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02-28-2007, 08:00 AM
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#1
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Senior Member
Join Date: Sep 2005
Posts: 312
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Information from those with small size tumors at diagnosis
A question for all of the Her2's that were originally diagnosed with a small tumor, stage one.
Please post any information that you think others that are confronted with a similar diagnosis would find helpful. Age, size of tumor, treatment, all the info about the tumor, etc.
I will go first. Most of the info is found in my signature. I am just over two years out with a 9mm tumor (was thought to be 4 mm prior to lumpectomy) and NED. I was 60 years old at the time of diagnosis.
__________________
Janet
Endometrial Cancer 2002
Mammogram 11/2004
Lumpectomy 12/2004
Stage 1, 9mm DCIS, grade 2, Her2+++, ER/PR negative
Refused A/C as recommened by two oncs.
35 treatments of radiation that ended March 4, 2005
Changed oncologists and began
Taxotere/Herceptin August 2005. Finished Herceptin July 2006
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02-28-2007, 09:01 AM
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#2
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Senior Member
Join Date: May 2006
Posts: 144
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My signature includes my diagnosis & treatment so far. As you can see, while still on Herceptin I developed a recurrence. Today I go to find out the result of PET/CT & biopsy to see what I need to do next.
So I was initially Stage 1, now I'm not sure.
- Anna
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- Anna
Stage I - DX 9/2005 ER/PR-, HER2+, grade 3, DCIS, IDC multi-focal (1.05cm)
DD 4 A/C finished Jan 31, 2006
Herceptin weekly finished Jan 31, 2007
recurrence to chest wall on last month of Herceptin
Stage 3B - 3/15/07 - 2 carcinomas in dermal lymphatic
Rads finished 6/5/07
12x TH finished 9/10/07
12/07 - Clear scan!
3/08 - 4 month Melatonin trial
1/09 - osteoperosis - start Alendronate
2/09 - 4-month Simivastin trial
3/13 - take drug holiday after 5 years of Alendronate
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02-28-2007, 09:10 AM
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#3
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Senior Member
Join Date: Sep 2005
Posts: 161
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My history follows:
__________________
Diag. Oct. 2004 age 54 left breast
Stage 1 grade 3; 6mm IDC; unknown amount of DCIS
with comedo necrosis; node neg.
Nottingham Grade 7/9
ER 91% PR 62%; Her2 3.6 by ICH; KI-67 35%
Nov 2004 Lumpectomy; SNB failed so had
full axillary clearance;
Dec 2004 2nd lumpy for clean DCIS margins.
Jan/Feb 2005 4 A/C dose dense;
33 rads finished 6/2005;
Began 5 years Arimidex in 6/2005
No Herceptin
9/2007 Quit Arimidex due to severe side effects.
NED
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02-28-2007, 09:33 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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as you can see by my signature, I had a small tumor...glad you started this thread, will be interested to follow it!!! Right now I am wondering what types of scans I should have for follow-up. My oncologist does not believe in "routine" scans in a case like mine (early stage...etc.) but says any scan I want to have, she will order it.
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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02-28-2007, 09:34 AM
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#5
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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ps. I was 54 yrs old at time of diagnosis!
__________________
Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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02-28-2007, 10:05 AM
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#6
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Senior Member
Join Date: May 2006
Posts: 144
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I didn't have any scans during treatment or after, until the recurrence was found. My onc. said for early stage the only followup would be bloodwork, physical exam ev. 3 months, and how I was feeling. She said scans can have false positives.
Because of the lump I found my onc. ordered a whole body PET/CT.
- Anna
p.s. 49 & pre-menopausal at initial diagnosis.
__________________
- Anna
Stage I - DX 9/2005 ER/PR-, HER2+, grade 3, DCIS, IDC multi-focal (1.05cm)
DD 4 A/C finished Jan 31, 2006
Herceptin weekly finished Jan 31, 2007
recurrence to chest wall on last month of Herceptin
Stage 3B - 3/15/07 - 2 carcinomas in dermal lymphatic
Rads finished 6/5/07
12x TH finished 9/10/07
12/07 - Clear scan!
