET scans can't be stopped, so maybe MRI's can't either. I think there are three difficult things: the loud knocking sounds, the length of time, and the feeling of being so enclosed. If you can find anyone who can do hypnosis with you I think that helps more than anything.
I really sympathise and will hold you in my thoughts and prayers. You may find, though, that you amaze yourself by how well you do. Just look at everything else you've conquered! You are a cancer survivors and therefore a warrior!! Hugs, (the other) TriciaK
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10-28-2009, 06:55 PM
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#5
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Re: Would appreciate any help or advice
Tricia
I know just how you feel...but since MRI's are now a big part of my life, i do the imagery thing...put myself somewhere else, like on a nice sandy beach with a warm wind and palm trees....and a cold Guiness in my hand....I truly have learned to overcome the fear by focusing on somewhere else....and, if that wont work, as long as you have someone to take you home., try an Ativan or some Valium...just skip the guiness!!!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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10-28-2009, 07:10 PM
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#6
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Senior Member
Join Date: May 2008
Location: Oregon
Posts: 110
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Re: Would appreciate any help or advice
Hi Tricia,
I do bone scans (and PET/CT scans too) for a living and I have seen many scans that just don't give a clear reading. Bone scans aren't specific for cancer-they show increased tracer anywhere the bone is remodeling itself-like from arthritis,stress fractures etc
So for your MRI, if it was me I would get lots of drugs and a driver to get home-just like Shelia said. Sometimes I can talk myself into calmness and sometimes I just get too wound up and that's when I like a little help. Lorazipam is a good one and last time I had a nasty biopsy I tried vallium and that really helped.
My view is that it doesn't make sense to beat yourself up if there is something that can make the whole experience easier.
Good luck
Henny
__________________
Henny
Dx 3/07 IDC and DCIS Her2+ ER- PR-
Stage IIb 1/15 nodes
A/C, Taxol, Herceptin
Bilateral mastectomies with recon
Zometa 2/yr for 3 yrs- finished 8/2011
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10-28-2009, 07:41 PM
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#7
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Senior Member
Join Date: Oct 2007
Location: Portage, IN
Posts: 198
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Re: Would appreciate any help or advice
Tricia...I have to take an Ativan before an MRI. They help a lot. But you will need a driver.
__________________
10/15/07: Diagnosed at age 46 lymph node removal (2)
ER/PR - Her2 +++
11/07: Port Installed
11/07 - 1/08: AC
1/30/08: Right Mast Stage lllC
2/28/08: Start Taxol and Herceptin weekly.
5/15/08: Finished Taxol
8/12/08: Finished 33 Rads
1/29/09: Finished Herceptin
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10-28-2009, 08:09 PM
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#8
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: Would appreciate any help or advice
Tricia, This is a common problem being claustrophobic. That's the 1st thing they ask you when you go for a MRI. So this isn't anything you should be embarrassed or worried about. In fact they have open MRI's just for people that can't deal with a regular MRI machine. I do think I've heard a regular MRI is more reliable as far as results...but even if you do an open one it will be fine or obviously they wouldn't even have them.
I just did a MRI of femur and pelvis...took two hrs in that machine. I took some xanax and just got comfortable. (Except for my back but thats due to my scoliosis.) They do give you a "blub" to hold in your hand. They tell you if at any time you need something or want out to SQUEEZE the blub and they will instantly ask you what you need and pull you out if necessary. They run across this problem all the time...so just call them ahead of time and tell them your concerns and see if they suggest you go to a open MRI instead. Although like the others here said...if you close your eyes and relax its just like taking a nap. I'm not claustrophobic at all and I never opened my eyes because I was resting. They give you ear plugs which work great...you can hardly hear the knocking noise. They can talk to you while your in the MRI machine & hear everything you say...so you aren't diconnected from them at any time. Wishing you the best.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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10-28-2009, 08:18 PM
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#9
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Senior Member
Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
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Re: Would appreciate any help or advice
If you don't have to respond to breathing commands, music and some closed headphones might work. I had radial keratotomy (pre laser lasik) on my eyes years ago and the little valium pill MUST have been how I got through it. When I think about an opto-scalpel apparatus being lowerered over my eyes and me being asked to look up, down etc as eyeball pressure was felt..
