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Old 10-11-2010, 02:44 PM   #1
ginnyg898
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Join Date: Sep 2010
Location: Northern California
Posts: 64
Angry Advice on work situation

Hi All:

I wanted to get some feedback on the situation I find myself in with my employer. I work for a large legal documentation firm and I was very forthcoming when I was diagnosed with BC. At first, my boss was very sympathetic and said she would do anything possible to make life easy for me while I get through treatment. She offered a flexible schedule, working from home during treatment weeks, etc. However, in the 8 weeks since diagnosis she has made it clear that she is NOT happy with my absences due to tests/treatment; she picks at me about my absences rather frequently. She has refused any kind of work-from-home arrangement, and has basically said I need to 'step up' and work harder. Now that I have started chemo some days are really tough and the option to work from home would be a huge help physically. I recently spoke to the recruiter that placed me in my job and she suggested I revisit the conversation regarding flexible hours and call her if it does not help. I did...and it did not

Has anyone dealt with this kind of situation? I dont want to go on disability; I dont think I need to...but I also find myself completely stressed out about this situation. If I could afford to be home I sure would, but also not an option.

Any advice would be greatly appreciated.
__________________
41 Years Old
Dx w/IDC in August '10
No family history
ER+/PR-/HER2+
2.2cm tumor/Stage 2A
No node involvement
Tested negative for BRCA 1/2
Participated in a UCLA clinical trial testing TCH and/or Lapatinib in stage 1/2/3 bc patients that can be removed by surgery.
Underwent neo-adjuvant therapy to shrink tumor prior to surgery.
1st Surgery date: 2/16/11
Pathology report indicated ADH/DCIS in margin.
2nd Surgery: 3/21/11
Clean margins!
Started radiation: 4/11/11
Completed radiation: 7/8/11
1st post-surgical mammogram: 8/16/11 - CLEAR!
6 Weeks of Tamoxifen - Failure to Respond
Started Lupron/Arimidex: 8/29/11
Herceptin until September '11

Recurrence - August 2018
Same profile - ER+/PR-/HER2+
Undergoing neo-adjuvant therapy prior to surgery;
Gemzar, Carboplatin, Herceptin & Perjeta
Chemo through the end of 2018...
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Old 10-11-2010, 03:33 PM   #2
chrisy
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Re: Advice on work situation

Hi Ginny,

Sorry you are dealing with this. Sometimes I forget how blessed I was/am to have an employer who truly does support me.

I see you are in California, so it would seem you have some options. There is State Disability and paid family leave - both of which are funded through payroll taxes. You probably have some legal protections, you need to find out what they are.

I'm not sure what your exact employment situation is, nor am I a labor attorney so you should probably just take this as "questions to ask"

There are 2 categories of information you need. The first is, what are your legal rights, and what is your employer required to do.

The second is, what is your employer willing to do to accomodate your needs given that this is a temporary situation. I live on both sides of this relationship and the reality is your employer may be sincere in WANTING to support you - but the reality is it is not easy. For you or them. But it can be worked out if both parties have the will.

Does your company have an HR department you could speak to about what the company policy is and what you would qualify for? How do they handle, say, a pregnancy leave?

For my company which is a small employer (and for me as a manager) it's important to have as much consistency as possible. If someone needs to take a month or 2 off, then I know I may need to bring in temp help. If someone needs to take every monday off for treatment, at least I know what to expect and can work around it. Assuming you want to continue with this employer (which might depend on how they treat you!), find out what they need and what reasonable accomodations they can make.

I know this may not be that helpful, just wanted you to know you are not alone.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 10-11-2010, 03:51 PM   #3
ginnyg898
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Re: Advice on work situation

Hi Chrisy: My boss IS the Director of HR

Unfortunately I am not eligible for FMLA since I have not been in my position for a year. I spoke briefly with my Oncologist who expressed surprise that my management was not being more supportive and offered to write a letter outlining my 'legal rights'. It seemed a bit combatitive so I am not going that route yet.
__________________
41 Years Old
Dx w/IDC in August '10
No family history
ER+/PR-/HER2+
2.2cm tumor/Stage 2A
No node involvement
Tested negative for BRCA 1/2
Participated in a UCLA clinical trial testing TCH and/or Lapatinib in stage 1/2/3 bc patients that can be removed by surgery.
Underwent neo-adjuvant therapy to shrink tumor prior to surgery.
1st Surgery date: 2/16/11
Pathology report indicated ADH/DCIS in margin.
2nd Surgery: 3/21/11
Clean margins!
Started radiation: 4/11/11
Completed radiation: 7/8/11
1st post-surgical mammogram: 8/16/11 - CLEAR!
6 Weeks of Tamoxifen - Failure to Respond
Started Lupron/Arimidex: 8/29/11
Herceptin until September '11

