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Old 09-17-2015, 12:39 PM   #1
Johnwinn
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Join Date: Sep 2015
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Kadcyla/TDM1/Super Herceptin please sign our petition to the UK government

This is one of the drugs that has just been taken off the Cancer Drugs Fund list not because its ineffective but because of cost. This amazing drug targets HER2 cancer cells using Herceptin then uses a traditional chemo to kill them. Please sign our petition to reinstate this and all the other cancer killing drugs the government has just cut to save a minimal amount of money compared to the NHS overall budget, while they are happy to prioritise all sorts of arguable causes. https://petition.parliament.uk/petitions/107548
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Old 09-21-2015, 08:43 AM   #2
Juls
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Re: Kadcyla/TDM1/Super Herceptin please sign our petition to the UK government

Signed today.
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Old 09-21-2015, 11:55 AM   #3
tricia keegan
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Re: Kadcyla/TDM1/Super Herceptin please sign our petition to the UK government

Signed but had to give my friends postal code who lives in the U.K as it wouldn't accept mine.
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 09-21-2015, 12:51 PM   #4
Juls
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Re: Kadcyla/TDM1/Super Herceptin please sign our petition to the UK government

Hi Tricia
Lets hope it does some good & that others sign!
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Old 09-22-2015, 12:26 AM   #5
nancy dip
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Join Date: Jun 2007
Posts: 49
Re: Kadcyla/TDM1/Super Herceptin please sign our petition to the UK government

signed last night. Nancy
__________________
Found lump myself 8 months after routine mammogram.
29/11/06-WLE and then re-excision to get clear margins.
Tumour was 1.2cms; Grade3; Er+ Pr+ HER2 3+++; SNB negative out of 9 nodes.
Chemo was Epirubicin every 3wks x4 then Xeloda (2wks on, 1wk off) for 4 cycles. ( I am part of the TACT2 trial.)
Rads x25
Arimidex for 5 yrs.
Hoping to start Herceptin within the next 2 weeks (we have to follow the HERA protocol to qualify for Herceptin in the U.K.) I worry about the delay in starting Herceptin!! Started 8/10/07
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Old 09-22-2015, 05:12 AM   #6
sarah
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Re: Kadcyla/TDM1/Super Herceptin please sign our petition to the UK government

sent it to all my english friends, hope they sign.
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Old 09-22-2015, 11:50 AM   #7
tricia keegan
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Re: Kadcyla/TDM1/Super Herceptin please sign our petition to the UK government

I hope so Juls, I also posted it on a U.K cancer support site I moderate and really hope they get enough signatures.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 10-04-2015, 12:46 PM   #8
Juls
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Re: Kadcyla/TDM1/Super Herceptin please sign our petition to the UK government

Signed last month.
Just read Lani's post re this - Post title "from BBC news".
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Old 10-06-2015, 05:10 AM   #9
Juls
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Re: Kadcyla/TDM1/Super Herceptin please sign our petition to the UK government

Anyone else eligible to sign?
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