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03-05-2009, 06:32 AM
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#101
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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I also add my prayers that this may be a miracle for Caryn and turn things around for her. Hang in there we are all with you.
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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03-05-2009, 03:09 PM
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#102
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Senior Member
Join Date: May 2006
Posts: 3,142
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Devastated - told weeks !!!
I'm so happy the oncologist is going to prescribe chemo.
I know you are probably overwhelmed with advice from us, but I would like to add something about the bone marrow if I may.
I never had a problem with my bone marrow, red blood counts and white blood counts during my treatment. I took supplements and ate alot of things that are good for the bone marrow and blood counts. Other patients have also shared information with me about bone marrow soup.I will pass some of it along to you. I am not sure Caryn can tolerate it all or if you have time to prepare it but here goes-----
Bone Marrow: Bone marrow soup. Cook marrow from meat, add healthy herbs (some of them have been described and shared by others) garlic, onions and make a soup.
White blood count: fruits, vegetables, mushrooms, echinecea and astragalus
Red blood count: liquid iron, beans, spinach, real blackstrap molasses, B 12, chlorophyll tablets
I guess there are always shots from the oncologist if these things don't help. Miracles also happen.
Know that you and your family are in my thoughts and prayers.
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03-05-2009, 03:23 PM
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#103
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Dear Eric and Caryn,
Wonderful news! I'm so glad your onc is working with you. May the combo giver her relief and buy her time! Lots of time!
Love
jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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03-05-2009, 07:48 PM
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#104
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Senior Member
Join Date: Sep 2005
Posts: 589
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Elaine - I'm far from overwhelmed with advice from everyone. I cherish the advice and decide what to present to the dr. An example is the milk thistle that has been recommended by so many here. Her doc said yes and I bought it for her today. Everyone's advice, concern and prayers have made a HUGE difference for me these past few days. I can't thank everyone enough.
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03-06-2009, 01:23 PM
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#105
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Hi Eric,
I pray today is a good day for you, Caryn and your family. Know you are surrounded by prayers.
Love and peace,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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03-06-2009, 04:09 PM
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#106
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Eric, you and Caryn are so special. I'm still holding you and your family in my prayers.
Much love
chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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03-07-2009, 03:19 PM
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#107
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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You and your family are in my prayers and thoughts.
God bless and take care.
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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03-07-2009, 05:43 PM
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#108
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Senior Member
Join Date: Oct 2005
Location: Saratoga Springs New York
Posts: 136
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Eric, Wishing you great results with the Herceptin/Gemzar/Carboplatin. This combo packs alot of punch. There is always hope. Your strength and determination will get you through. Good luck and stay strong. Sally
__________________
Dx March 2004 HER2+ er/pr+ 8/16 + lymphnodes mets to the liver Stage IV / 6 cycles of TCH and 33 rads . NED Continued Herceptin 3 years w/ Femara. Tumor markers start to rise in Jan of 2007 and swiched to Tamoxifen. August of 2007 found more mets to liver and lymphnodes outside of liver. Went on Tykerb/Xeleoda--spots on liver gone found large mass between intestines. March 2008 started TCH. Stopped Carboplatin due to allergy. Still on Taxotere and Herceptin. Nov 2008 mass is gone. 3 new spot on liver and one on spine. Radiation on spine. tykerb/gemzar for liver mets. PET in April 09 showed shrinkage still a little activity, continue tykerb/gemzar until Aug 09. PET showed new spot on my spine more on my liver and a bunch of enlarged lymphnodes in upper chest. Start Adriamycin Sep 09. more radiation on spine . April 2010- Still on Adriamycin 3wks on 1 wk off and zometa every 28 days. PET -May 2010 showed progression. Starting Herceptin/Navelbine on June '10
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03-09-2009, 05:24 AM
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#109
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Senior Member
Join Date: Oct 2007
Location: Australia
Posts: 309
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Dear Eric, Caryn and family ~ you are all in my prayers. BIGGEST prayers and much love to all of you. I believe in the power of prayer and may all power be with you.
