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03-10-2007, 07:04 PM
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#1
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Senior Member
Join Date: Apr 2006
Location: MS Delta in Clarksdale="Home of the Blues" (near Memphis,TN)by Misssissippi River/levee's highest pt.
Posts: 224
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kat in the Delta
How have some of YOU found out that YOUR cancer had recurred?? Was it only by a tumor marker- blood test?-or a scan?? Did any of You have Pain in an area that wouldn't go away for longer than 2 wks? "I have had pain at the site of my Masc.in my RIBS on that same side for about 2 or 3 wks". Sometimes I can even feel (with hands on rt.side of rib cage)-""-a rattle/movements like congestion . My last tumor blood marking test CA 27-29 was normal. My Onc is giving me Zometa every 3wks because my bone density was in the lower range of w Osteopenia. I have had about 3 IV's of Zometa since the end of All other chemos. I am also taking Tamoxifen. My Onc. never returned my call, so I went to my reg. MD who ran a bone scan --which was fine. He said something about the "membrane/ ?" between my bones and muscles, & this could make me hurt like having a broken rib(s)....CAN any of YOU explain this to me, or what other tests or scans, if any, would YOU ask for to find out WHY I AM STILL in PAIN ??? Anyone think I Am I overdosed on Zometa??
------- kat in the delta
Last edited by kat in the delta; 03-10-2007 at 07:23 PM..
Reason: left out
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03-10-2007, 08:26 PM
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#2
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Senior Member
Join Date: Nov 2004
Location: Colorado
Posts: 131
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Kat...
Please do not let me create any fear - but the pain you are describing is indicitive of liver metastasis. These are exactly the symptoms Lisa fought before they found the meatastasis in her liver (test after teast after test) and when they did find it in the liver it was already 30% invovled.
PLEASE to not wait. If you cannot see your onc on Monday see your PCP - in our case our PCP was the physician that found it!
Love and Light
Mel
__________________
Mel Gordon, Husband of Lisa Lowe - Queen of Love and Light and the bravest person I know!
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03-10-2007, 09:22 PM
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#3
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Senior Member
Join Date: Nov 2004
Location: Colorado
Posts: 131
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Thread from the HER2 database...
__________________
Mel Gordon, Husband of Lisa Lowe - Queen of Love and Light and the bravest person I know!
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03-11-2007, 12:21 AM
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#4
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Kat -
I think your doctor was talking about Pleurisy regarding your rib pain. I have had that malady too and it is not the same pain as with my liver mets. Pleurisy is a sharp pain that stabs when you take a deep breath. The liver mets was more of an ache due to the swelling liver capsule on my right side.
But, get it checked out.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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03-11-2007, 04:57 AM
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#5
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Kat I had a pain around my surgery site and ribs and it turned out to be nothing more sinister than radiation induced fibrosis but as the other replies have said it may be worth checking if only for peace of mind.Good luck!
Tricia
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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03-11-2007, 07:59 AM
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#6
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Senior Member
Join Date: Feb 2005
Location: Wisconsin
Posts: 159
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hi Kat--
I can't remember what your exact situation is, but I have also had a lot of pain in my ribs since my mastectomy (which was two years ago). It turned out to be bruising from my bra (I was still trying to wear my pre-mastectomy bras). I have better bras now so I don't have nearly as much trouble.
All I have is skin over my rib bones, and human ribs are much more accustomed to having something over them--muscles, breasts, something besides skin! I still get sore there.
I hope you are having a problem similar to mine, rather than a recurrence!
Val
__________________
BLOG:
http://valleygirlvnp.blogspot.com/
Dx 11/04, Age 42, ER-/PR-, HER2+++
3 months weekly Herceptin, Taxol. Carboplatin
Significant tumor shrinkage
Mastectomy 3/05; Stage 3b, 9 cm tumor, 5/8+ nodes
3 more months weekly Herceptin, Taxol. Carboplatin
7/05 30 radiation treatments, IMRT planning approach
Started 1 year of Herceptin 9/05
9/06 Began quarterly triple doses Herceptin. Brain & breast MRIs semi annually.
* * * * * * * * * * * * * * * * * * * * * * * * * * *
6/08 Right breast, intraductal carcinoma, high nuclear grade associated with comedo necrosis; extensive diffusely involved the entire biopy specimen. ER+, PR-, Her2 unknown at this point, 07/08 mastectomy.
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03-11-2007, 03:43 PM
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#7
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Senior Member
Join Date: Apr 2006
Location: MS Delta in Clarksdale="Home of the Blues" (near Memphis,TN)by Misssissippi River/levee's highest pt.
Posts: 224
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kat in the delta
My MD knows it is not pleur(sp)....I have not been coughing with congestion,,but the sound or feeling my rt.rib cage when I take a deep breath in --is very noticeable....my sister could feel it also when she held her hands over my ribs...Know anything else....I did not even know where the liver was...I have gotten rid of books and have this computer instead....I will go to a link with a picture of the body. How did YOU know you had cancer in your LIver?? Could it be felt or have a fluid movement with it ?? What type of SCAN should I have?? kat in the delta
Last edited by kat in the delta; 03-11-2007 at 03:44 PM..
Reason: left out
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03-11-2007, 05:07 PM
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#8
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Senior Member
Join Date: Apr 2006
Posts: 543
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kat in the delta,
If one of your concerns is a rumbling noise when breathing it could be caused by a slight anomaly in the spacing of the 2 membranes surrounding the lungs.
If this is so it is of no concern.
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