Recurrence - August 2018
Same profile - ER+/PR-/HER2+
Undergoing neo-adjuvant therapy prior to surgery;
Gemzar, Carboplatin, Herceptin & Perjeta
Chemo through the end of 2018...
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Old 10-11-2010, 04:42 PM   #4
PatriceH
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Re: Advice on work situation

I would look into legal protections. The American Cancer Society has a plethera of information. There are probably some free advocacy services. California is a very employee-friendly state. At the minimum, Cancer is a disability, and an employer needs to make reasonable accommodation. Best of luck. We're here for you!
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Old 10-11-2010, 05:12 PM   #5
jellybean
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Re: Advice on work situation

Could you try scheduling chemo so as to minimize the time off from work? For example, I had TCH weekly on Thursdays, and so I was out on Thursday and Friday, but in on other days. (I actually could have worked on Friday, but everyone expected me to be out. In fact, people were surprised to see me at all.)

How about partial disability? I know that the State of California pays for that, as do some disability insurance programs.

I am surprised and sorry that your boss isn't more accomodating.
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Old 10-11-2010, 06:43 PM   #6
PatriceH
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Re: Advice on work situation

I also had treatment on Thursday and worked on Friday - people were amazed...but truthfully, I think it was the steroids that had me pumped up...But I usually was back at work on Monday.
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Old 10-11-2010, 08:04 PM   #7
hutchibk
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Re: Advice on work situation

I was just at a presentation tonight at Livestrong about their new patient navigation center here in Austin...

You need to call tomorrow and talk to either Stacey or Ashley who are the intake counselors... tell them you are having employment issues and they will put you in touch with an advocate at the PAF/Patient Advocate Foundation who can work with you on resolving this. Employer problems are one of their services.

You don't have to live in Austin, their services are for folks all around the country and the world, and they do mostly phone consultation at this time...

http://www.livestrong.org/Get-Help/G...On-One-Support
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."

Last edited by hutchibk; 10-11-2010 at 08:07 PM..
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Old 10-11-2010, 09:34 PM   #8
Jackie07
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Location: "Love never fails."
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Re: Advice on work situation

Whatever the situation, do not 'resign'.

Doctors are used to writing such letters on their patients behalf. When my boss asked me for a letter from my neurosurgeon after I had been back for about a week, my doctor wrote a 'prescription' stating that I should work 2 hours a day the first week, 4 hours a day second week... 'depending on her strength...'
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

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Last edited by Jackie07; 10-11-2010 at 09:41 PM..
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Old 10-12-2010, 10:13 AM   #9
ginnyg898
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Join Date: Sep 2010
Location: Northern California
Posts: 64
Re: Advice on work situation

Thank you all for the amazing advice!
__________________
41 Years Old
Dx w/IDC in August '10
No family history
ER+/PR-/HER2+
2.2cm tumor/Stage 2A
No node involvement
Tested negative for BRCA 1/2
Participated in a UCLA clinical trial testing TCH and/or Lapatinib in stage 1/2/3 bc patients that can be removed by surgery.
Underwent neo-adjuvant therapy to shrink tumor prior to surgery.
1st Surgery date: 2/16/11
Pathology report indicated ADH/DCIS in margin.
2nd Surgery: 3/21/11
Clean margins!
Started radiation: 4/11/11
Completed radiation: 7/8/11
1st post-surgical mammogram: 8/16/11 - CLEAR!
6 Weeks of Tamoxifen - Failure to Respond
Started Lupron/Arimidex: 8/29/11
Herceptin until September '11

Recurrence - August 2018
Same profile - ER+/PR-/HER2+
Undergoing neo-adjuvant therapy prior to surgery;
Gemzar, Carboplatin, Herceptin & Perjeta
Chemo through the end of 2018...
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Old 11-02-2010, 01:31 PM   #10
ginnyg898
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Join Date: Sep 2010
Location: Northern California
Posts: 64
Re: Advice on work situation

Hi All: Just as a follow up...

My Oncologist wrote my employer a letter stating that my current diagnosis is, in his opinion, temporary and he expressed that I will need no further treatment after this course of treatment ends. He asked that I be provided reasonable accomodations as well. I gave the letter to my boss; she ignored it.

She has said that I need to work harder or she will start considering that I may have 'performance issues' (yes, she did! ) Also said that if I am too sick to work I need to stay home, yet if I have too many more absences they will need to consider what is 'best for the company'. It is becoming fairly obvious that, in light of my diagnosis, she has pretty much given up on me.

Bad situation, but just trying to keep afloat amongst the stress and hope that this turns around.

Thank you all for giving me an outlet to vent.
__________________
41 Years Old
Dx w/IDC in August '10
No family history
ER+/PR-/HER2+
2.2cm tumor/Stage 2A
No node involvement
Tested negative for BRCA 1/2
Participated in a UCLA clinical trial testing TCH and/or Lapatinib in stage 1/2/3 bc patients that can be removed by surgery.
Underwent neo-adjuvant therapy to shrink tumor prior to surgery.
1st Surgery date: 2/16/11
Pathology report indicated ADH/DCIS in margin.
2nd Surgery: 3/21/11
Clean margins!
Started radiation: 4/11/11
Completed radiation: 7/8/11
1st post-surgical mammogram: 8/16/11 - CLEAR!
6 Weeks of Tamoxifen - Failure to Respond
Started Lupron/Arimidex: 8/29/11
Herceptin until September '11

Recurrence - August 2018
Same profile - ER+/PR-/HER2+
Undergoing neo-adjuvant therapy prior to surgery;
Gemzar, Carboplatin, Herceptin & Perjeta
Chemo through the end of 2018...
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Old 11-02-2010, 02:34 PM   #11
KDR
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Posts: 1,580
Re: Advice on work situation

Hi,
My first impression of your situation is: anger...that a woman (one in power at that) could be so calloused toward another, for one, and two, treating an employee so insensitively. Let's forget about the feelings here, and get to the business of it. Consult with a labor attorney, know your rights and exercise them.
__________________
World Trade Center Survivor (56th Floor/North Tower): 14 years and still just like yesterday.
Graves Disease, became Euthyroid via Radioactive Iodine, June 2001.
Thyroid Eye Disease. 2003. Decompression surgery in 2009; eyelid lowering surgery in 2010.
Diagnosed: June 2010, liver mets. ER-/PR+10%; HER2+++.
July 2010: Begin Taxol/Herceptin. Eliminate sugar from diet. No surgery or radiation.
January 2011: NED
April 2011: Progression in liver only. Other previous affected areas eradicated. Stop Taxol/Herceptin after 32 infusions.
May 2011: Brain MRI: clear.
May 2011: Begin Tykerb daily, Xeloda twice per day for one week on, one week off, and Herceptin.
November 2011: Progression in liver. All other tumors remain eradicated.
December 2011: BEGIN TRIAL #09-093 Taxol, MCC-DM1 (T-DM1), Perjeta.
Trial requires scans every six weeks, bloodwork and infusions weekly.
Brain MRI: clear.
January 2012: NED. Liver mets, good riddance!
March 2012: NED. Developed SMA (rare blood clot) in intestinal artery and loss of sight in right eye due to optical nerve neuropathy. Resolved when Taxol removed this month.
Continue Protocol of T-DM1 weekly and Perjeta every 3 weeks.
May 2012: NED.
June 2012: Brain MRI: clear.
June-December 2012: NED.
December 2012: TRIAL CONCLUDED; ENTER TRIAL EXTENSION #09-037. CT, Brain MRI, bone scan: clear. NED.
January-March 2013: NED.
June 2013: Brain MRI: clear. CEA upticking; CT shows new met on liver.
July 3, 2013: DISASTER STRIKES during liver ablation: sloppy surgeon cuts intercostal artery and I bleed out, lose 3.5 liters of blood, have major hemothorax, and collapsed lung requiring emergency resuscitative thoracotomy, lung surgery, rib rearrangement and cutting deep connective tissue, transfusion. Ablation incomplete. This life-saving procedure would end up causing me unforgiving pain with every movement I make, permanently, otherwise known as forever.
July 26, 2013: Try Navelbine/Herceptin. Body too weak after surgery and transfusion. Fever. CEA: Normal.
August 16, 2016: second dose Navelbine/Herceptin; CEA: Normal. Will skip doses. Watching and waiting.
September 2013: NED, Herceptin only. CEA: Normal. Started Arimidex.
October-November 2013: NED. Herceptin and Arimidex. CEA, CA125, 15-3: Normal.
December 2013: Something brewing. PET lights up on little spot on liver; CEA upward trend, just outside normal. PET and triphasic liver scan confirm Little Met. Restart Perjeta with Herceptin, stay on Arimidex. Genomic sequencing completed for future treatments, if necessary.
January 2014: Ablate Little Met on the 6th. Happy New Year.
March 2014: Brain MRI: clear. PET/CT reveal liver mets return; new lung mets. This is not funny.
March 2014: BEGIN TRIAL #10-005 A(11)-Temsirolimus plus Neratinib.
April 2014: Genomic testing indicated they could work, they did not. Very strange drug combo for me, felt weird.
April 2014: Started Navelbine and Herceptin. Needed something tried and true, but had significant progression.
June 2014: Doxil and Herceptin.
July 2014: Progression. Got nothing out of it. Brain: NED.
July 2014: Add integrative medical hematologist-oncologist to my team. Begin supplements. These are tumor-busting, immune system boosters. Add glutathione, lysine and taurine IV infusions every three weeks.
July 2014: Begin Gemzar, Herceptin & Perjeta. Happy.
August 2014: ECHO perfect.
January 2015: Begin weekly Vitamin D Analog infusions. 25 mcg. via port.
February 2015: CT: stable.
April 2015: Gem working, but not 100%. Looking into immunotherapy. Finally, treatments for the 21st century!
April 2015: Penn Medicine. Dendritic cell immunotherapy.
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Old 11-02-2010, 06:47 PM   #12
candlegranny
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Posts: 151
Re: Advice on work situation

i would go for disability and I would call Amercian Cancer Society to find out any avenues of rights you have. This lady you work for has to have a boss. Tell her you want to see her higher up. Sounds like she is just out to get you. You need to find any and all protection available to you quickly.
__________________
Mammogram Sep 21, 2009 everything good and clear
DX jan 19,2010 Invasive Ductal Carcinoma, Grade 2 Age 56
modified radical masectomy on LEFT side 29 Jan 2010
2.7 cm 18/31 nodes
mets to just above collar bone ( 2 nodes showed in PET)
ER- PR - / Her2 +++ (IHC) Stage 111 C
ki-67 60% nottingham score 7
A/C chemo mar 22,2010 DD
herceptin & taxotere DD june 1,2010
finished taxotere july 12, 2010
finished herceptin 16 May 2011
PET Scan 9 Aug 10, cancer in neck is gone! NED
33 Rads completed 1 Oct 2010
PET/CT Scan 6 Jan 2011 NED
PET/CT Scan 3 Aug 2011
MUGA 59% 3/22/10 -63% 9/23/10 - 51% 1/4/11 - 55% 2/17/11 - 50% 8/3/11
26 Aug 2011 NED
20 Feb 2012 NED
5 Mar 2012 PORT OUT
12 July 2012 DIEP breast reconstruction
23 Aug 2012 NED
15 Nov 2012 new breast tweeked and natural breast uplifted and implant added
17 Feb 2013 NED
27 mar 2013 lipo suction to add fat cells to new breast in hopes for needed adjustment.


"Don't spend your time worrying about when or how you are going to die, spend your time figuring out how you are going to live today". ~Elizabeth Edwards.
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Old 11-02-2010, 07:18 PM   #13
'lizbeth
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Location: Sunny San Diego
Posts: 2,214
Re: Advice on work situation

Document everything that happens and that is said in detail. I'm so sorry that you have this extra stress. Being diagnosed and treated for cancer is tough enough!
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes

Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"

Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla

Reconstruction: TRAM flap, partial loss, Revision

The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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Old 11-03-2010, 02:45 PM   #14
hutchibk
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Re: Advice on work situation

Some people choose to devote all their energy to healing, while others find that working provides a good distraction. Of course, it all depends on how you're feeling. If you decide to take time off during the course of your treatment, remember that the Family and Medical Leave Act (U.S.) allows most workers 12 weeks of leave each year, due to, among other things, a serious illness. You cannot lose your job because of your absence. An employee need not take the leave all at once. If necessary he or she may take leave in weeks, days, or even hours. This leave can even include a shortened work week. The FMLA does not provide for paid leave. However, you may be covered by private disability insurance, which will allow you to be paid during your absence from work.

