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09-20-2013, 08:59 PM
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#1
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Senior Member
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
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Fri the 13th Scans... Any News?
Hello Friends!
Several of you mentioned that you had scans scheduled late last week...
Any news to report?
Hoping for good news! But, even if the news isn't great... please let us support you with our love and prayers.
Denise
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09-21-2013, 04:46 AM
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#2
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Senior Member
Join Date: May 2012
Location: Bethlehem PA
Posts: 395
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Re: Fri the 13th Scans... Any News?
I had my lungs scanned for the third time and got the results on Fri the 13th. Area they were watching has stayed the same "looks a bit smaller actually" so no more scans for me. Also, I asked my rad onc why the job posting in her dept. that I applied for was retracted. She says there is a hiring freeze and my resume is at the top of the pile for when the freeze is lifted.
A long long time ago I turned 13 years old on Fri the 13, I also lived in the 13th house on our road. I'm not afflicted with triskaidekaphobia!!
__________________
 39 year old wife, mother of one and nurse.
April 20, 2012: Dx Invasive Ductal Carcinoma
April 25, 2012: ER+(5%), PR-, HER2+++
May 10, 2012: BRCA 1,2 Negative
May 23, 2012: MUGA Scan EF 70%
May 31, 2012: B/L Mastectomy. 2/2 nodes removed and CLEAR!! Power Port placed. 2 Drains. 2 Expanders placed
June 5, 2012: Drains OUT! Ahhhh..
June 12, 2012: Final Pathology Report, .8x.3cm tumor. Micromets to 1 node .35mm under cytokeratin staining. Stage 2A. Onc says "you are lucky to have found this early"
July 10, 2012: Started 6 rounds of TCH with weekly H
Sept 5, 2012: MUGA 65%
Sept 20, 2012: CAT scan of brain clear!
Oct 23, 2012: LAST TC! AMEN! Continue Herceptin every three weeks until July 2013.
Nov 19, 2012: Port out!
Dec 5, 2012: Started radiation
Dec. 10, 2012: MUGA 65%
Dec. 13, 2012: Turned 40. BEST BIRTHDAY EVER!
Jan 23, 2013: Last radiation. Told I am NED. Continue Herceptin every three weeks till July 2013.
Jan 29, 2013: Begin 5 years of Tamoxifen.
Feb 28, 2013: CT Scan with Contrast of lungs. 5mm and 4mm nodules of unknown origin. Rescan in 3 months.
Mar 6, 2013: EF 60%
May 8, 2013: Exanders out, implants implanted...abd. lipo and fat moved up. Girls are looking good!
June 3, 2013: CT Scan with Contrast of lungs. Previous nodules gone. New nodules (2mm and 3mm) found. Rescan in 3 months. So sorry I opened this can of worms...
June 11, 2013: EF 60%
June 25, 2013: Last Herceptin. wow...
Aug 20, 2013: Tumor markers within normal limits. Xray to sore left ribs shows no disease or fractures.
Sept 9, 2013: CT of lungs shows no disease. Closing this can of worms and moving on.
Nov 20, 2013: Tumor markers within normal limits. Severe Vit D deficiency, started on prescription Vit. D. Blaming chemo for this.
Feb 2014: Tumor markers within normal limits.
May 2014: Tumor markers within normal limits. Graduated to twice yearly onc appts.
Oct 2014: Tumor markers within normal limits.
May 2015: Tumor markers WNL. Bone density scan fine. Bone scan and xray of ribs shows "something" 4th right rib. Could be healed fracture but if it is healed why does it hurt?
Nov 2015: Tumor markers WNL. Follow up bone scan clear.
Feb 2016: Syncope! WTF? Dizzy too. Brain scan clear, ECHO EF 60%, Halter Monitor shows heart is fine. Viral? I will never know.
June 2016: Tumor markers WNL.
Oct 2016: Stabbing pain right eye. Long story short, trigeminal neuralgia.
Nov 2016 Brain MRI clear.
