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I love being unique... Usually :-)
Hi my friends
I had my first scan post changing from carboplatin, perjeta and herceptin to abraxane, herceptin and perjeta this week. My scan results are a mixed bag and we don't know what is going on. The large lung masses have responded dramatically well (yeah for me) ...but there are nodules at the bottom on my lungs growing and lymph nodes growing - neck, mediastinum and probably armpit. I've felt the one in my neck for a couple of weeks - no pain but suspicious. I thought the tightness and tingling that I am experiencing in my left arm issue was surgery related but my oncologist can feel a node high in my armpit.
So... I am having a biopsy of the neck node on Thursday and an ultrasound of my armpit.
Could be I have two clones of cancer happening but usually seen in different organs not the same organ (I've bad mixed responses before but nothing so dramatic as how mixed this is),I could have sarcoidosis and cancer, could have lymphoma and breast cancer. Maybe it's viral... My onc and r
adiation onc are perplexed and Hubby thought she was very concerned.
My cough is not gone but vastly improved. My tumor markers continue to decline (140's to 86 in two cycles and still dropping)
Don't know what to make of it all. It seems I am very special!
I am going with how I feel and that is really good.
Does anyone have any similar experience or stories to share?
A xx
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Amanda xx
40 year old Mum to three gorgeous kids - son 5 and daughters 8 and 11
Wife to my wonderfully supportive husband of 17 years!
22 February 2011 - Diagnosed Early Breast Cancer IDBC Stage2b (ER/PR -ve, Her2+ve +++) - 38 years old
(L) skin sparing mastectomy with tissue expander, axilla clearance (2/14 affected) clear margins.
Fec*3, Taxotere and herceptin*2 - stopped due to secondary diagnosis
June 24 2011 Stage IV - Skin met, axilla node, multiple lung lesions
Bolero3 trial - Navelbine, Hereptin weekly, daily Everolimus/Placebo
February 2012 - July 2012 Tykerb and Xeloda - skin mets resolved, Lungs initially dramatically reduced but growing again
August 2012 (turn 40!) tykerb and herceptin (denied compassionate use of TDM1) while holidaying in Italy!
September 2012 - January 2013 TDM1 as part of the Th3resa trial - lymph nodes resolved, lungs slowly progressing.
January 2013 - herceptin, carboplatin and Perjeta (compassionate access)
April 2013 - Some progression in lungs and lymph nodes - Abraxane, Herceptin and Perjeta
July 2013 - mixed response - dramatic reduction of most lung disease, progression of smaller lung nodules and cervical and hilar nodes - ? Add avastin.
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