You cannot be discriminated against because of your illness. Most employees are protected by the Americans With Disabilities Act (ADA). Cancer is considered a disability for the purposes of this law. This means that your employer can't treat you any differently than other employees of the company and must make reasonable accommodations if necessary.

http://careerplanning.about.com/cs/l...s/a/cancer.htm

CLICK THIS LINK AND CALL SOME OF THE FOLKS LISTED. YOU HAVE RIGHTS AND YOUR EMPLOYER IS IN THE WRONG HERE. DON'T LEAVE IT AS IS, WITH ONLY A LETTER FROM YOUR DOC.
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 11-03-2010, 03:09 PM   #15
ginnyg898
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Join Date: Sep 2010
Location: Northern California
Posts: 64
Re: Advice on work situation

@hutchibk: Unfortunately, I am not covered under FMLA because I have not been at my job a full year

I was referred to a labor attorney this week and we have a call scheduled for tomorrow to discuss the specifics.

Thanks again to all for your support...
__________________
41 Years Old
Dx w/IDC in August '10
No family history
ER+/PR-/HER2+
2.2cm tumor/Stage 2A
No node involvement
Tested negative for BRCA 1/2
Participated in a UCLA clinical trial testing TCH and/or Lapatinib in stage 1/2/3 bc patients that can be removed by surgery.
Underwent neo-adjuvant therapy to shrink tumor prior to surgery.
1st Surgery date: 2/16/11
Pathology report indicated ADH/DCIS in margin.
2nd Surgery: 3/21/11
Clean margins!
Started radiation: 4/11/11
Completed radiation: 7/8/11
1st post-surgical mammogram: 8/16/11 - CLEAR!
6 Weeks of Tamoxifen - Failure to Respond
Started Lupron/Arimidex: 8/29/11
Herceptin until September '11

Recurrence - August 2018
Same profile - ER+/PR-/HER2+
Undergoing neo-adjuvant therapy prior to surgery;
Gemzar, Carboplatin, Herceptin & Perjeta
Chemo through the end of 2018...
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Old 11-04-2010, 01:05 PM   #16
Cal-Gal
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Posts: 309
Re: Advice on work situation

Hi Ginny--

ALMOST THE EXACT SITUATION HAPPENED TO ME---

I live in California and that made no difference!

I had started a new job and was diagnosed very soon thereafter--

At first all was well--but after about a month and right before my surgery things got nasty all the same stuff you are dealing with--

They ended up letting me go (firing me basically)right before my 3rd chemo treatment --(I had 6)---the official reason was
'change in management'

BUT they did the exact same thing--said I wasnt performing etc---

I WAS SO STRESSED OUT--I am single and I moved in with my daughter during treatment---

I did contact CLRC--Cancer Legal Resource Center--and basically they said that it is very difficult to bring a suit against and employer for this--because the official reason they let you go WILL NOT BE BECAUSE YOU HAVE CANCER---

I ended up going on unemployment---still on it---BTW all this happened in March of 2009---I also have COBRA at least for another two months---I am praying that I find a job soon!!!

In the end I felt that I probably was better off without this job and all the stress that it was causing--and just decided that everything happens for a reason--

I am finally feeling better finished my Herceptin a few months ago--

GOOD LUCK---Private message me if you have any other questions---
__________________
DX: 11/08 Age: 53
Surgery: 1/09
Bilat Mastectomy, no reconstruction
ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm
DCIS-11 cm
All tumors Grade 3
All tumors ER-0%/PR-0%
All tumors HER2+
IHC-all tumors Overexpression/borderline
FISH 2 tumors Her2-Negative
FISH 2 tumors Her2+ Equivocal
Stage I, 0/1 nodes
LVI-Indeterminate(treated as positive)
SPR Score 8/9
Ki-67 20%
BRCA genetic test 1/2=negative
Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta
Herceptin: 6/12/09-6/4/10 52weeks
HNPCC genetic test: negative
Port Placement-9/23/09 Port Removal 6/25/10
Echo's every 3 months-All normal
2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets--
6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged
1/10-PET/CT-uptake in nasopharynx-
1/10-MRI All normal
6/10-Bone Scan-clear
12/10-PET/CT-All Clear-NED
12/11-PET-All Clear-NED

12/12-PET-All Clear-NED
12/13-CT w/contrast Head, Torso-All Clear
12/14-CT w/contrast Head-All Clear
2/15-Core needle biopsy-R scar line

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Old 11-04-2010, 04:22 PM   #17
Jackie07
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Location: "Love never fails."
Posts: 5,808
Re: Advice on work situation

Be sure the legal counsel you get is 'pro bono' so you don't need to pay them if you didn't win the case. In the meanwhile, check with your state disability department and find out if you qualify for any of their programs.

