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01-28-2010, 06:35 PM
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#41
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Re: This wk things could change, I'm nervous.
Steph you are TOO FUNNY!
I had drama over my scans too...First they Pet/CT was denied by insurance, so they were going to do a Bone scan and CT instead. Then they got the study sponsor to pay for the Pet/CT, and in the end I had all of that still on the schedule!
Sure confused the heck out of the imaging center. They had my back, and noticed that it would probably kill me if they gave me 2 overlapping nuclear trace injections right on top of each other, so they rescheduled everything still all in the same day. Fortunately I was able to straighten them out and ended up getting just the Pet/CT...
I don't know if the double nuke dose would have killed me, but the double scanxiety probably would have.
Still on pins and needles of course...
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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01-29-2010, 03:49 PM
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#42
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: This wk things could change, I'm nervous.
Steph, Ditto what Chrisy said...got a good laugh out of that. Since my onc is on vacation I was able to get ahold of the "NP". She breezed over my PET results but said things looked "GOOD". YEAH! She said the activity that was in my rt axilla and liver area is not showing. No "hot" spots. She didn't mention my femur (bone mets) area so I asked about that and she said my onc would have to sort thur that because it did mention sclerotic changes. But she knows I had extensive surgery so it may be nothing?
I'll feel even better when I get a copy of the PET results...the NP glossed over it. But I'm still happy to hear no more activity in axilla or liver area. So this chemo combo is working.
Chrisy, You definitely win hands down in the "drama" dept. If I was you I would of had my panties in a bunch. lol That's not what I would of wanted to hear when I was there for my PET/CT. What a nightmare! I'm so glad they got it all straightened out for you. Hope you get your results soon...looking forward to more good news. So glad you weren't nuke to death. (Like we don't have enough stress without that.)
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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01-29-2010, 04:29 PM
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#43
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: This wk things could change, I'm nervous.
Chelee,
So glad to hear about your good result. 'I'm nervous' for my scan next Thursday. I really liked to change it back to a CT and get it done next Tuesday... [Could you believe that I turned down the CT offer and asked for an ultrasound instead? Thought I would get the test done sooner, turned out it's a longer wait...just can't win.]
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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01-29-2010, 06:01 PM
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#44
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Senior Member
Join Date: Dec 2008
Location: Southern Indiana
Posts: 455
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Re: This wk things could change, I'm nervous.
There is a lot of scanning going on here.
Chelee great news on your scans. And got your scans in my prayers Jackie and Chrisy.
__________________
Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!
1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."
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01-31-2010, 12:20 PM
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#45
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Senior Member
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
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Re: This wk things could change, I'm nervous.
Yeah Chelee - glad for some good news.
Hugs ~ Ruth
__________________
[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~
Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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01-31-2010, 12:27 PM
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#46
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: This wk things could change, I'm nervous.
Great news so far Chelee !! I know how you feel about getting your hands on the actual report. It is the first thing I go for after a test. I want to see the actual unedited information. I have learned alot of medical terminology that way too !!
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01-31-2010, 11:04 PM
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#47
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: This wk things could change, I'm nervous.
Jackie, I have to admit...I would of thought for sure a "US" would of been much quicker to get done then a CT. We just can't win sometimes can we! There has been alot of scary news about too much radiation exposure lately...and the CT's not being set-up correctly, so I don't blame you for choosing a "US". I'll be keeping you in my thoughts & prayers for good results. Sorry you have to wait till Thrusday...waiting is so hard. Hang in there.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
Last edited by Chelee; 02-01-2010 at 02:26 AM..
Reason: Spelling error as usual... lol
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01-31-2010, 11:22 PM
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#48
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: This wk things could change, I'm nervous.
Elaine, Yep...I'm not happy till my eyes physically see the PET/CT report myself. When I was first dx and my onc would tell me everything was "fine"...nothing to worry about. Much later when I started asking for "copies" of everything I found out there were many things I was not told about. So I just don't trust a thing they say till I see it and read it myself. I didn't like the way the "NP" breezed over my report so quickly on the phone. She never mentioned the other bone mets I had on my ilium and sacrum area? You said it best when you said you wanted to see the "actual unedited information". What "they" say is fine many times turns out to be a problem for me. (My femur I just had surgery on being just one example.) They said that was FINE too on my first baseline and it wasn't. argh...
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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01-31-2010, 11:56 PM
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#49
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: This wk things could change, I'm nervous.
I am so happy for you Chelee...some good news!
Keep it coming....
Chrisy, also thinking positive for the best news for you too.
jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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02-01-2010, 10:56 AM
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#50
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: This wk things could change, I'm nervous.
Chelee,
Glad to hear the good news. I know what you mean about wanting a copy of the PET-CT scan in your hands to read. Thanks for helping me last week.
Amelia
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02-01-2010, 11:36 AM
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#51
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Senior Member
Join Date: Feb 2008
Location: Bayarea,CA
Posts: 679
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Re: This wk things could change, I'm nervous.
Chelee,
Very happy to read your good news! Keeping you in my thoughts and prayers for good results for the bone mets.
hugs,
shobha
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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