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Old 09-10-2006, 04:57 AM   #1
dawn
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Join Date: Jul 2006
Location: Newfoundland, Canada
Posts: 153
Frightened again

Hi,

Im finished my chemo for about a month now. I've been to see my oncs. Everything is looking good. I go on Wednesday to set up for my rads. I'll have to get 25. Wednesday I also begin talking tamoxifen and after rads I begin Herceptin. But this week has been so hard. My 5 year old son has started school and I just cant help wondering what the future holds and how much of it I will be involved in. I've been trying to shake it for a couple of days but I just cant get rid of that feeling. Is this normal, will it pass?
The other thing thats happening, my fingers and lower arms are numb in the morning with pins and needles. It takes awhile for them to wake up and return to normal. I keep thinking there's something wrong, maybe I should just go and get it checked. IF I cough, I think here we go, is there any suggestions on how to get rid of these thoughts and try to have some kind of normalacy or is that asking for too much. Any thoughts or suggestions would be great.

Dawn
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Dawn

Mar 2006Stage IIIA, Her2/Neu 3+++, Er & Pr positive, 8 of 18 pos 03/14/06: Mastectomy 04/19/06 started Chemo adriamycin, chlophosphamide, taxotere 25 rads
Nov 1, 06: 3 years Tamoxifen, Herceptin (1yr)
Jan 2009 Femara mets to bone aromasin and aredia
June2009: Full Histerectomy
2/22/2010 6 spots in liver 2 mm-10 mm: switched to xeloda and Herceptin will continue with Aredia J
Scan February 2011 new onc, switch to abraxane
April 2011 NED clear organs, 3 spots on bone scar tissue.
Scans August 2mm spot on liver and lungs. now on to tykerb/xeloda
Dec 2011 scans nothing on lungs, liver down to 1 2 mm spot. j
une 2012 another spot on liver on to cisplatin/gemzar.


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Old 09-10-2006, 05:22 AM   #2
tousled1
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Location: Acworth, GA
Posts: 2,104
Dawn,

We all feel very vunerable and wonder what the future holds for us. It's probably the hardest thing to do - not look ahead and wonder. I can't tell you what to do but I try, and that's exactly what I mean try, to just keep focused on the now. As for the tingling/numbness -- I had the same thing when I was on Taxatore. Sorry to say that I still have the tingling/numbness.
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 09-10-2006, 06:27 AM   #3
Cathya
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Location: Ontario, Canada
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Dawn;

I remember so many times feeling just as you do....more earlier on than now so it seems we get used to our new lives. When I went for my last herceptin treatment I was put in the same chair (near the door) as I had during my very first chemo treatment. I remember how very difficult it was for me to just go through the door the first time but now I am very relaxed and unaffected by it all. Whenever I felt the way you do right now I had a friend I met at one of the support groups who I would call. She wasn't a close friend but somehow she was able to calm me down and get me re-focued on today. Perhaps you have someone like that....or perhaps we can do this for you. We don't know what the future holds but right now your tests are good so do try to relax and enjoy your life.

Cathy
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Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18


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