HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Reply
 
Thread Tools Display Modes
Old 05-02-2016, 07:44 PM   #1
europa
Senior Member
 
europa's Avatar
 
Join Date: Jan 2012
Posts: 360
Hair shedding...it happens all at once now

I have noticed something rather unique. Since my hair has come back, once a year my hair sheds, like a dog during spring. And for about 3 months I look like I have extremely thin hair. Actually, more like a rats nest with weird patches of long hair and bushy short hair. Then it balances out again. Before I would shed hair in tiny batches like everyone else. A little a day.
Has anyone noticed that your hair's shedding routine was permanently altered after treatment?
__________________
DX 10/2011
PET Scan + MRI 10/2011
Lumpectomy 11/11/11
Stage 2B +++ ER+(10%), PR+(5%), HER2+++(1 positive node, 1 micromets to second node)
AC started 12/2011 ended 1/2012
Taxol + Herceptin weekly for 12 weeks ended 4/2012
30 zaps of radiation done 6/2012
Tamoxifen 6/2012
every 3 weeks of Herceptin for another year.
Metformin Trial 8/12
10/12 MRI- CLEAR
01/13 BRAIN MRI- CLEAR!
01/13 Neck MRI- CLEAR!
FINISHED HERCEPTIN 1/9/2013...Woot Woot
Starting Walter Reed Vaccine Trial 2/13
CT Scans + ultrasound of abdomen CLEAR-5/13
02/2015 through 11/2015 emergency D&Cs for Tamoxifen induced uterine polyps which caused uncontrollable hemorrhaging
12/2015 blood clot to left leg caused by Tamoxifen. No longer taking it. On Xarelto, a blood thinner
12/2015 Ablation to prevent hemorrhaging from potential issues with Tamoxifen residue in my system
1/2016 continuing journey without hormonal therapy. Reevaluating the option of a hysterectomy and oopherectomy.
4/1/2018 2mm stroke. Yes, stroke! No cause ever found but they believe it was a migraine that went bonkers and created a tiny clot. No deficits. I was back to normal with 24hrs. Now on baby aspirin for life.
7/27/2018 hysterectomy and oopherectomy
01/07/2019 Mastectomy and expanders put in
3/22/2019 Vtach, almost died. Cause unknown.
7/22/2019 New perky boobs put in
7/21/2020 Off of all drugs but a baby aspirin because of the stroke in 2018.


www.mychemobag.org
www.facebook.com/mychemobag

8 YEARS NED
europa is offline   Reply With Quote
Old 05-02-2016, 08:49 PM   #2
caya
Senior Member
 
caya's Avatar
 
Join Date: Jan 2007
Location: Thornhill, Ontario Canada
Posts: 2,318
Re: Hair shedding...it happens all at once now

Wow, I was just thinking the same thing this week - I noticed my hair is shedding more than usual the past couple of weeks- I'll have to take note if this is a"Spring thing".

One home remedy I've been using to help with hair volume/thickening is to take one tablespoon of organic coconut oil and one tablespoon of Manuka honey (or organic honey, Manuka is expensive), heat them in a small saucepan together. While still warm (warm, not hot!), pour over your hair, mostly on the ends if your hair is thin, put into a bun and cover with a plastic shower cap for about 30 minutes. Then wash well as usual, you'll need 2 shampoos.
If your hair is very long you may need to double the amount.

all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
14 Years NED!!

Last edited by caya; 05-02-2016 at 09:07 PM..
caya is offline   Reply With Quote
Old 05-04-2016, 10:39 AM   #3
roz123
Senior Member
 
roz123's Avatar
 
Join Date: Mar 2012
Posts: 199
Re: Hair shedding...it happens all at once now

I have major hair thinning - although not seasonal
for me the cause is hormone therapy/menopause at a young age
saw my GP yesterday and really there is not much you can do other than Rogaine/Minoxidal, even Biotin supplements are controversial in terms of effectiveness (I do take them but I don't see an improvement)
hopefully yours is just cyclical
__________________
diagnosed aug/11
right breast IDC 2.2 cm LVI
neoadjuvant fecx3, tax and her x3
surgery -pCR 0/2 nodes
25 rads
herceptin x18
tamox
prophy bi-msx with TE's oct 15/12
LD flap reconstruction (PM me if you want the details)
zoladex shots monthly until SOFT studies come out
roz123 is offline   Reply With Quote
Old 05-05-2016, 03:16 PM   #4
europa
Senior Member
 
europa's Avatar
 
Join Date: Jan 2012
Posts: 360
Re: Hair shedding...it happens all at once now

Thanks for the replies! Mine is totally cyclical. I find that I have to cut my hair by 3 inches so the old hair that is left blends with the newer younger hair. This year I'm going to let it grow out more to see if I can get away with it.
I am going to try the coconut oil thingy. I love coconut oil so I'll give it a whirl
__________________
DX 10/2011
PET Scan + MRI 10/2011
Lumpectomy 11/11/11
Stage 2B +++ ER+(10%), PR+(5%), HER2+++(1 positive node, 1 micromets to second node)
AC started 12/2011 ended 1/2012
Taxol + Herceptin weekly for 12 weeks ended 4/2012
30 zaps of radiation done 6/2012
Tamoxifen 6/2012
every 3 weeks of Herceptin for another year.
Metformin Trial 8/12
10/12 MRI- CLEAR
01/13 BRAIN MRI- CLEAR!
01/13 Neck MRI- CLEAR!
FINISHED HERCEPTIN 1/9/2013...Woot Woot
Starting Walter Reed Vaccine Trial 2/13
CT Scans + ultrasound of abdomen CLEAR-5/13
02/2015 through 11/2015 emergency D&Cs for Tamoxifen induced uterine polyps which caused uncontrollable hemorrhaging
12/2015 blood clot to left leg caused by Tamoxifen. No longer taking it. On Xarelto, a blood thinner
12/2015 Ablation to prevent hemorrhaging from potential issues with Tamoxifen residue in my system
1/2016 continuing journey without hormonal therapy. Reevaluating the option of a hysterectomy and oopherectomy.
4/1/2018 2mm stroke. Yes, stroke! No cause ever found but they believe it was a migraine that went bonkers and created a tiny clot. No deficits. I was back to normal with 24hrs. Now on baby aspirin for life.
7/27/2018 hysterectomy and oopherectomy
01/07/2019 Mastectomy and expanders put in
3/22/2019 Vtach, almost died. Cause unknown.
7/22/2019 New perky boobs put in
7/21/2020 Off of all drugs but a baby aspirin because of the stroke in 2018.


www.mychemobag.org
www.facebook.com/mychemobag

8 YEARS NED
europa is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 04:56 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2021, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter