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Old 10-28-2012, 11:52 AM   #61
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Re: Surgery tomorrow - finally!

Thanks so much, KSGal. When you look back, I have had a lot happen connected with this cancer diagnosis. But, I took the route of "using a sledgehammer" on my cancer and not going easy with it. Seems most docs these days are more into the QOL (which they can because of the newer drugs), but I had to "go for a remission."

As for the "exposed nerve root" - that was during the surgery when I was pleasantly elsewhere. The neurosurgeon had to "expose" that area to find out exactly what was wrong. And true to the CT myelogram, he found it.

Here is a link to the particular (METRx) instrument my neuro used to minimally access my spine area. My incision was small and has healed very quickly.
http://www.back.com/articles-metrx.html
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.

Last edited by StephN; 10-28-2012 at 12:25 PM..
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Old 10-28-2012, 01:55 PM   #62
Pray
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Join Date: Apr 2011
Location: Michigan
Posts: 1,173
Re: Surgery tomorrow - finally!

Steph, That is just crazy amazing! Thanks for the showing the intrument. I am in awe ouch?
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dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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