3/08 - 4 month Melatonin trial
1/09 - osteoperosis - start Alendronate
2/09 - 4-month Simivastin trial
3/13 - take drug holiday after 5 years of Alendronate
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03-07-2007, 09:48 AM
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#7
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Member
Join Date: Aug 2006
Posts: 9
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Most of my information is in my signature.
Karen
__________________
Diagnosed 7/05 at age 32
IDC - 1.5cm tumor, Grade 3
ER+PR-, HER2 3+
Stage 1 with Vascular Invasion
Negative Sentinel Node
4 AC, 12 weekly Taxol with Herceptin
1 year total Herceptin
SOFT Trial - Ovarian Suppression with Exemestane
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03-07-2007, 02:30 PM
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#8
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Senior Member
Join Date: Aug 2006
Location: PA
Posts: 188
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Great Thread...Info in signature
__________________
Susan V - Pittsburgh PA
DX Age 37 on August 3, 2006
Stage 1 Grade 3
ER/PR + (Highly Positive)
Her 2 +++
1.3 & 1.2 tumors right breast
node negative
lumpectomy 8-15-06
A/C Began 9-5-06 Finished A/C 11/6/06
Port Placement 9-15-06
Negative Test for BRAC1 & BRAC2 10-25-06
Began Tamoxofin November 21, 2006
First Herceptin November 27, 2006 Continues every 3 Weeks
First Radiation Treatment December 11, 2006
35 Rads Completed
Final Herceptin Treatment November 12, 2007
Port Removal November 19, 2007
Living Life to the Fullest !!
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03-08-2007, 08:30 AM
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#9
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Senior Member
Join Date: Oct 2005
Location: Boise, Idaho
Posts: 758
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Age 66 at diagnosis (March 9, 2005). Stage 1, high grade idc tumor (.5cm), negative sentinel node. Lumpectomy times 2 to get clear margins.
HER2+++. ER+++, PR+. AC x 4, RADS X 30. Herceptin every 3 weeks for 1 year (finished July 11, 2006). Arimidex for 5 years.
Onc does not routinely do tumor markers as he feels they are generally unreliable. Also no routine scans etc except mammograms on affected side every 6 months and bilaterally every year. Scans etc only if symptomatic.
Marlys
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03-08-2007, 09:57 AM
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#10
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Senior Member
Join Date: Jan 2007
Location: Media (Wawa to be exact), PA
Posts: 104
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My pathology - small tumor
I too am 54 at the initial dx. Seems that we have a lot of company in this "theater"
See my signature for patholgy.
Melinda
__________________
DX BC 12/06
tumor .9
Lumpectomy 1/8
Mammosite radiation completed 2/10
Stage1/Grade 1
clear Margins /Nodes Neg
ER+
IHC +2 Fish +
ONCO 23
Started TCH on 3/2 for 6 rounds of TC once every three weels and a year of Herceptin every 3 weeks -
Finished everything and now on Aromasin
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03-08-2007, 01:07 PM
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#11
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Senior Member
Join Date: Aug 2006
Location: Rowlett, TX
Posts: 138
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Was age 57 at diagnosis. The rest of my info is in my signature:
__________________
Janet in Rowlett Texas
Dx July 2006 IDC 1.8cm, ER-/PR- HER2+ (FISH 7), KI67 High (60%) grade 3, TOPO II neg
Aug2006: lumpectomy, SNB (4 nodes neg), Stage 1
Jan 2007: Finished 6 cycles of TCH (Taxotere, Carboplatin, Her ceptin). Then Herceptin every 3 weeks.
Feb 2007: Completed Radiation
May 2007: Stopped Herceptin due to low LVEF (49%)
July 2007: LVEF now 44% -- starting Coreg
May 2008: Heart NORMAL! Yippee.
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