Jan 2017: Tumor markers WNL, still getting weird pain right rib area, and sometimes right upper chest. Xray x2, Bone Scan, Breast MRI all clear. Scar tissue? Rads. I may never know.
www.onmywaytosurvivorhood.blogspot.com
www.thechemobag.com
www.facebook.com/thechemobag
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09-21-2013, 07:35 AM
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#3
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Senior Member
Join Date: Feb 2012
Location: Ontario, Canada
Posts: 115
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Re: Fri the 13th Scans... Any News?
Denise,
I've been thinking about you, cuz guess what??? My neurosurgeon is looking in to avastin for me. I will find out on Tuesday what will happen next. My radio/SRS doctor said he was worried because of the swelling, which worried me. However, my neurosurgeon made me feel better because he things that it still looks like necrosis and the swelling is a bit more, but not by much. He said another scan in 2 months. I'm going to pray to every god out there for shrinkage within the next two months. In the mean time Avastin may just do the trick. I'm up to 8mg per day now, which you know, is good. SO....hey, twin, we may be in this together fully if I get on the Avastin. Surgeon won't do the surgery either. Not a good idea at all!
Love ya! Jill xoxo How you doing Denise?
__________________
[
Feb 2013 - NED
Mar 2013 - thought I had progression, watching brain.
April 2013 - GOT MARRIED!!!!
May 2013 - looks like no progression, but necrosis and bigger.
Oct-Dec 2013 - Avastin tx
Nov 2013 - MRI shows necrosis shrinkage!!!!
Jan 2014 - Lepto Mening. disease found
Feb 2014 - WBR
March - BLAHHHH
April 2014 - Liver mets found
April 2014 to present - Chemo again, whooohoo. Fun!
July 2014, scans look good.
Stay on Perjetand hercertin.
Nov. 2014 more lepto-mening disease more WBR.
Feb 2015 more lepto-mening disease in spine and neck. More radiation.
Start on TDM1 no more Perjeta stay on herceptin
March 2015 more radiation in my thoracic area, more lepto-meningial disease
April 2015 trying to walk again.
[/SIZE][/FONT]
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09-21-2013, 08:42 AM
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#4
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Senior Member
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
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Re: Fri the 13th Scans... Any News?
Leah!
That's great news! About you scans, and about the job possibilities! Yay you!
I'm not triscadekaphobic either... I got married on the 13th! Couldn't have been any luckier!
Jill,
Avastin is very easy to tolerate... and it seems to be doing the trick for me! That's so cool that your docs are looking into it for you. It's my understanding that even here in the states, it's not commonly used for necrosis yet. I'll keep my fingers and toes crossed. And, I'll bombard heaven too!
If you think having your doc talk to mine would help, I'm sure he'd be happy to chat... he's sort of a pioneer at using Avastin for necrosis... and he's a genuinely good person, on top of being an excellent surgeon!
Anybody else have scan news??
Denise
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09-25-2013, 05:10 AM
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#5
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Senior Member
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
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Re: Fri the 13th Scans... Any News?
Anyone else have news?
Jodie? Vicky?
??? Hoping and praying for news
Denise
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09-27-2013, 11:49 PM
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#6
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Senior Member
Join Date: Dec 2011
Posts: 585
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Re: Fri the 13th Scans... Any News?
As of my September 13 scans, I am still NED! Holding on to NED like mad, and hope we get to dance together for a good long while. No more scans until November, so I get a month off. I can deal with a month of no scanxiety.
Big hugs and lots of prayers for everyone. Jody
__________________
Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
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09-28-2013, 07:05 AM
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#7
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Senior Member
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
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Re: Fri the 13th Scans... Any News?
Yay, Jody!
Great news!
Denise
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09-28-2013, 03:13 PM
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#8
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Senior Member
Join Date: Oct 2011
Location: Geelong, Australia
Posts: 250
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Re: Fri the 13th Scans... Any News?
I have some bad scan results NEDenise 
I have been on TDM -1 trial for a few months, and my scans last week showed my two lymph nodes in the chest wall are still stable, but I have a new lump in the breast, and some axilary lymph nodes. So, progression whilst on Godzilla. I never had a mastectomy as I was diagnosed at stage four, and went straight to chemo.
