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Anxiously Waiting
Apparently Barbs doctor has called Genentech and asked for compassionate access to TDM-1. They have responded with an OK to give her the drug so now we are waiting for the hospital treatment center here and Genentech to hammer out the details. We are told there is a lot of paper work, Barb will be the first patient to receive the drug here. My only concern at this point is the financial end, were not sure what to expect. Is there any experience out there with compassionate use of TDM-1? How does most insurance handle this? I dont want to call my insurance company just yet they have been known to slam the door on us in the past.
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Diag. Aug. 2010
ER- PR- Her-2 +++ Stage IV
Mets to T 6th Vertabrae
Radiation to spine
10/23/10StartNavelbine
11/19/10 Port installed
11/22/10 Started 2nd cycle
1/10/11 Finished 2nd cycle
1/24/11 Herceptin Only
3/7/11 progression, start Taxol/Herceptin
4/18/11 Skin mets appear increase treatments to weekly
rash spreads to right breast
7/5/11 enroll in TDM-1 study
7/29/11 randomly assigned Tykerb drop out of trial and start Tykerb /Herceptin no Xeloda skin mets gone Tykerb working
1/31/12 Skin mets return add Xeloda
5/9/12 Stop Tykerb skin mets back
5/17/12 Return to Navelbine/Herceptin
6/26/12 start process for TDM-1 compassionate access
8/28/12 Start TDM-1
10/9/12 third TDM-1 no response yet
10/23/12 Start Haloven
1/17/12 Start Perjeta/ Herceptin/Taxotere
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