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Old 01-15-2016, 08:41 AM   #1
jaykay
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Join Date: Oct 2012
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Re: New members want to join

Oh Andi BB - you are definitely not old!! How many times have I not been able to find something in front of my face? :-).

You are actually one of the youngest at heart on this board.

xoxo
Janis
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March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
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Old 01-15-2016, 06:19 PM   #2
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Re: New members want to join

You are all so nice. I knew I loved you. You remind me why. You are all good eggs, even Pinkie. Tehe... An acquired taste. I'm just me. Real. If that doesn't work for you, look elsewhere. But I am here for you all the same.

Thank you Janis. WELCOME JED...! Even without experience I bet you have thoughts, like you just expressed. It is less scary to know than to wonder and let your imagination run wild. Knowledge is power. And this site has helped every single one of us, including me, at low times when it feels like the planet just fell off its axis in our world. JRA I am glad I posted on the Metastatic Breast Cancer Project Working Group. I also joined the quest to facilitate research. That sounds grand, doesn't it. They're more serious, focused on something really important. They do digress from time to time into silly but somehow it was suggested my input was inappropriate for that forum. I wondered aloud why when you get 1,000+ mbc ladies together it is fruitful to compare what's worked and what didn't. Many agreed. And one kind lady, who is evidently well connected w/many friends in the community tagged my page on FB and introduced me to her friends. Who can't get excited meeting an outlier like me as she called me. MIRACLES DO HAPPEN. Here -- meet one.

IT'S MY GOAL TO MAKE AS MANY OF YOU AN OUTLIER TOO! Flori shares generously from her heart and she is a pretty spectacular lady with winning ways who has defied the odds and made her own trail for others like her to follow. Plus she's an artist and shares her skills with pp who need an therapeutic outlet for their angst. The cancer community sure does stir up some raw emotions that need hugs in all forms. Even this far out, yes I HAD cancer, but you never fully escape. The oncs stalk you, worry about you, spring on anything slightly amiss and plunge you into test and biopsies and surgeries to get biopsies and more tests and then waiting for results and you all the while are struggling to keep your chin above water and not let your thoughts run wild. So many come here at those times and need some love and advice and uplifting messages to occupy your brain instead of the ideas that are so full of fear you could plotz. Pinkie, my linguist, do you know plotz? Can you use it in Scrabble? Is it legit?


Tracy you do have a beautiful generosity of Spirit. Thank you for your words. They touch my heart. I sometimes wonder why I am spending so much time on this post or that but the reason is I see that a lot of pp are looking (? lurking) and not all posting for a number of reasons, so I keep doing what I do. It thrills me to hear specifically that I contributed to making your down day turn a bit rosy.

I love your attitude. And that you are tech challenged as well. I got a CD from my dghtr. She looks so fabulous and she's been exercising to the tape. So when she was finished she would give it to me. She did. Wks, mnths passed. I obviously am not getting any younger or thinner. She asked if I... No... I feel compelled to fess up. Neither your father nor I can figure out how to work the CD thing. I recall many yrs ago we were watching some movie and it took us over a half hr to turn the thing on. Then we were too tired to watch it all... Pathetic yet our reality.

Yes, you will live a full lifespan. SEE yourself far far into the future. When my granddaughter was born I had a dream. Calligraphy in green and it said full screen in my head in my dream Jocelyn Taylor. What could that mean? I asked my other dghtr, her mother. Maybe it's her Bat Mitzvah invitation.

I was sold. I began to envision myself at her Bat Mitzvah in 13 yrs. I was so happy and radiant, standing at a circular table, clapping my hands to the music as was my husb and friends and family. Soon Josie walked out onto the dance floor all dressed up. I was glowing, so proud.

Then -- I lived that dream!!! And that was 6 yrs ago. She is now 19...! Off to college.

So I have other dreams I see myself far far into the future. It becomes a self-prophesizing goal. (??? sp) You make it become a reality. And the Universe works with you, as your thoughts and mental images are made of energy and go out from you. The energy you emit is sensed and responded to IN KIND...

So dream your dream, Tracy. Dream several dreams.

Defy the odds and the stupid predictions. This is your life. You are the Captain of your Fate. See your destiny and then live it!

Hugs to all mentioned and those not,
Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 01-15-2016, 09:15 PM   #3
sassy
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Location: Mountains of Virginia
Posts: 2,267
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Re: New members want to join

There is only one Andi BB and we love you

JUST THE WAY YOU ARE!!!
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Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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Old 01-16-2016, 06:29 AM   #4
PinkGirl
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Location: Canada
Posts: 2,193
Re: New members want to join

I almost plotz-ed when you said someone gave you an exercise video. Have you ever noticed that exercise sounds like extra fries?? I checked and plotz is a valid scrabble word. I heart you too AndiBB!! .
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PinkGirl

Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

My Photo Album
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