The trial onc wants to treat aggressively and do a mastectomy and radiation to the chest wall. I will be going back to my old onc though, who is closer to home, and in a much nicer, quieter hospital. I have an upcoming appt with her, but I think i know what she will say - no mastectomy, no radiation, just change chemo. She is of the opinion that it is already stage 1V, why put yourself through the pain of surgery and radiation, when chemo hopefully can clear all the areas? I still consider myself very lucky to not have organ/bone/brain involvement. Although the trial nurse forgot to book a brain scan, so I am not sure if that is clear.
I have a holiday booked, I just knew something would come up! But I am going away for 9 nights, I am going to enjoy time with my family, maybe a few cocktails, and try not to worry what comes next!
Love to you
Dawn xx
__________________
Dx May 27 2011, age 43
Stage 1V 3.6cm breast lump, spot on lungs, nodes chest + neck
HER2+ ER/PR-
Abraxane weekly - 16 weeks
Herceptin every third week
September 26 2011 N.E.D!
Herceptin ongoing
8th Dec 2011 Brain MRI - clear
20th Dec 2011 bone/cat scan clear still NED
April 2012 scans show axillary node lump - ? what to do...
June 2012 Axillary node dissection 1/11 nodes affected, a wide local excision shows DCIS. Now what to do again? Watch and scan 3 monthly
April 2013, two spots in nodes to chest wall, start TDM1 (Kadcycla) as part of clinical trial
July 2013 stable
Oct 2013 progression off TDM-1 (Kadcycla)
Nov 2013 radiation to lymph nodes in sternum
Dec 2013. Mastectomy right side, pathology shows tumour was HER-2 negative, no wonder TDM-1 (Kadcycla) didn’t work!
April 2014 NED. On Herceptin only
August 2014 NED. On Herceptin only
March 2015. NED. On Herceptin only
September 2015 NED on Herceptin only
March 2016. Pulmonary embolism, Clexane injections daily forever. Still NED On Herceptin only
Nov 2016. Bone Mets in ribs - Radiation. Don’t know if bone Mets are er-/pr-/HER2+ or triple negative.
Can’t give self injections on to tablets (Xarelto) for blood clots.
2017 NED - On Herceptin only
2018 NED - On Herceptin only
2019 NED - On Herceptin only
2020 NED - On Herceptin only
2021 NED - On Herceptin only
Last edited by dawny; 09-28-2013 at 03:15 PM..
Reason: Typos
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09-28-2013, 08:44 PM
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#9
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Senior Member
Join Date: Apr 2012
Location: Melbourne, Australia
Posts: 494
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Re: Fri the 13th Scans... Any News?
Sorry to hear your news, Dawn. I guess you will be happier getting treatment closer to home and with your usual oncologist. Have a wonderful holiday and forget about all the cancer crap for at least a few days! Let us know what your next treatment option will be.
Best wishes.... Pam
__________________
Diagnosed 2004: Lumpectomy - 2 tumours, both grade 1 infiltrating duct carcinoma, about 12mm. ER+,
C-erbB-2 status 3+.
Clear margins, no nodal involvement.
Radiotherapy, i year Tamoxifen, 4 years Arimidex.
Rediagnosed 2012: Multiple bone metastases.
3/12: began on Marianne trial - T-DM1 + Pertuzamab/Placebo.
5/12:Unexpected development of numerous bilateral liver mets. Came off trial.
Started Docetaxol/ Herceptin + Zometa.
8/12:Bones stable +major regression in liver (!)
9/12:Can't take any more Docetaxol! Start on Herceptin and Tamoxifen. Cross fingers!
Changed to Denosumab.
11/12: Scan shows stable - yay!
11/13: Still stable :-) !!!
1/16: All stable, but lowered calcium, so switched to Zometa 3 monthly.
2/19: Happily still stable on Herceptin, Letrozole and 3 monthly Zometa.
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09-29-2013, 02:07 PM
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#10
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Senior Member
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
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Re: Fri the 13th Scans... Any News?
Aw, geez!
Dawn,
I'm with Pam! Go enjoy your holiday, and tackle this mess when you get back.
I'm sure your regular onc will have a terrific plan for knocking out those nodes and other signs of progression. And your refreshed mind and body, freshly returned from vacation, will be ready to jump back into the fray and kill the beast!
Keep us posted!
Sending love and a wish for GRAND holidays!
