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09-22-2009, 07:20 AM
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#21
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Senior Member
Join Date: Sep 2006
Location: Chicago, IL
Posts: 105
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Marie - Both you and Ed are in my thoughts and prayers. I am so so sorry. Peace be with you too.
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09-22-2009, 07:38 AM
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#22
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Dear Marie,
My heart is aching for you. I can't express to you how I am feeling, but please know that I am praying right now for God's comfort and strength to surround you both as Ed prepares to move on.
Love and Prayers,
Lexi
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09-22-2009, 07:55 AM
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#23
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
It is a sad time indeed. Love and prayers to you both. XO Suzan
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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09-22-2009, 08:51 AM
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#24
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
I am so sorry Marie.
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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09-22-2009, 09:05 AM
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#25
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Senior Member
Join Date: Apr 2008
Location: me & my three HANDSOME grandsons!!Jacksonville, Arkansas
Posts: 354
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Awww Sis, I really hate this for you. Remember, I have very large shoulders. We are all here to catch you.
__________________
Terri B.
46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
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09-22-2009, 09:42 AM
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#26
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Senior Member
Join Date: Feb 2008
Location: Bayarea,CA
Posts: 679
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Dear Marie,
Praying deeply for Ed and you. May god give him peace.
hugs,
shobha
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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09-22-2009, 10:14 AM
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#27
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Senior Member
Join Date: Dec 2005
Location: Illinois
Posts: 327
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
I hate Mr. Cancer running rampant in our loved ones... but at one point I realized DAMN IT! We're all terminal. Then I didn't quite feel so alone anymore. Cancer was my worst enemy, until it made me stop taking my life for granted, and living every moment I could to the best of my ability. I used to think it was the most inhumane unnatural way to die, but now I've changed my tune (a little). After the anger settles some, (and it took me over 15 years after my mother's, brother's, uncle's, and grandfather's death from it) I realized it was kinda nice to have a warning. My mother was the first to go at the age of 33, and after years of wishing I had told her goodbye, I got the chance with all my other relatives.
As I sit and write the memoir about my life, I am almost thankful that I was pushed into doing it by cancer. I was pushed into making scrapbooks for my children to cherish when I am gone. There are some good things, but much anger when dealing with being taken too soon. I've already lived 4 years longer than I thought I would and at any given point, it might be over. I wish there were more I could say to comfort you, but it's a cherished treat to be able to hug the one you love, tell them how much they mean to you, and how much you will miss them.
As I said 'goodbye' to a friend I had met in the chemo room, the ole' man hugged me and said I helped to brighten his stay in the dreary days he spent getting chemo. I got to hug this newfound friend, on his way back to his home state, where he spent the last few days. He hugged me in a way I will never forget and always cherish. I hope you will too someday be warmed by all the good memories... No matter how comforting you can try to be, "The more you love, the more you ache". I know you loved him so much that it hurts. You have an amazing amount of love and support here to lean on. What a tribute to his memory. I know it's gagging sometimes to get people's advice, but here is mine: "let people help you and try not to rob them of that wonderfully giving opportunity". Lots of love, Julie
__________________
Jan04: Bilateral Mastectomy at age 28
Initial DX: Left Breast: IDC 2cm, Grade 3, HER2+3, 0 Nodes +, ER/PR-. Right Breast: Extensive DCIS ER-/PR+; Stage 1-2a
Feb04-Apr04: 4 AC, dose dense
Aug 04: 4 Taxotere
Dec 05: Bone and Liver METS; Stage 4. Carboplatin/Taxol/Herceptin. DX with Li-Fraumeni Syndrome
Apr 06: NED, maintenance Herceptin
Apr 07: CA1503=14; masses in liver; Xeloda/Tykerb
Nov 07: NED, Tykerb maintenance
Sept 08: Liver mets again, on Tykerb/Xeloda again, CA=19 and 27
Nov 08: Progression, Tykerb/Gemzar, CA=25
Dec 08: Progression, Herceptin/Navelbine, CA=40, 57, and 130
Jan 09: Progression in bone, recession in liver, Herceptin/Carbo/Abraxane CA=135
June 09: CA27/29=24, chemo break
Sept 09: Progression, CA=24, waiting on clinical trial (4 weeks no treatment)
Nov 09: now have brain mets, trial "on hold", getting 14 WBR treatments starting 11/2/09
Dec 09: possible start on p53 trial
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09-22-2009, 10:23 AM
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#28
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
i can't say it any better than any of the others have. just adding lots of love for both of you and LOTS of prayers.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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09-22-2009, 10:41 AM
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#29
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Senior Member
Join Date: Aug 2008
Location: San Francisco
Posts: 260
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Marie, my heart breaks for you. I have been praying for you and Ed since I first read about your journey. I am holding you up in prayer right now as you spend this time with Ed and help him on his journey. No words can really say what I want to say. I am so sorry sweet lady.
I never spoke with God,
Nor visited in heaven;
Yet certain am I of the spot
As if the chart were given.
