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Old 05-02-2016, 07:44 PM   #1
europa
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Posts: 362
Hair shedding...it happens all at once now

I have noticed something rather unique. Since my hair has come back, once a year my hair sheds, like a dog during spring. And for about 3 months I look like I have extremely thin hair. Actually, more like a rats nest with weird patches of long hair and bushy short hair. Then it balances out again. Before I would shed hair in tiny batches like everyone else. A little a day.
Has anyone noticed that your hair's shedding routine was permanently altered after treatment?
__________________
DX 10/2011
PET Scan + MRI 10/2011
Lumpectomy 11/11/11
Stage 2B +++ ER+(10%), PR+(5%), HER2+++(1 positive node, 1 micromets to second node)
AC started 12/2011 ended 1/2012
Taxol + Herceptin weekly for 12 weeks ended 4/2012
30 zaps of radiation done 6/2012
Tamoxifen 6/2012
every 3 weeks of Herceptin for another year.
Metformin Trial 8/12
10/12 MRI- CLEAR
01/13 BRAIN MRI- CLEAR!
01/13 Neck MRI- CLEAR!
FINISHED HERCEPTIN 1/9/2013...Woot Woot
Starting Walter Reed Vaccine Trial 2/13
CT Scans + ultrasound of abdomen CLEAR-5/13
02/2015 through 11/2015 emergency D&Cs for Tamoxifen induced uterine polyps which caused uncontrollable hemorrhaging
12/2015 blood clot to left leg caused by Tamoxifen. No longer taking it. On Xarelto, a blood thinner
12/2015 Ablation to prevent hemorrhaging from potential issues with Tamoxifen residue in my system
1/2016 continuing journey without hormonal therapy. Reevaluating the option of a hysterectomy and oopherectomy.
4/1/2018 2mm stroke. Yes, stroke! No cause ever found but they believe it was a migraine that went bonkers and created a tiny clot. No deficits. I was back to normal with 24hrs. Now on baby aspirin for life.
7/27/2018 hysterectomy and oopherectomy
01/07/2019 Mastectomy and expanders put in
3/22/2019 Vtach, almost died. Cause unknown.
7/22/2019 New perky boobs put in
7/21/2020 Off of all drugs but a baby aspirin because of the stroke in 2018.


www.mychemobag.org
www.facebook.com/mychemobag

8 YEARS NED
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Old 05-02-2016, 08:49 PM   #2
caya
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Location: Thornhill, Ontario Canada
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Re: Hair shedding...it happens all at once now

Wow, I was just thinking the same thing this week - I noticed my hair is shedding more than usual the past couple of weeks- I'll have to take note if this is a"Spring thing".

One home remedy I've been using to help with hair volume/thickening is to take one tablespoon of organic coconut oil and one tablespoon of Manuka honey (or organic honey, Manuka is expensive), heat them in a small saucepan together. While still warm (warm, not hot!), pour over your hair, mostly on the ends if your hair is thin, put into a bun and cover with a plastic shower cap for about 30 minutes. Then wash well as usual, you'll need 2 shampoos.
If your hair is very long you may need to double the amount.

all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!

Last edited by caya; 05-02-2016 at 09:07 PM..
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Old 05-04-2016, 10:39 AM   #3
roz123
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Join Date: Mar 2012
Posts: 199
Re: Hair shedding...it happens all at once now

I have major hair thinning - although not seasonal
for me the cause is hormone therapy/menopause at a young age
saw my GP yesterday and really there is not much you can do other than Rogaine/Minoxidal, even Biotin supplements are controversial in terms of effectiveness (I do take them but I don't see an improvement)
hopefully yours is just cyclical
__________________
diagnosed aug/11
right breast IDC 2.2 cm LVI
neoadjuvant fecx3, tax and her x3
surgery -pCR 0/2 nodes
25 rads
herceptin x18
tamox
prophy bi-msx with TE's oct 15/12
LD flap reconstruction (PM me if you want the details)
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Old 05-05-2016, 03:16 PM   #4
europa
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Posts: 362
Re: Hair shedding...it happens all at once now

Thanks for the replies! Mine is totally cyclical. I find that I have to cut my hair by 3 inches so the old hair that is left blends with the newer younger hair. This year I'm going to let it grow out more to see if I can get away with it.
I am going to try the coconut oil thingy. I love coconut oil so I'll give it a whirl
__________________
DX 10/2011
PET Scan + MRI 10/2011
Lumpectomy 11/11/11
Stage 2B +++ ER+(10%), PR+(5%), HER2+++(1 positive node, 1 micromets to second node)
AC started 12/2011 ended 1/2012
Taxol + Herceptin weekly for 12 weeks ended 4/2012
30 zaps of radiation done 6/2012
Tamoxifen 6/2012
every 3 weeks of Herceptin for another year.
Metformin Trial 8/12
10/12 MRI- CLEAR
01/13 BRAIN MRI- CLEAR!
01/13 Neck MRI- CLEAR!
FINISHED HERCEPTIN 1/9/2013...Woot Woot
Starting Walter Reed Vaccine Trial 2/13
CT Scans + ultrasound of abdomen CLEAR-5/13
02/2015 through 11/2015 emergency D&Cs for Tamoxifen induced uterine polyps which caused uncontrollable hemorrhaging
12/2015 blood clot to left leg caused by Tamoxifen. No longer taking it. On Xarelto, a blood thinner
12/2015 Ablation to prevent hemorrhaging from potential issues with Tamoxifen residue in my system
1/2016 continuing journey without hormonal therapy. Reevaluating the option of a hysterectomy and oopherectomy.
4/1/2018 2mm stroke. Yes, stroke! No cause ever found but they believe it was a migraine that went bonkers and created a tiny clot. No deficits. I was back to normal with 24hrs. Now on baby aspirin for life.
7/27/2018 hysterectomy and oopherectomy
01/07/2019 Mastectomy and expanders put in
3/22/2019 Vtach, almost died. Cause unknown.
7/22/2019 New perky boobs put in
7/21/2020 Off of all drugs but a baby aspirin because of the stroke in 2018.


www.mychemobag.org
www.facebook.com/mychemobag

8 YEARS NED
europa is offline   Reply With Quote
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