Denise
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09-30-2013, 08:01 PM
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#11
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Senior Member
Join Date: Apr 2011
Location: Michigan
Posts: 1,173
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Re: Fri the 13th Scans... Any News?
Dawn please know that you are in my prayers as all the woman here. Peace my friend
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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10-01-2013, 06:03 AM
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#12
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Senior Member
Join Date: May 2011
Posts: 137
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Re: Fri the 13th Scans... Any News?
Oh prayers Dawn- so sorry to hear. Glad however, that you are going on a trip!
Denise- so thoughtful of you to think of us that had scans. Two spots on my brain are indeed shrinking and one treated over a year ago appears stable and will be watched  The bigger news however, is that my radiation onc wants to go ahead with srs to my right lung and zap a lymph node under my arm- in order to do that he wants me off my Tykerb and guess what- on to Avastin. You're leading the way dear Denise!
__________________
3-16-11 dx IDC 4.4 cm tumor, right breast,HER-2 neu 3+++, Stage III
3-25-11 PET scan shows 3 mets to liver and 1 to spine, Stage IV
4-12-11 start clinical trial of TDM1 infusion 1x every 3 weeks.
6-14-11 CT scan after 3 cycles shows NO liver spots, reduced spinal met from 18mm to 13mm and right breast mass from 4.4 to 4.2 cm.
8-12-11 Mastectomy rt. breast.
10-11 scans reflect stable cancer
12-11 MRI reveals area of concern in brain, CT scan reveals 3mm spot on lung. Watch and wait and rescan in a few weeks. Round 13 TDM1 complete.
2-21-12 Scans reveal progression in lungs with 4 new small mets. Officially off tdm1. Start halaven and radiation for single brain met, 1 spot in spine.
3-13 stereotactic radiosurgery for single brain met.
5-31-12 Halaven stopped due to low blood counts. Start tamoxifen and cont. Herceptin 1x3 weeks.
7-11-12- brain mri shows shrinking brain met and no new lesions. Cont. Herceptin and Tamoxifen
10-2-12 Stable tumor markers. Continue Herceptin and Tamoxifen
4-9-13 progression in lymph node under arm and new lung spots. Stop Tamoxifen. Add Xeloda to Herceptin.
6-10-13 Stereotactic radiosurgery to two new brain mets. Stop Xeloda due to lung mets progression. begin Tykerb 7-2-13.
10-29-13 Begin radiation to my lungs and one lymph node under my arm. Stop Tykerb until completion and then recommence.
1-31-14 Progression in lungs. Oophorectomy performed.
2-18-14 Begin Arimidex and continue Herceptin
7-7-15 progression with spots on colon, in pelvic region, and in lungs. Begin Taxotere, Perjeta and Herceptin.
11-15 Switch to weekly Taxol, and continue with Perjeta and Herceptin.
12-23-16 PET scan shows Complete Response with no new spots. Continue on with TPH indefinitely.
3-16-16 Still no evidence of disease, break from Taxol. Continue on with Perjeta and Herceptin.
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10-01-2013, 06:15 AM
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#13
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Senior Member
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
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Re: Fri the 13th Scans... Any News?
Vicky,
Of course I'm thinking of you guys!
We're all in this together my friend!
My "sisters" here are the only people in the world who truly "get" what it's like to be me.
Avastin is a very, very easy chemo!
I hope it does exactly what you need it to do.
But as for my "leading the way...
you're no doubt familiar with the saying "it's like the blind leading the blind"
DearJilly starts Avastin on Wednesday... we could all do Genentech commercials!!
I don't know anything about SRS to the lungs...
but the gamma zap to my brain was a breeze
(whoa, those are certainly words I never thought I'd hear myself say! - our reality is a little surreal sometimes huh!?)
Hoping and praying your zap does the trick!
Sending love and a big hug!
Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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10-02-2013, 04:54 PM
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#14
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Senior Member
Join Date: Dec 2011
Posts: 585
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Re: Fri the 13th Scans... Any News?
Dawn...Im sorry to hear that your scan results were not as we had all hoped. Certainly sending lots of prayers and positive energy. I agree...you will come back from your vacation even stronger and more refreshed and ready to take on the new plan your doctor will have for you. Big hugs to you!
__________________
Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
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