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Old 08-09-2015, 01:26 PM   #1
Jackie07
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Re: Brain Met

Hi,

Brain mets are scary. But they are highly treatable. Below is one of the threads about brain mets. You can find more (threads/postings) by using the 'search' button on top. As you can see in the discussion, quite a few of our members have experienced brain mets and many of them have gotten rid of them by using a variety of treatment methods.

http://her2support.org/vbulletin/sho...ain+metastasis
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

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Last edited by Jackie07; 08-09-2015 at 01:32 PM..
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Old 08-09-2015, 07:54 PM   #2
StephN
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Re: Brain Met

Sorry to hear you now have brain mets as part of the diagnosis to deal with.
When I had gamma Knife for a 3cm tumor in my cerebellum, that was the size limit for that kind of radio therapy treatment. I know there are other options now and I hope they can try cyberknife or another non-invasive treatment. Depending on the location they may try surgery and then some sort of radiation to the surgery site.

Let us know how things are moving, as I am sure treating her brain will be the priority now.

As Bonnie here always says, Keep the Faith.
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MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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