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Met with Ocular Melanoma Oncologist
It took a while to get in to see him, but had my appointment yesterday in Philadelphia. There was good and bad.....The bad is that he revised my prognosis to 70% chance of recurrence (had been told 50% by the genetics testing). Good news is that my most recent liver mri and lung ct were clear. I had gone, hoping to be offered an adjuvant treatment, and he did that. Waiting for insurance company approval, some baseline testing of heart, some labs, and getting a local oncologist on board. Then, perhaps in a month, I should be able to start. Right now, I'm a bit demoralized again, but am trying to hope that the adjuvant will give me the 20% advantage for non recurrence that many in the study achieved. That puts me back to 50%. My sis says to forget the numbers.....they are just numbers. I am trying, and still really appreciating prayers.
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