All I can say is "Yikes! Excellent drugs!".
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10-28-2009, 08:23 PM
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#10
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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Re: Would appreciate any help or advice
As others have said, I try to go into a sort of meditative state. Zone out.
Some MRI machines have a mirror deal on them too, so you can "see" out the end of the tube and not feel so confined.
I have also certainly taken an Ativan when anticipating something stressful!
Keep the faith.
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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10-28-2009, 08:26 PM
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#11
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Senior Member
Join Date: Mar 2006
Posts: 4,778
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Re: Would appreciate any help or advice
where was the area that lit up? If it is your leg or pelvis or low back they will probably put you in legs first. If it is your skull, neck or upper spine they would probably put you in head first. The former may seem easier than the
latter if you are claustrophobic--you may be able to see the entrance to the tube which is open so you don't seem so far in. if it is say above your knee, they won't even put you in at all, rather putting a "coil" around your knee.
I once had an MRI done with "virtual reality" where they gave me headphones and weird glasses to watch a TV located outside the MRI past my feet. I watched how to make Thai Chicken Pizza on a PBS station while the scan was done.
If you can, imagine your favorite place and sing to yourself.
Aloha!
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10-29-2009, 12:14 AM
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#12
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Senior Member
Join Date: Apr 2007
Location: LA LA Land
Posts: 1,607
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How to survive and MRI
#1. Take some ativan.
#2. Tell yourself, just like an actor with anxiety before a performance...you're gonna go out there, and you're gonna come back in. For you, you're gonna go in and then you'll be out before you know it.
It is a tube, but it's not so much a tight space feeling. With an MRI, there is a banging and vibrating noise. I find it very unpleasant. My MRI's are always for my brain. So I have to wear this stupid cage on my head. You won't have that added gear. They also keep a fan on, so it's not stuffy or hot - and they talk to you the whole time. And there is a emergency squeeze ball, so if you are freaking out you can squeeze it and it will shut down the machine. The whole thing will be over in less than an hour. No special diet required.
#3. Take your best friend and she can sit and hold on to your foot. Then you will not feel so alone.
#4. Don't wear any metal and then you won't have to change into a gown.
OK - those are all my best tricks
Flori
__________________
1996 cancer WTF?! 1.3 cm lumpectomy Er/Pr neg. Her2+ (20nodes NEGATIVE) did CMF + rads. NED.
2002 recurrence. Bilateral mastectomy w/TFL autologous recon. Then ACx2. Skin lymphatic rash. Taxotere w/Herceptin x4. Herceptin/Xeloda. Finally stops spreading.
2003 - Back to surgery, remove skin mets, and will have surgery one week later when pathology can confirm margins.
‘03 latisimus dorsi flap to remove skin mets. CLEAN MARGINS. Continue single agent Herceptin thru 4/04. NED.
‘04 '05 & 06 tiny recurrences - scar line. surgery to cut out. NED each time.
1/2006 Rads again, to scar line. NED.
3/07 Heartbreaking news - mets! lungs.sternum. Try Tykerb/Xeloda. Tykerb/Carbo/Gemzar. Switch Oncs.
12/07 Herceptin.Tykerb. Markers go stable.
2/8/08 gamma knife 13mm stupid brain met.
3/08 Herceptin/tykerb/avastin/zometa.
3/09 brain NED. Lungs STABLE.
4/09 attack sternum (10 daysPHOTONS.5 days ELECTRONS)
9/09 MARKERS normal!
3/10 PET/CT=manubrium intensely metabolically active but stable. NEDhead.