Blessings
Hermiracles
__________________
2003 L/DCIS –> LWE: High G./Comedo - 6 nodes clear 6 wks Rx
04/07 2 miracles born ~ very grateful
06/07 Susp areas L/b
09/07 Stage 2 bilat. mastectomy R/ b. clear extens DCIS/IDC Paget’s 8 nodes clear ER(<5%) HER2+++ CT clear
11/07 Portacath - FEC
15/11/07 Stage 4 Emerg op - hip replacemt #NOF bone mets H/Taxotere
12/07 Rx to 'spots' on spine/R/hip/femur 3wkly H
2008 H+T mets to rib/sternum? Aredia CT clear! Cont. H + Aredia 07/08 1 wk Palliative Care - mets to lungs + ?1 to brain
09/08 Stop H complete Epirubicin 1wk PC new brain mets
10/08 2wks WBR 1wk PC 22/10/08 Tykerb/Xeloda 12/08 6 CEREBRAL METS COMPLETELY GONE! Rib mets down to <1cm.
01/09 Tumour markers normal! Rx to L/arm
03/09 LUNGS CLEAR (ALL NODULES GONE!), brain clear, liver clear. Bones stable! ~ THANK YOU GOD
07/09 Repeat CT Scan ~ ALL organs clear apart from bones which remain stable. I walk in gratitude.
***************
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03-09-2009, 09:10 AM
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#110
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Thinking of your fine family and adding another post to let you know we walk besides you. Caryn is an amazing woman, but that is plain to see by who she chose as her mate. Best of luck Sweet Caryn, we are routing for you. And the power of prayers, well, we all know what magic they hold!! Candles burned bright all weekend, in fact, I never left the house....did not want to blow them out. Continuous prayers since finding out, but especially during the weekends. Love to the family.>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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03-09-2009, 09:24 AM
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#111
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Senior Member
Join Date: Aug 2006
Location: PA
Posts: 188
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Eric,
I just want you to know that my thoughts and prayers are with you, your wife and your children. I will pray for all of you each night.
__________________
Susan V - Pittsburgh PA
DX Age 37 on August 3, 2006
Stage 1 Grade 3
ER/PR + (Highly Positive)
Her 2 +++
1.3 & 1.2 tumors right breast
node negative
lumpectomy 8-15-06
A/C Began 9-5-06 Finished A/C 11/6/06
Port Placement 9-15-06
Negative Test for BRAC1 & BRAC2 10-25-06
Began Tamoxofin November 21, 2006
First Herceptin November 27, 2006 Continues every 3 Weeks
First Radiation Treatment December 11, 2006
35 Rads Completed
Final Herceptin Treatment November 12, 2007
Port Removal November 19, 2007
Living Life to the Fullest !!
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03-09-2009, 12:53 PM
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#112
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Senior Member
Join Date: Jun 2007
Posts: 216
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Dear Eric,
I just wanted to say that Caryn, you and your lovely family are in my thoughts and prayers tonight. The love shines out from you all.
Janie
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03-09-2009, 03:33 PM
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#113
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Senior Member
Join Date: May 2006
Posts: 3,142
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Devastated - told weeks !!!
I am wondering how you and your family are doing today. I hope everything is going well.
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03-09-2009, 06:38 PM
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#114
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Senior Member
Join Date: Sep 2005
Posts: 589
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Caryn's been doing ok. She's been tired and spends most of the day resting, has limited queaziness and some pain that the pain meds are managing. I'm hoping that this is mostly all related to the treatment and that she'll feel a bit better tomorrow. The Dr said that the treatment effects the bone marrow 5-10 days after so tomorrow thru Sunday are critical days. He said that if she's having marrow problems then she will develop pain similar to what you might feel from Neupogen (but I guess worse).
