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Old 05-14-2014, 02:03 PM   #1
Pray
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Swelling?

Any other reasons my arm would start swelling? Onc. And family Dr. Say it's not lymphedema. No pain, infection, injury, repetitive use or fever. I'm having an MRI tomorrow afternoon. Just odd. Thank you so much for any insight. 🌻 Nancy
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dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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Old 05-14-2014, 11:47 PM   #2
Pamelamary
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Re: Swelling?

No ideas or advice, Nancy, but all good wishes to you....Pam
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Diagnosed 2004: Lumpectomy - 2 tumours, both grade 1 infiltrating duct carcinoma, about 12mm. ER+,
C-erbB-2 status 3+.
Clear margins, no nodal involvement.
Radiotherapy, i year Tamoxifen, 4 years Arimidex.
Rediagnosed 2012: Multiple bone metastases.
3/12: began on Marianne trial - T-DM1 + Pertuzamab/Placebo.
5/12:Unexpected development of numerous bilateral liver mets. Came off trial.
Started Docetaxol/ Herceptin + Zometa.
8/12:Bones stable +major regression in liver (!)
9/12:Can't take any more Docetaxol! Start on Herceptin and Tamoxifen. Cross fingers!
Changed to Denosumab.
11/12: Scan shows stable - yay!
11/13: Still stable :-) !!!
1/16: All stable, but lowered calcium, so switched to Zometa 3 monthly.
2/19: Happily still stable on Herceptin, Letrozole and 3 monthly Zometa.
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Old 05-15-2014, 02:59 PM   #3
suzan w
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Re: Swelling?

Stumped! Let us know how the MRI turns out!!
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age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
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Oncologist says, "Go do the Happy Dance"
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'One day at a time'
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2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
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Old 05-15-2014, 04:57 PM   #4
tricia keegan
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Re: Swelling?

Sending good wishes Nancy, maybe you need to see a PT trained in lymph drainage?? Repetitive motions will not show outward but can cause lymphedema, even ironing etc, please keep us posted.
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
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Old 05-21-2014, 11:47 PM   #5
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Re: Swelling?

Just checking in. A side from the swelling arm I have had thoracic back pain for 2 months seeing a chiropractor and massage therapist, was told it was a muscle spasm so when my arm started to swell two weeks ago he had me stop that treatment and had me do an mri of my thoracic spine. It wasn't a spasm it is a pinched nerve at t6 t7 t7 t8. He was checking for mets. I'm thanking God it wasn't mets! so I'm going to see a spine specialist and a Lymph edema specialist. There is some humor in what we are thankful for now. Thank you ladies. Gods blessings!
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dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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Old 05-23-2014, 01:37 AM   #6
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Re: Swelling?

Thanks for the update ...
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Old 05-23-2014, 08:06 PM   #7
Catherine
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Re: Swelling?

I have light swelling if I use my effected arm too much. Meaning the arm that had some lymph nodes removed. The swelling will come after too much vacuming, window washing or scrubbing. It sometimes occurs after a good work out at Pilates, or too many downward dogs in yoga. I try not to overdo that arm. I hope you get an answer for your swelling.

All the best,
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Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
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Old 05-23-2014, 08:48 PM   #8
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Re: Swelling?

I used to wear a compression sleeve if I had a lot of physical work to do. I think it helped eliminate swelling.
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Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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Old 05-28-2014, 01:02 AM   #9
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Re: Swelling?

CATHERINE , if your telling me not to do house work I'm in! Lol thanks for your feed back. The only lymph dr is not available until the 25th of June. Trying not to over do it. Getting awefully hot though��
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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Old 06-07-2014, 01:16 PM   #10
Lani
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Re: Swelling?

Is the weather hot? Have you taken a recent airplane trip?

Either might overwhelm your remaining lymphatics' ability to return fluid to the lymph system.
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Old 06-07-2014, 03:03 PM   #11
BonnieR
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Re: Swelling?

I had minimal lymph nodes removed but still have very mild Lymphedema. As has been said, exertion, heat, air travel can all be factors. Important not to expose arm to hot water, sunburn etc I once had a minor sunburn and the arm swelled up. I was given Cipro by a Lymphedema specialist. To prevent cellulitis setting in
So just treat that arm with care. No IVs or blood draws. No BP
I believe even if doctors don't SEE it, patients can FEEL it
Keep the fsith
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Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 06-08-2014, 12:36 AM   #12
Joanne S
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Re: Swelling?