Wash out 5/10 for tdm1 but 6/10 CT STABLE, PET improving. Markers normal. Brain NED. Resume just Herceptin plus ZOMETA
Dec 2010 Brain NED, lungs/sternum stable. markers normal.
MAR 2011 stop Herceptin/allergy! Go back on Tykerb and switch to Xgeva.
May-Aug 2011 Tykerb Herceptin Xgeva.
Sept 2011 Tykerb, Herceptin, Zometa, Avastin.
April 2012 sketchy drug trial in NYC. 6 weeks later I’m NED!
OCT 2012 PET/CT shows a bunch of freakin’ progression. Back to LA and Herceptin.avastin.zometa.
12/20/12 add in PERJETA!
March 2013 – 5 YEARS POST continue HAPZ
APRIL 2013 - 6 yrs stage 4. "FAILED" PETscan on 4/2/13
May 2013: rePetted - improvement in lungs, left adrenal stable, right 6th rib inactive, (must be PERJETA avastin) sternum and L1 fruckin'worsen. Drop zometa. ADD Xgeva. Doc says get rads consultant for L1 and possible biopsy of L1. I say, no thanks, doc. Lets see what xgeva brings to the table first. It's summer.
June-August 2013HAPX Herceptin Avastin Perjeta xgeva.
Sept - now - on chemo hold for calming tummy we hope. Markers stable for 2 months.
Nov 2013 - Herceptin-Perjeta-Avastin-Xgeva (collageneous colitis, which explains tummy probs, added Entocort)
December '13 BRAIN MRI ned in da head.
Jan 2014: CONTINUING on HAPX…
FEB 2014 PetCT clinical “impression”: 1. newbie nodule - SUV 1.5 right apical nodule, mildly hypermetabolic “suggestive” of worsening neoplastic lesion. 2. moderate worsening of the sternum – SUV 5.6 from 3.8
3. increasing sclerosis & decreasing activity of L1 met “suggests” mild healing. (SUV 9.4 v 12.1 in May ‘13)
4. scattered lung nodules, up to 5mm in size = stable, no increased activity
5. other small scattered sclerotic lesions, one in right iliac and one in thoracic vertebral body similar in appearance to L1 without PET activity and not clearly pathologic
APRIL 2014 - 6 YRS POST GAMMA ZAP, 7 YRS MBC & 18 YEARS FROM ORIGINAL DX!
October 2014: hold avastin, continue HPX
Feb 2015 Cancer you lost. NEDHEAD 7 years post gamma zap miracle, 8 years ST4, +19 yrs original diagnosis.
Continue HPX. Adding back Avastin
Nov 2015 pet/ct is mixed result. L1 SUV is worse. Continue Herceptin/avastin/xgeva. Might revisit Perjeta for L1. Meantime going for rads consult for L1
December 2015 - brain stable. Continue Herceptin, Perjeta, Avastin and xgeva.
Jan 2016: 5 days, 20 grays, Rads to L1 and continue on HAPX. I’m trying to "save" TDM1 for next line. Hope the rads work to quiet L1. Sciatic pain extraordinaire :((
Markers drop post rads.
2/24/16 HAP plus X - markers are down
SCIATIC PAIN DEAL BREAKER.
3/23/16 Laminectomy w/coflex implant L4/5. NO MORE SCIATIC PAIN!!! Healing.
APRIL 2016 - 9 YRS MBC
July 2016 - continue HAP plus Xgeva.