Three of my five surgeries happened while I was working full-time. Every one of my employers tried to kick me out as soon as possible. However, by law, a person's (permanent)job is reserved for one year after a major medical procedure. Sounded like you are in a contracted out employment situation, so you really need to talk to the labor department/attorneys.
__________________
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
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NICU 4.4 LB
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3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
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"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

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Old 11-04-2010, 04:31 PM   #18
ginnyg898
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Join Date: Sep 2010
Location: Northern California
Posts: 64
Re: Advice on work situation

@Jackie07: I am actually a full time employee. I was unaware of the law regarding holding an employee's position for 1 year after a medical procedure...that is great information!

I had a phone consultation with a labor attorney this afternoon. He said that while still employed, there is little I can do but put up with the treatment being given. However, he did say that if I was terminated or forced out on disability to call him as he feels I would have a strong case. Thank goodness I am a stickler for documenting everything

Thanks again ladies for all the support and great information.

BTW: Bone Pain Really SUCKS!!!
__________________
41 Years Old
Dx w/IDC in August '10
No family history
ER+/PR-/HER2+
2.2cm tumor/Stage 2A
No node involvement
Tested negative for BRCA 1/2
Participated in a UCLA clinical trial testing TCH and/or Lapatinib in stage 1/2/3 bc patients that can be removed by surgery.
Underwent neo-adjuvant therapy to shrink tumor prior to surgery.
1st Surgery date: 2/16/11
Pathology report indicated ADH/DCIS in margin.
2nd Surgery: 3/21/11
Clean margins!
Started radiation: 4/11/11
Completed radiation: 7/8/11
1st post-surgical mammogram: 8/16/11 - CLEAR!
6 Weeks of Tamoxifen - Failure to Respond
Started Lupron/Arimidex: 8/29/11
Herceptin until September '11

Recurrence - August 2018
Same profile - ER+/PR-/HER2+
Undergoing neo-adjuvant therapy prior to surgery;
Gemzar, Carboplatin, Herceptin & Perjeta
Chemo through the end of 2018...
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Old 11-06-2010, 08:09 PM   #19
Catherine
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Join Date: Dec 2006
Location: Oregon
Posts: 715
Re: Advice on work situation

Ginny,

I do not know anything about labor law, but I wanted to share one similarity we have. I had chemo before surgery to shrink my tumors. It worked and my oncologist was very pleased. I am hoping that it will all work for you too. Very sorry about the mean boss and I hope you are able to keep or save your job. Treatment is a temporary situation for most of us. I, too, am shocked about the mean bosses out there. Glad that Hutch and others have given you good advice. Remember you have all of us behind you and with you.
__________________
Catherine


Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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Old 11-09-2010, 11:17 AM   #20
ginnyg898
Senior Member
 
Join Date: Sep 2010
Location: Northern California
Posts: 64
Re: Advice on work situation

@Catherine...thank you for the kind words

The boss is really making her unhappiness known. I was out at a dr's appt yesterday and she had the staff move my workstation and all of my things across the floor from the rest of my team. She is a real piece of work!
__________________
41 Years Old
Dx w/IDC in August '10
No family history
ER+/PR-/HER2+
2.2cm tumor/Stage 2A
No node involvement
Tested negative for BRCA 1/2
Participated in a UCLA clinical trial testing TCH and/or Lapatinib in stage 1/2/3 bc patients that can be removed by surgery.
Underwent neo-adjuvant therapy to shrink tumor prior to surgery.
1st Surgery date: 2/16/11
Pathology report indicated ADH/DCIS in margin.
2nd Surgery: 3/21/11
Clean margins!
Started radiation: 4/11/11
Completed radiation: 7/8/11
1st post-surgical mammogram: 8/16/11 - CLEAR!
6 Weeks of Tamoxifen - Failure to Respond
Started Lupron/Arimidex: 8/29/11
Herceptin until September '11

Recurrence - August 2018
Same profile - ER+/PR-/HER2+
Undergoing neo-adjuvant therapy prior to surgery;
Gemzar, Carboplatin, Herceptin & Perjeta
Chemo through the end of 2018...
ginnyg898 is offline   Reply With Quote
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