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Old 05-10-2011, 07:16 PM   #1
Jackie07
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Booklist

Happened to come across this very nice page full of useful book titles while checking on books by David Frahm and Anne Frahm. Thought I would share it with everyone.

http://www.pabreastcancer.org/patien...ng_list/other/
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
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3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
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Old 05-12-2011, 08:21 PM   #2
Jackie07
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Re: Booklist

Really enjoyed reading the book written by Idelle (Davidson) about chemobrain. Your Brain after Chemo: a practical guide to lifting the fog and getting back your focus is comprehensive and easy to read. I like the gentle, smooth way Idelle presents the hard facts and the recommended strategies.

Having had two full doses of chemo in 2003 and 2007, I can attest that 'chemobrain' is a 'fact'. The neuropsychologist who tested me in 2008 and 2009 listed my chemotherapy as one of the factors (besides my two brain surgeries in 1990 and 2001)of my 'cognitive decline'.

Fortunately I've been pretty much following the strategies suggested in the book. A lot of the things mentioned in the book have been discussed on the Her2support Board. However, it is really nice to have something easy to read on hand. Had a chuckle at the guideline quoted from American Journal of Medicine (by Dr. Joe Alpert) which put 'inherit good genes' on the top of the list. And how true is the last step of the '9 daily steps you can start today': "Avoid Doctors, Drugs, and Hospitals!" It does come with a qualification: "If you urgently need medical care or if you are in treatment for cancer, the advice does not apply to you."

There is one correction needed on the formula of the pulse rate (page 165) to make it mathematically accurate. Though the example clarifies how the formula works, there should be a parenthesis before the multiplication function:

" (220 - your age) x .85

(For example, for a sixty-year-old, 85 percent
of 160 equals 136)"

Order a copy 'now' before it 'slip your mind'.
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Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 05-21-2011 at 04:00 AM..
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Old 05-16-2011, 07:04 AM   #3
pibikay
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Re: Booklist

Thanks Jackie.I will try if any are available here
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huband of Hema
Metstatic Breast Cancer Stage 4
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ossousmetstatis in vertbrae secondaries L4=L5secondary
nodules in both liver lobes secondary
Diagnosed 10th March 2010
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Taxotrne Zylotec started 16th March
Herceptin added 5th April.9th Herceptin over on 20th Sep '10.Started on Tykerb and Xeloda on 22nd Oct2010TYKERB 4 TAB A DAY XELODA 4 TAB A DAY ONE WEEK ON ONE WEEK OFFZoletrust infusion every 4 months.Lesion in Brain 3D CRT Radiation started on 1st Feb'12 for 20 days ,5 days a week for 4 weeks.Devloped a small lump in breast.Xeloda stopped from 11th April '12.On Taxol.After 3 cycles of Taxol Taxol stopped.Back to Xeloda regime from 3rd July
Herceptin started again on 27th Dec 2012.Xeloda stopped Navelbin added on 7th February 2013.Now on Tykerb Herceptin and Navelbin
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Old 05-18-2011, 01:27 PM   #4
imdavidson
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Re: Booklist

Hi Jackie,

Thank you for your kind words about our book, "Your Brain After Chemo." It means a lot to me to hear that you found it (and our 9 daily steps) helpful and have recommended it to others.

Now, regarding that "goof" with the missing parentheses before the multiplication function, I didn't catch it (but I have an excuse: I'm terrible at math (-, my co-author, I guess, didn't catch it and my editors apparently didn't catch it. The only person who DID catch it and/or bring it to our attention, is YOU (and I'll let the publisher know before the next reprinting).

And that's what I think is so neat: You noticed something that others did not -- a wonderfully non-chemo-brainish thing to do!!

All the best,
Idelle
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Idelle Davidson
Co-author (with Dr. Dan Silverman at UCLA) of "Your Brain After Chemo: A Practical Guide to Lifting the Fog and Getting Back Your Focus" (Da Capo Lifelong Books, 2009). Amazon. www.YourBrainAfterChemo.com.

ER/PR negative/HER-2 positive
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