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Re: 5 year's out from stage 3 Her2 pos 35 pos nodes
Hi Joan,
I have been off my computer the past few days working in camellias. My husband and I show and judge blooms and we have a show coming up this weekend. I just looked at my email tonight.
In October I just completed the vaccine trial 'lizbeth told you about. I am so happy I was able to do it. I traveled from south Georgia and it was worth every mile. I had 21 positive nodes and had a double mastectomy at the beginning. That is a great incentive to try and get a little extra treatment. What I liked about this trial is they are looking at two vaccines. The main criterior is that you are three months past Herceptin.
I went to Wake Forest Medical Center in Winston-Salem and absolutly love the study nurse, Robin Petro. The number posted on the study site is her direct number. She is a delight to talk to and will help you in any way she can to get into the strudy. I would advise you to call her tomorrow.
Good luck and please feel free to pm me if you like.
Sandra
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Diagnosed: 7/25/08 ~ age 63, no family history
Surgery: 8/14/08 Bilateral mastectomy; tumor left breast, node dissection; right prophylactic with expanders: 1/12/10 latisimuss dorsi flap on left side: 9/22/10 implants in
Pathology Report: ER/PR-; HER2+ (3+); Grade 3, StageIII; 3cm tumor plus 21/21 lymph nodes positive; 5cm DCIS
Chemo: A/C; Taxol/Herceptin/Tykerb; phase II study at Mayo adding Tykerb for early stage
Radiation: 25 rads
Vaccine: Walter Reed GP2/AE37 vaccine study ~ last booster 9/17/2012
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