- Emily Dickinson
__________________
4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
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09-22-2009, 10:50 AM
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#30
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Sending my love, Marie, and praying for comfort for you. Someone told me when my Mom passed that to live well, after she was gone was the greatest tribute I could pay her. You are a remarkable woman, Marie, and you will carry on in tribute to Mighty Oak.
Barb A.
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09-22-2009, 10:54 AM
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#31
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Dear Sweet Marie & Ed,
I am sending waves of peace
Oceans of acceptance
Cleansing white light
And love
We are all with you, during those last days, those last hours. We hold you in our hearts and share the burden. You are surrounded by love.
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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09-22-2009, 10:57 AM
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#32
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Marie, my heart goes out to you. I pray for peace for you and Ed. You know I am only a phone call away if you need me.
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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09-22-2009, 11:02 AM
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#33
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Senior Member
Join Date: Jun 2007
Posts: 216
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Dear Marie,
My heart is breaking for you.
Everyone here is with you and for you and your lovely Ed.
Janie
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09-22-2009, 11:46 AM
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#34
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Senior Member
Join Date: Aug 2006
Location: So California
Posts: 223
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
I'm so sorry Marie. You and Ed are in my prayers.
Lisa
__________________
Leslie's Sister (Lisa)
Diagnosed 5/17/06
Left breast Stage II
5 cm. Her2Neu+++, ER-, PR-
1 positive node out of six,
double mastectomy 6/9/06;
TCH started 7/12/06
last chemo 10/25/06
herceptin ended 6-11-07
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09-22-2009, 12:41 PM
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#35
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
So so sorry, may peace and love be with you both
as you go through this.
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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09-22-2009, 12:44 PM
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#36
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Senior Member
Join Date: Aug 2006
Posts: 492
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Peace and strength Marie
I am so sorry this is happening to you and your mighty (always mighty) oak
__________________
Are we there yet?
Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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09-22-2009, 01:31 PM
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#37
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Senior Member
Join Date: Feb 2007
Location: Paris, France
Posts: 858
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Dear Marie. I am with you in thoughts. I hope Mighty Oak, I admire so much, is not suffering. My words cannot express the sadness of my heart. I send you both all my love and strength. Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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09-22-2009, 01:32 PM
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#38
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Senior Member
Join Date: Feb 2006
Posts: 437
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Deart Marie, I will continue to keep you and Ed in my prayers. May you both be blessed with peace at this very difficult time.
__________________
Linda
Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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09-22-2009, 02:03 PM
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#39
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Senior Member
Join Date: Jul 2009
Location: Sardegna, Italy
Posts: 362
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Marie - I am so sorry! CRAP! I read this as I came home from vacation and I have my best friend here in Italy from Seattle and I started to cry when I read this and couldn't stop --- I am so sorry to hear this.
You are so right to hate this f-ing disease! IT SUCKS! It is bad and evil and it is all things that are not good --- I thank god every day I found this group so that I feel like we all have a connection and can try to fight this. We are all warriors and we have to somehow find a way to kick this beast in the back side and win - if only in a small way every day.
You are still winning as the C can never take your joy. It can never take the love that you and Ed have for each other ... this will always be and will never leave you.
The only words of comfort I know to share now is that I lost a soul mate when I was 25 --- sudden and without saying goodbye and this somehow shaped the next 10-20 years, for me, as it changes you forever. I chose to not let it change me for the negitive, but I chose to find some sort of good and I sense that Ed would like you to do this too. Also, I believe we live more than once, so we have more than on chance at this thing we call life... so, that also means we will find our true soul mates again in the next life. So tell Ed you will find him again --- it is only a matter of human years - and you two will love again, I am sure. It helped me many years ago - and I hope it somehow helps you.
I am sending you lots of love and good energy from my little island paradise - praying for you, crying with you.
With love - Karen
__________________
Karen Wheelhouse Age: 46
Facebook id: Karen Wheel
2-09 – Age 44 -Biopsy-Cancer
3-09 – Right Quadrantectomy. Clear margins.
3 lymph nodes taken - all clear
Tumor results: Stage 1, 1.5 cm, Her2 +++
Est positive 80% - Prog 10% - Ki67 postive 30%
4-09 – Became a vegan! pH balance of body - cancer can't grow in neutral pH!
4-09 Started Herceptin & Chemo (9 weeks of Navelbine *)
* FYI - when coupled with Herceptin has the same results as more toxic chemo. No brainer!
8-09 - 30 RADS
9-09 - Said NO to hormone therapy
4-10 Finished Herceptin!!!!
7-10 PET Scan & other exams .... All clear! YIPPEE!!!!
11-10 Breast, organ Ultrasounds and lung x-rays all clear no changes ... NED!
2-25-2011 --- 2 years from surgery and NED!!!!!!
7-2011 Clear bone scan and full body and head MRI! NED! NED! NED! ;-)[/SIZE]
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09-22-2009, 02:29 PM
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#40
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Marie,
You and the Mighty Oak are in my prayers. My heart aches for the both of you. God be with you both.
Amelia
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