 |
03-07-2007, 05:29 PM
|
#1
|
|
Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
|
hi
Just getting the pre-result jitters for tomorrow's visit. Not sure why, I mean, how MANY times have I faced results? I don't know if it is psychosomatic (psycho anyway) that I'm feeling a little more tired from chemo. My nails are crumbling off and it is kinda owie. I feel like i've developed food intolerances-is that nuts?
I keep beating myself up for not being as energetic and then I try to remember that in the last year and a half I've been in chemo for 14 months total with only a 6 week break.
I know I have options. You just can't help but think when is the body gonna say, "enough!"?
Oh well, my 10 year old informed me-the way they do-that none of her tennis shoes fit and they have begun morning jogging in preparation for the Pentathalon. So we are off to shoe shop (change of seasons always seems to cost money doesn't it). This is all after my 8 year old came home and just had to make "fairy cakes" from scratch for the magic fairy bush at the park where her class likes to picnic. So we did (not bad I must say-lucky fairies). She wrote them a note that began, "To you fairies..." Cracked me up.
Oh and GET this. Remember my sister's foster dog who had the puppies-who are gargantuan and go on to one -on- one foster homes sunday before spay and neuter, recovery and back to the humane society for adoption (we are taking bets on how long they'll last there-5 seconds, maybe)----Well, on Monday someone brought in a 2 week old puppy whose mama had died and this person didn't know how to care for it. The HS called my sis knowing that she had a nursing mama dog and now my sister's foster dog, Jada, is a foster mom herself! She has been nursing the new one, named Miss Daisy. Jennifer is supplementing with some formula and the little one is feisty and well (if it didn't work they were thinking of euthanizing). We felt like at was a little miracle. Especially since Jada gave birth to 3 girls and 5 boys and lost one of the girls. Now she has that 8th puppy and a girl.
Life can be amazing and all I want is to be around to see it.
thanks for your support, always
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
|
|
|
|
03-07-2007, 05:38 PM
|
#2
|
|
Senior Member
Join Date: Sep 2005
Location: Atlanta
Posts: 87
|
Lucky Fairies!
Keep your spirits up, Joy!
Sounds like you had a great day, inspite of tomorrow's pending results.
Thanks for sharing it with us.
Keeping you in thoughts & prayers~
Jml
|
|
|
|
|
03-07-2007, 06:37 PM
|
#3
|
|
Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
|
Hi Joy,
That is a great story about the puppies. How cute!
Regarding the scans, you are not alone. It is tough to wait and go through it each time for me too. I don't know how people can just glide through it without getting nervous. I know I can't.
God bless you and extra prayers headed your way!
Love, Peace, and Hope,
Carolyns
|
|
|
|
|
03-07-2007, 07:31 PM
|
#4
|
|
Senior Member
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
|
Hi Joy,
Your in my thoughts and prayers. I love Fairy's ad I probably would like the cake even more lol. All my best I will be sending and thinking good thoughts your way tomorrow!
__________________
Love and Hope
Karen
IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
|
|
|
|
|
03-07-2007, 07:32 PM
|
#5
|
|
Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
|
Hi,
Ohhhh, I can "hear" your anxiousness and just want to offer a hug and a comforting "we're here for you" no matter what. I know how scared you must be. We've all been their. Waiting for those dreaded results is the WORST kind of hell. Once we know things it's easier but that waiting is just literally, hell.
So, praying for good results - praying for peace and JOY to surround you.
God Bless you,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
|
|
|
|
|
03-07-2007, 07:43 PM
|
#6
|
|
Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
|
You Will ...
see it all Joy, your spirit is so very kind and strong. You just keep climbing
those mountains and you are going to get to the top. I always enjoy your
puppy stories. I am a big dog lover, have an American Bull named Bernie,
whom I just love to death, all 105 pds of him. He just loves to share our
bed. He is one big snuggle boy. My son is trying to talk us into getting another
a female.
Wishing you all the best and keeping you in my prayers!
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
|
|
|
|
|
03-07-2007, 07:56 PM
|
#7
|
|
Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
|
Good luck Joy - positive thoughts coming.
Caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
|
|
|
|
|
03-07-2007, 09:21 PM
|
#8
|
|
Senior Member
Join Date: Aug 2006
Posts: 492
|
Good luck Joy!! Think of those wiggly puppies all the way to your appointment!
__________________
Are we there yet?
Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
|
|
|
|
|
03-07-2007, 09:50 PM
|
#9
|
|
Senior Member
Join Date: May 2006
Posts: 143
|
Joy: your post made me laugh. I'll be sending best thoughts for your results from the west coast.
love
Linda
|
|
|
|
|
03-07-2007, 09:53 PM
|
#10
|
|
Senior Member
Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
|
Tomorrow will be
when we will all be praying for you, Joy. With your wonderfully uplifting spirit, God will wrap you in his warm, loving arms and carry you right through those tests/scans. We love you, Vickie
|
|
|
|
|
03-07-2007, 10:04 PM
|
#11
|
|
Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
|
Joy, you know those jitters are just the pits, aren't they. I also know you're a one tough cookie, so if the news is good we celebrate with you, and if not we roll our sleeves up with you and go to work. Try to put those worries to rest and get some sleep tonight.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
|
|
|
|
|
03-08-2007, 03:04 AM
|
#12
|
|
Senior Member
Join Date: Jan 2007
Location: Adelaide, South Australia, Australia
Posts: 144
|
Kids and puppies have a way of keeping things real, don't they? Heart-breaking and heart-filling all at once. Well, good luck tomorrow/today (it's 8.33pm here in Adelaide Aust), let us all know how it goes. Lucky vibes coming your way, riding on the backs of caked-up fairies......Bx
__________________
Belinda
- Diagnosed 3 Jan 2007, Stage IIb, Mastectomy and axillary clearance 10 Jan 07, 6 of 19 nodes affected, multi-focal cancer, HER2 positive. Second mastectomy (prophylactic). Chemo - AC 3 months, Taxol 3 months - then radiation 5 weeks.
- Aug 2011 - Diagnosed with Stage IV mets to lung, sternum and 12 or so thoracic nodes - Rads to Sternum, then weekly abraxane and herceptin for 12 weeks.
- May 2012- good scans - all nodes still about normal size, hole in sternum repairing, lung tumour 'obliterated'.
Ongoing herceptin every 3 weeks. Bloods still all good! Life good!
- March 2013 - recurrence - tumours in lungs and mediastinum (coughing up blood) - immediate radiation treatment to right lung and mediastinum, still on Herceptin, and 3 months of Vinoralbine - stable for a little while!
- Coughing and breathlessness started again September 2013, treated as radiation-induced fibrosis (which can be seen on scans - albeit stable). ie puffers, steroids
- January 2014 - cough becomes bloody again, scans show big mediastinal tumour wrapped around and choking the life out of my right main bronchus, radiation deemed off limits as my lungs are hypersensitive to radiation (measured by existing damage from 2013) .....................- ie I am in the 5% of people likely to suffer severe radiation damage to the lungs that they warn you about before starting treatment! (so special! :) )
- Started chemo Feb 2014 - continuing Herceptin (continuous since Aug 2011), with Carboplatin and Gemcitabine. Discontinued Gemcitabine because of se's. Starting cycle 5 Herc/Carbo 5 May 2014.
- Meantime.....coughing and breathlessness increased to SCARY levels with racing heartbeat that won't slow down, breath that won't come back, even just walking to the bathroom or up 3 or 4 steps.
- ICU from May 5 2014, collapsed right lung due to tumour, small pulmonary embolism (left), tumours growing in mediastinum left and right, dvt lower right leg
- Plan seems to be bronchoscope next week to see if tumour can be lasered and stent inserted in right bronchus to reopen air access to lower parts of right lung. If that is successful might be able to have brachytherapy to worst tumour, otherwise no more options for external radiotherapy.
|
|
|
|
|
03-08-2007, 08:27 AM
|
#13
|
|
Senior Member
Join Date: Mar 2006
Location: IOWA
Posts: 243
|
Positive thoughts and prayers are with you for your results. I was wondering about the puppies, so I enjoyed your update. My daughter has a dog named Jada, too.
__________________
Andi
-- ------------------------
Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
|
|
|
|
|
03-08-2007, 08:36 AM
|
#14
|
|
Senior Member
Join Date: Jan 2007
Posts: 144
|
Joy,
Just keep enjoying those "fairy cakes" and puppies and you will retain that beautiful smile. We all know how hard it is to wait, but we are all here for you. Sending you lots of sunshine from Illinois.
|
|
|
|
|
03-08-2007, 09:55 AM
|
#15
|
|
Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
|
Hope all is well...waiting is the pits. Loved the puppy story...thanks for the update!!! I have a dog (now almost 13) that I got when she was 8 days old...we have quite the bond!!!
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 01:16 AM.
|
Linear Mode
