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02-15-2006, 05:58 AM
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#1
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Follow-up with "brainy" docs today
Just a quick note to say that I have my first follow-up with the brain surgeon and rad onc this afternoon. I sure hope that the staples can come out as now that the swelling is down, it is actually MORE uncomfortable (I want to turn my head a little bit now). And maybe I will be able to sleep a little better with some of that pressure off.
They should have the pathology back, so let's pray that I don't need further attention to this place in my lower brain.
Missed my regular 3-week Herceptin today as can't drive due to neck position and no one to take me till Thurs., which is OK as I have that 2-day window to stay on schedule.
More later - back to bed and a little more sleep, I hope.
Last edited by StephN; 02-15-2006 at 06:02 AM..
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02-15-2006, 07:18 AM
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#2
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Steph
Prayers that all goes well today for you and all this is behind you....you are such an inspiration to all of us, you never lose sight....thanks for all your sharing, you have made this less scary for many of us who may face the same in the future.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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02-15-2006, 07:40 AM
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#3
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Senior Member
Join Date: Sep 2001
Location: California's Gold Country
Posts: 404
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Your appt. today
Dear Steph,
I know this has got to be a very anxious time for you right now(I know how anxious I'm feeling for you) We want to know that all the aggressive treatment we have undergone is paying off. I just believe in my heart that it will payoff and you will be back on track in no time.
I am waiting for insurance approval for my next 3 month MRI. As you may recall from my earlier posts, the company that my husband worked for was bought out by a huge national company and we were not sure if we would even have a job or insurance after it was all said and done. Turns out he is staying on with the new company and we do have insurance, but I think I may have to jump through alot more hoops to get things approved. My doctor ordered the MRI last week and I still haven't heard back from them, so I guess it's time to start squeaking! The funny thing is, I thought I was due in March for my 3 month MRI, but I am actually due this month. My last one was is November, and somehow I just lost track of the time!
Just know that I'm sending postive energy and prayers your way. Do keep us posted and try to get some rest when you can.
Love, Kim
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02-15-2006, 10:12 AM
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#4
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Senior Member
Join Date: Sep 2005
Posts: 556
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Steph,
Sending positive energy and prayers. Hoping everything will turn out to be alright.
-Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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02-15-2006, 10:17 AM
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#5
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Senior Member
Join Date: Sep 2005
Location: Riverside, CA
Posts: 484
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Steph we're with you in spirit!! Hope it all goes well today.
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02-15-2006, 10:42 AM
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#6
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Senior Member
Join Date: Nov 2005
Location: Philadelphia
Posts: 144
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Sending prayers for you.
Ginagce
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02-15-2006, 12:01 PM
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#7
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Guest
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I am saying a prayer for you for a good path report. hugs, Sandy
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02-15-2006, 02:23 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Thinking of you, Steph!
Barbara H.
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02-15-2006, 04:08 PM
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#9
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Steph, thank you for the update! I was worried about you and am glad to hear you're starting to get a little impatient with things, as that's a sure sign you're on the road to recovery  Keep smiling, and enjoy those well earned naps.
<3 Lolly |
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02-15-2006, 04:12 PM
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#10
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Stephanie,
I am thinking of you and saying prayers.
Love,
Lexi
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02-15-2006, 05:49 PM
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#11
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Senior Member
Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 638
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Dear Steph,
It is 7:45 EST so it must be 4:45 PST...you must be just finishing up your appointment ... we are all thinking about you, please stay with us and let us know what the path report said...
Love Kim from CT
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02-15-2006, 06:45 PM
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#12
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Can you say N-E-C-R-O-S-I-S ??
The neurosurgeon said that what he removed from the old tumor bed was 100% necrosis and NO tumor evidence found.
So, fooled them all again. Will post above. I know all the good thoughts and prayers were heard and went a long way to keep me in control (means not freaking) during this.
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02-15-2006, 11:42 PM
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#13
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Senior Member
Join Date: Sep 2005
Location: British Columbia, Canada
Posts: 198
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Oh Steph..I am so HAPPY for you..this is the best possible news!! Wow you did it AGAIN!!! Way to go..
Tammy
__________________
Dx'd Dec'01 while 6mos preg. with #4. child (30yrsold)Mastectomy/AC chemo/radiation/ Recur:Mar'04 liver mets: 3 taxol/herceptin /liver resection/3 taxol/herceptin. Cured?
Recur: May'05 spine & Hip. New onc
treatment in Mexico Feb'06-Mar-06
back to Mexico June/July '06
Currently on herceptin/Zometa/Femara-recently added navelbine
Switched to arimidex Nov'06
ovaries removed June '07
ca15-3 in May'06 was 102
ca15-3 summer of '07 holding steady at 23!
ca15-3 slowly rising Dec & Jan 36, 38, 41 and Feb was 36
Feb '08 Liver, lung & Brain scan NED... bones are stable with even a couple spots gone. as compared with '06 scans
May '08 ca 15-3 is 55. Treatment is zometa, vinorelbine, herceptin and aromasin.
No signifcant changes.
Feb'09 Started Xeloda with herceptin..no more hormonals
Feb'09-June'09 tumor markers coming down again from 155 to 84
May'09 blood clots in lungs vena cava filter put in..Heparin shots daily for now.
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02-16-2006, 04:55 AM
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#14
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Senior Member
Join Date: Sep 2005
Posts: 64
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Steph: you're in my thoughts and prayers. BERTA
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