DEC 2016 - PETCT: mets to sternum, lungs, L1 still about the same in size and PET activity. Markers not bad. Not making changes if I don't need to. Herceptin/Perjeta/Avastin/Xgeva
APRIL 2017 10 YEARS MBC
December 2017 - Progression - gonna switch it up
FEB 2018 - Kadcyla 3 cycles ---->progression :(
MAY30th - bronchoscopy, w/foundation1 - her2 enriched
Aug 27, 2018 - start clinical trial ZW25
JAN 2019 - ZW25 seems to be keeping me stable
APRIL 2019 - ONE DOZEN YEARS LIVING METASTATIC
MAY 2019 - progression back on herceptin add xeloda
JUNE 2019 - "6 mos average survival" LMD & CNS new single brain met - one zap during 5 days true beam SBRT to cord met
10/30/19 - stable brain and cord. progression lungs and bones. washing out. applying for ds8201a w nivolumab. hope they take me.
12/27/19 - begin ds8401a w nivolumab. after 2nd cycle nodes melt away. after 3rd cycle chest scan shows Improvement, brain MRI shows improvement, resolved areas & nothing new. switch to plain ENHERTU. after 4th cycle, PETscan shows mostly resolved or improved results. Markers near normal. I'm stunned but grateful.
10/26/20 - June 2021 Tucatinib/xeloda/herceptin - stable ish.
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10-29-2009, 04:01 AM
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#13
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Re: Would appreciate any help or advice
Hey! I'm sorry you have to fight the MRI dragon, but You will win! I hate the thing too. Close my eyes as I lay down on the table and don't open them again til done. Every part I hate, closeness, noise, being still, etc ...when it starts I tell it I'm in charge today because I'm winning this battle! I always think about the young people (they all seem so young to me) running the machine and how nice they are trying to be. I think about the great information being provided to my onc to help me get better, stay better, etc.
I start at my toes and direct my body to relax. Start with my breathing...."with every breath I take, I relax deeper and deeper." "Toes it's time to take a nap. We're enjoying the sunshine and breezes of this beautiful beach and it's time to relax. Feet.....etc. I go to the tip of my head, one little bit at a time. by the time I get to my chest or so, I'm relaxed and imagining good things.
I just never open my eyes....if I don't open my eyes, I win!
Best wishes for the battle. You will win!
ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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10-29-2009, 04:03 AM
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#14
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Would appreciate any help or advice
Thank you, thank you all for such wonderful tips and advice which I'll be sure to follow
Lani, the area was mid thoraic so half way down my back, I don't feel quite so scared having read your replies and knowing what to expect.
Of course the results are the next worry but I'll deal with that when and if the news is bad. You're all wonderful, and thank you again
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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10-29-2009, 06:57 AM
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#15
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Re: Would appreciate any help or advice
Good luck Tricia - it could be many things... ended up being bursitis in my hips when I had a scan a few years ago (this was before BC).
Keep us posted, I'm betting on the luck of the Irish for you...
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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10-29-2009, 09:26 AM
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#16
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: Would appreciate any help or advice
Tricia,
Sorry you have to go through the procedure. I always repeat one phase over and over while I am dong the procedure.
Are they going to do a PET too?
Amelia
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10-29-2009, 10:47 AM
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#17
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Would appreciate any help or advice
I hope so Caya and thanks for your good wishes!
Amelia, thanks for replying and so far the Dr just mentioned the MRI...I'll keep you posted but it's going to take a couple of weeks arranging it so won't have any answers too quickly unfortunatly.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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10-29-2009, 11:06 AM
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#18
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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Re: Would appreciate any help or advice
Amelia, for a moment I thought that the phrase you repeated over and over was "Are they going to do a PET, too?"
Whatever works! lol
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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10-29-2009, 01:07 PM
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#19
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Senior Member
Join Date: Apr 2009
Location: La Quinta, Ca
Posts: 253
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Re: Would appreciate any help or advice
Claustrophobia was a big issue for me but Valium has been the trick to get through this test. They give me 5 mg when I arrive. Good luck--I hope you get a clean report.
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10-29-2009, 02:22 PM
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#20
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Would appreciate any help or advice
Thank you Nancy!
Bonnie lol, thanks for the laugh...maybe if I remember this and try it it may make me smile rather than cringe
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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