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Old 11-08-2009, 08:39 AM   #1
eric
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Hi all from Eric

Thinking of you! I'm sorry I haven't been able to be more involved but I'm still working very hard to manage the loss of Caryn for my kids and me. We miss her TERRIBLY but we're managing. My 17 year old (Jennifer) has really surprised me as she's become much more independent with school and college searches. My 14 year old (Zachary) is doing ok over all but he is acting out in subtle ways so I'm keeping a very close eye on him. As for me, I'm lucky that I have some really good people in my life but I guess only time will heal. I miss her all the time but some times more than others.
I hope each of you are doing well and, for each of you, I pray for a cure or major step in managing this crappy disease!!!
My love, thoughts, thanks and admiration...Eric
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Old 11-08-2009, 10:34 AM   #2
WomanofSteel
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Re: Hi all from Eric

Eric, so good to hear from you. I know it is hard, but I am glad that you are all hanging in there. It does take time. My thoughts and prayers are always with you and your family. It means a lot to know that you are thinking of all of us when you are going through something so difficult. God bless you. Jacquie
__________________
dx aug 03
invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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Old 11-08-2009, 10:53 AM   #3
caya
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Re: Hi all from Eric

Thanks for checking in Eric to let us know that you and the kids are holding up. I send good thoughts and wishes to all of you, as your memories of Caryn continue to help you through this difficult time.

all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 11-08-2009, 01:49 PM   #4
chrisy
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Re: Hi all from Eric

Hi Eric,
Thanks for checking in. Keep doing what you're doing - trying keep yourself and your kids moving forward, one step at a time. That is what Caryn would have wanted for you. Be patient and gentle with yourself.

Take care
Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 11-08-2009, 01:56 PM   #5
sally
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Re: Hi all from Eric

Hi Eric, Thank you so much for checking in. You were always a big inspiration and a great source of information when I was a newbie and clueless. Stay strong and enjoy. Sally
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Dx March 2004 HER2+ er/pr+ 8/16 + lymphnodes mets to the liver Stage IV / 6 cycles of TCH and 33 rads . NED Continued Herceptin 3 years w/ Femara. Tumor markers start to rise in Jan of 2007 and swiched to Tamoxifen. August of 2007 found more mets to liver and lymphnodes outside of liver. Went on Tykerb/Xeleoda--spots on liver gone found large mass between intestines. March 2008 started TCH. Stopped Carboplatin due to allergy. Still on Taxotere and Herceptin. Nov 2008 mass is gone. 3 new spot on liver and one on spine. Radiation on spine. tykerb/gemzar for liver mets. PET in April 09 showed shrinkage still a little activity, continue tykerb/gemzar until Aug 09. PET showed new spot on my spine more on my liver and a bunch of enlarged lymphnodes in upper chest. Start Adriamycin Sep 09. more radiation on spine . April 2010- Still on Adriamycin 3wks on 1 wk off and zometa every 28 days. PET -May 2010 showed progression. Starting Herceptin/Navelbine on June '10
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Old 11-08-2009, 02:37 PM   #6
Lien
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Re: Hi all from Eric

Hi Eric,

So glad you are giving us an update. I've been thinking of you and the kids. Perhaps because I have a 14 yr old boy too. Recently he told me he had been terrified for years. He never showed it. He seemed to be acting out a bit more than some other teenagers, but I didn't realize how much my cancer scared him. Didn't realize he was aware that my mother died of cancer. He was only three y.o. at the time. I'm so glad to hear you are keeping an eye on your boy & girl. But don't neglect yourself. You've been through so much and you need time & space to be able to mourn Caryn. Good to hear you are surrounded by friends. Thank you for finding the time to reconnect with us.

Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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Old 11-08-2009, 03:10 PM   #7
Pam P
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Re: Hi all from Eric

Thank you for stopping by. It's so nice to you you've been doing okay and the kids too. Day by day we get by and hopefully in time it gets a little easier. Thank you for your continuing support.
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Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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Old 11-08-2009, 03:24 PM   #8
Bill
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Re: Hi all from Eric

Hi Eric! I was thinking about you a few days ago and hoping that all was well with you and your family. Thanks for stopping in.
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Old 11-08-2009, 04:09 PM   #9
tricia keegan
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Re: Hi all from Eric

Hi Eric and thanks for updating us. I know it'll take time for all of you but good to know you're coping..my thoughts are with you all. xx
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 11-08-2009, 05:07 PM   #10
Laurel
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Re: Hi all from Eric

Eric,

I have teenagers as well. They now tell me how hard it was to watch me undergo chemo. Cancer in a parent is so frightening. When I was back in the saddle so to speak they had a bit of adjusting to my authority. My eldest happily told friends who would run into him at his job, and would inquire about me, "she's doing much better! The sheriff is back in town!"

Good for you being the sheriff. It isn't always the most fun job, but teenagers need guidance and structure, especially when they are grieving and confused. I applaud your sensitivity to your son's pain, and willingness to be your children's "rock." All my best to you and yours,
__________________

Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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Old 11-08-2009, 05:23 PM   #11
Barbara H.
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Re: Hi all from Eric

It was great to hear from you, Eric. I do think of you and your family. Although you are managing, it is not easy for you and your children to go through this.
Best wishes,
Barbara H.
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Old 11-08-2009, 05:52 PM   #12
Ruth
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Re: Hi all from Eric

Eric:
Thank you for posting in and letting us know how you are. We all felt and knew that you would handle this devasting time well with your kids. You were so tuned into what was happening to Caryn and didn't bury yourself somewhere else. Some spouses ignore it hoping that it will all go away or unable to deal with it. You are such a great person that I know the kids are very lucky to have you as their daddy.
Take care and thank you again.
Ruth
__________________
[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~

Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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Old 11-08-2009, 06:24 PM   #13
Paty
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Re: Hi all from Eric

Eric,

Thank you for taking the time to write to us and let us know how you are doing. I think we all understand what you are going through and the difficult re-adjustments that you have to do in your daily life. Not only that, but the pain that you have to cope with at every instant realizing how much you need Caryn by your side. Please let us know once in a while how you are doing. Sending you a hug and my prayers for you and your kids.
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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Old 11-08-2009, 07:00 PM   #14
sassy
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Re: Hi all from Eric

Hey Eric,

Good to hear from you and thanks for stopping by. I keep you and your children in my prayers. You are such a wise parent to realize the manifestations of Karen's loss in your children.

Hugs and prayers to you all
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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Old 11-08-2009, 07:56 PM   #15
Joan M
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Re: Hi all from Eric

Eric,

It's good to hear from you and to know that you and the kids have a lot of support. Take it one day at a time.

Sending a lot of hugs to you, Jennifer and Zachary.

Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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Old 11-08-2009, 09:25 PM   #16
Jackie07
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Re: Hi all from Eric

Eric,

Sending prayers from Central Texas. Thanks for the update. Take care. Pay special attention to your 14-year-old. He might need extra help in adjusting being a young teenager.
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

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Old 11-08-2009, 10:51 PM   #17
harrie
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Re: Hi all from Eric

Eric, thank you for stopping by! Thanks for thinking of us and it is good to hear how you and your family are doing.
Take care.
Maryanne
__________________
*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 11-09-2009, 05:48 AM   #18
Tom
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Re: Hi all from Eric

Dear Eric,

Thanks for checking in with the board Eric. It's good to hear from you. I certainly understand your absence. That ache for the one you lose never goes away, but rather is suppressed by keeping busy. It's great that you are keeping such a close eye on your kids, but make sure you keep an eye on your own spirit as well. I sure enjoyed all of your posts when we were both up to our eyeballs in the struggle at the same time. As with all of the members here, I didn't feel quite so alone in the battle when we were all "huddled together" and brainstorming for answers. Please take care.

Sincerely,
Tom
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Old 11-09-2009, 08:55 AM   #19
Shobha
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Re: Hi all from Eric

Eric,

Thanks for checking in on us and giving us an update. I think of you and your family often and send healing prayers for all of you. I am glad you are staying strong for your children. God bless all of you.

shobha
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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Old 11-09-2009, 10:34 AM   #20
ElaineM
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Wink Re: Hi all from Eric

Thanks for letting us know how you and the children are doing. I am pleased to know that you all are okay. You are always welcome here, so please feel free to stop by whenever you can. Take care.
__________________
Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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