Nancy, Sorry to hear you have a pinched nerve. That pain can be awful. Hope you're getting some relief from your back pain and swelling. I used to see Dr. Riutta for arm, chest and back pain and I highly recommend him. Don't recall where you are in Michigan, but just in case you're interested, here's a link about his specialities.
http://lmtrehab.com/physicians/doctors_Riutta.html
Hugs & well wishes, Joanne
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Aug06...Dx Age 50, IDC Left Breast, 6+/16 lymph nodes, Stg 3, ER+/PR+/HER2+
Sep06-Jan07...Mediport. Chemo: AC x 4, T x 4
Dec06-Nov07...Herceptin
Feb12,2007...Surg MRM Left & SM Right, reconstruct w/expanders
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Jun07...Start Tamoxifen
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Nov07...Surg Capsulectomy, Gel Implants, PMPS pain gone instantly.
Feb08...NED 1st CANCERVERSARY!!!!!
Feb08...2 months post surgery Caps Cont again :(
Mar08...Stop Tamoxifen. Start Arimidex.
Apr08...Sudden high fever, Hosp ICU 10 days, staph infect, emerg surg, implants removed. Outpt IVantibiotics Daily x 6 weeks
Feb11...NED 5th CANCERVERSARY!!!!!
Feb12...NED 6th CANCERVERSARY!!!!!
Aug12...Spotting. Surg=D&C
Sep12...STAGE IV = RARE BC METS TO UTERUS ILC ER+/PR+/HER2-Negative) (Different BC than originally diagnosed = IDC ER+/PR+/HER2+).
Sep12...Stop Arimidex. Start Afinitor & Aromasin.
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Apr13...Start Chemo: Taxol & Carboplatin.
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Jan14...PET scan = no progression stable.
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Old 06-08-2014, 07:05 PM   #13
RedHen
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Re: Swelling?

I have lymphedema in my right arm. I didn't have an infection, cut, etc either, just the swelling initially. I think it - lymphedema - can start without any obvious triggers if you've had a sentinel node biopsy and even one lymph node removed. I hope your MRI is negative for LE. :-) Lynne
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Bilateral mastectomy w/sentinel node biopsies, December 20, 2013
12 nodes positive; stage IIIb
Began chemo January 21, 2014

Priors:
Partial colectomy, January 1996
Radical colectomy, March 1996
Crohn's & GERD
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Old 06-12-2014, 12:02 PM   #14
Pray
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Re: Swelling?

Hello, Thank you everyone for your input its always appreciated! I saw the lymph specialists this morning and had an ultra sound of chest an arm, no blood clots so that's a good thing. Being fitted for sleeve tomorrow. The NP said everyone has a slightly different take on lymphedema and treatment for it. Also that only if it shows up after surgery is it reverse-able, In my case that was 4 years ago so mine will not be able to be reversed. In the scheme of things not that big a deal. So in light of these things I will wait on the therapy for a few months and just follow suggested guidelines until September when all the summer fun is over which I'm totally ok with.

For the thoracic pinched nerves I will start pain shots and they believe it will resolve itself with in the year! Another no big deal.

Joanne, I did have an appt with Dr. Riutta he did not have an appt. until end of June and I was not comfortable with the size of my arm. I very glad you had great success with him!

I've been coming here for 4yrs. now and I am ever grateful for each and everyone of you! even the newbies! Gods blessings to all of you!
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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Old 09-13-2014, 01:39 PM   #15
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Re: Swelling?

The removal or radiation of a single node can disrupt the lymphatic drainage of the breast and/or arm. Do not let any person tell you otherwise. A recent clinical study on a rabbit demonstrated that irradiation of a single lymph node in the leg of the rabbit caused a 40% reduction in lymph drainage and the start of lymphedema -- the same effect as would result from the surgical removal of that lymph node. The sentinel node removed in diagnosing whether a breast tumor has spread, especially if it is in the upper-outer quadrant of the breast, can disrupt the drainage of lymph from the breast and result in breast or chest lymphedema, and if in the chain of lymph nodes draining the arm can result in lymphedema of the arm and/or hand.
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Old 09-13-2014, 01:48 PM   #16
BonnieR
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Re: Swelling?

True, that. I had minimal node removal. Sentinel and a few hangers on. Big still have very minor LE on one side. Not a big deal but it periodically let's me know it's there. Particularly if I scratch arm or expose to sun/heat
Be vigilant
Keep the faith
__________________
Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 09-14-2014, 05:58 PM   #17
RedHen
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Re: Swelling?

I had a biopsy and 12 nodes removed on the side with the LE. I also had radiation which burned my skin and caused an infection. I am eager to find out more that I can do on my own since I have so far been unsuccessful in locating anyone who REALLY knows how to treat this. The woods are full of "certified" therapists eager to take my money but who have little real knowledge of this condition and how to treat it.

I apologize for any repetitions. I seem to have gotten involved in several threads on this topic. I appreciate all the posts regarding this subject which is of the utmost importance to me. Thanks to you all, especially LymphActivist.

LynneR
__________________
Bilateral mastectomy w/sentinel node biopsies, December 20, 2013
12 nodes positive; stage IIIb
Began chemo January 21, 2014

Priors:
Partial colectomy, January 1996
Radical colectomy, March 1996
Crohn's & GERD
Gluten sensitivity
Chronic anemia from GI bleeding
Relapsing polychondritis w/tracheomalacia and neuropathy in feet
Vasculitis
Sjogren's syndrome
Rosacea and ocular rosacea
Hypertension
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Old 09-14-2014, 06:18 PM   #18
Pray
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Re: Swelling?

Thought I would check in. I'm through 5 of my 10 PT sessions for lymph edema. They use massage and wrap therapy. I will use a sleeve for preventative care.( repetitive use, flying,..). Very awkward but totally doable. It did take three days of wrapping before it showed minimal improvement. Hope all goes well for everyone else.
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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Old 09-14-2014, 11:57 PM   #19
BonnieR
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Re: Swelling?

Lynn R. I consulted with Dr Emily Iker in LA. She is considered quite the specialist and has LE herself, in lower extremities. Perhaps googling her or her website will offer some ideas
Keep the fsith
__________________
Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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