My kids have been amazing but it's definitely been hard for all of us. I can't tell you how comforting it's been to check in to this site and read the extraordinary love and care that you have all provided. If prayers work, I have to think that Caryn has a shot with all of you behind us. I know I say it a lot but, THANK YOU! You are all amazing and have made such an impression on me that I can't even express.
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03-09-2009, 07:03 PM
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#115
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Dear Eric,
Please know that along with medicine, lots of love and fatih, "Miracles" do happen....and you have all of these
combos working for you...I am keeping you, Caryn and he children in my prayers for continued strength during these next few days.
Caryn and You have been so Strong...
Sending you blessings and healing energy for Caryn,
Kindest Regards,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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03-09-2009, 07:14 PM
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#116
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Member
Join Date: Jan 2008
Posts: 16
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I am praying for Caryn, you and the kids. God bless this mess. All of you are so strong !
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03-09-2009, 08:34 PM
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#117
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Senior Member
Join Date: Apr 2008
Location: WA State
Posts: 199
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Eric,
Take strength in knowing that I and many others here continue to pray for Caryn. May God bless and comfort you all during this time. I am trusting that God will touch Caryn and begin a healing in her.
__________________
Cindy
L/IDC, 1.2 cm, Stage 1, Her2+, ER+/PR+ at age 48
4/15/2008 Lumpectomy + sentinel node biopsy
Margins neg and Nodes neg (2 tested)
MUGA score 55 on 5/6/2008
Treatment starting 05/08/2008:
Chemo 4 cycles, 3 weeks apart with Taxotere & Cytoxan - Chemo - Done 7/24/2008!
Herceptin for 1 year
Radiation starting in 9/2008
MUGA score 61.9 on 9/04/2008
33 Rads with boost - Done 10/13/2008
MUGA score 58 on 12/01/2008
MUGA score 59 on 3/16/2009
Herceptin for 1 year - Done 4/27/2009
MUGA score 64 on 6/22/2009
All scans - NED 6/24/2009
MRI - NED 11/10/2009
All scans - Still NED 8/25/2011
Still NED 2017!
I am calling this my pink journey
Follow my journey into the pink at my blog here
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03-10-2009, 08:35 PM
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#118
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Hi Eric! Just wanted to stop in and say hi, and let you and Caryn know that you are still in my thoughts and prayers. You guys hang in there.
__________________
For Nicola
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03-11-2009, 05:14 AM
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#119
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Senior Member
Join Date: Jun 2007
Location: Bergenfield, NJ
Posts: 121
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Dear Eric,
Pls know that you're always in my thoughts and prayers. My love to you, to your wife and kids.
Keep the Faith!
Love,
Gemma
__________________
My love to you all
Gemma
____________________________________
Dx July03 at 35
Rt,breast lump.,1 node+
ER+(98%)ER-, grade3
A/C 4rounds,Rad for 38 days
Tamoxifen 2004-05
Recurrence Feb.2006, radi double mastectomy canceled bec. of mets, StageIV lungs mets
Her2+++, BRCA negative
Taxol/Herceptin six rounds of Taxol from April06.then Herceptin alone til May07. Started Tykerb/Xeloda in Jun07-Sept.07 bec of progression of the lympnodes. Navalbine/Herceptin Sept.07 to April 08 due to progression . Gemzar/Hercptin Apr08.June08 Brain MRI showed Brain Mets.CraniectomyAug.1,08, tumor removed completely
completed 20 wbrt!
Started Doxil 10/31/08 (monthly) and weekly Herceptin
Ixempra on 2/13/09
due to multiple hepatic mets
will have Herceptin as well.
Radical rt.breast Mastectomy June2009.
Ixempra/Herceptin 11/06/09--increasing right axillary lymphanenopathy and enlarging left upper lobe nodule :-(
Taxotere/Herceptin 3/5/10,more liver mets, lungs, lymphnodes. 2 weeks on, one week off...
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03-11-2009, 07:24 AM
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#120
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Love and prayers throughout the day and especially tonight with the Power Team, for one incredible family! ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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