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04-05-2009, 08:44 AM
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#41
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Senior Member
Join Date: Aug 2006
Location: Poland Ohio just a little south of Youngstown.
Posts: 473
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Forgot to add, please take Joes advice and contact your congressman about disability. They can and do work wonders getting it speeded up.
__________________
Susan
Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
Herceptin finished 12/07/07 Yippee!
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04-05-2009, 09:56 AM
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#42
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Senior Member
Join Date: Apr 2008
Location: WA State
Posts: 199
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Marie,
I'm am so sorry to hear this news about your job. Please know that we are all here for you and you can lean on us all for support. Turn this over to God and let Him deal with it and provide you comfort during this time. I am sending up prayers right now for you to have peace during this difficult time. (((Hug)))
__________________
Cindy
L/IDC, 1.2 cm, Stage 1, Her2+, ER+/PR+ at age 48
4/15/2008 Lumpectomy + sentinel node biopsy
Margins neg and Nodes neg (2 tested)
MUGA score 55 on 5/6/2008
Treatment starting 05/08/2008:
Chemo 4 cycles, 3 weeks apart with Taxotere & Cytoxan - Chemo - Done 7/24/2008!
Herceptin for 1 year
Radiation starting in 9/2008
MUGA score 61.9 on 9/04/2008
33 Rads with boost - Done 10/13/2008
MUGA score 58 on 12/01/2008
MUGA score 59 on 3/16/2009
Herceptin for 1 year - Done 4/27/2009
MUGA score 64 on 6/22/2009
All scans - NED 6/24/2009
MRI - NED 11/10/2009
All scans - Still NED 8/25/2011
Still NED 2017!
I am calling this my pink journey
Follow my journey into the pink at my blog here
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04-05-2009, 10:43 AM
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#43
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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so sorry to hear about you losing your job. i will add my prayers with the others that something comes your way soon!
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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04-05-2009, 12:51 PM
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#44
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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So sorry to hear the news. I will be praying for you and
Ed and wishing you the best and the right thing for now.
You have had so much to endure, the have been so strong. Take care
Patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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04-05-2009, 04:07 PM
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#45
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Hi Marie,
I was so sorry to hear this news. You are such a compassionate person. I just "believe" that there will be another job out there for you. I hope that you and Ed will still make it to the conference at the Dana Farber in May. I am looking forward to meeting you both.
Best wishes,
Barbara H.
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04-06-2009, 06:18 AM
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#46
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Senior Member
Join Date: May 2006
Posts: 144
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Hi Marie,
I am so sorry to hear that you lost your job. As others have said, take this time to be with Ed and your MIL. I hope that a better opportunity will come along soon.
take care,
__________________
- Anna
Stage I - DX 9/2005 ER/PR-, HER2+, grade 3, DCIS, IDC multi-focal (1.05cm)
DD 4 A/C finished Jan 31, 2006
Herceptin weekly finished Jan 31, 2007
recurrence to chest wall on last month of Herceptin
Stage 3B - 3/15/07 - 2 carcinomas in dermal lymphatic
Rads finished 6/5/07
12x TH finished 9/10/07
12/07 - Clear scan!
3/08 - 4 month Melatonin trial
1/09 - osteoperosis - start Alendronate
2/09 - 4-month Simivastin trial
3/13 - take drug holiday after 5 years of Alendronate
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04-06-2009, 07:50 AM
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#47
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Senior Member
Join Date: Nov 2005
Posts: 943
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Oh no, I just hate to hear bad news for you. However, I would take the good advise of others here and file for unemployment and compensations that you and Mighty Oak are eligible for. I know a lot of folks who are loosing jobs due to the economy and they are receiving unemployment checks to tie ends over. I will be praying for you and "believe" all will turn out. Praying for you.
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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04-06-2009, 05:32 PM
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#48
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Senior Member
Join Date: Oct 2007
Posts: 203
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Does this one feel like the last straw? Sometimes things keep going downhill and you can't believe it. I've been there.
I also lost my job about 10 days ago, so know that you are not alone, and it is really not about you. Everything will be ok. You are so strong, this is just a tiny bump in the road for you.
Rebecca
__________________
Dx 8/06 Age 43 Stage IIIA multifocal throughout breast, largest tumor 5 cm, grade 3, comedo, ER+PR+HER+++
Neoadjuvant A/C 4X Dose Dense
11/06 Bilateral Mastectomy (no choice on the right, my choice on the left)
Taxol+Herceptin weekly x12, continuing with Herceptin, finished one year in 12/07
33 Rads
Femara for 5+ years, staying on (started with Arimidex, switched after about a month, much happier)
Abnormal brain MRI shows no cancer, but "extensive white matter diease" - unknown cause
BRCA negative - lots of cancer in my family
survivor of thyroid cancer
also have Crohn's disease
CT and bone scan say NED as of 5/13
dx with severe cardiomyopathy 5/12 (likely due to chemo and Herceptin), ejection fraction in low 20's, now up to 40, went to 50, latest read 12/13 is back down to 35
1/13 Acute pancreatitis - are you kidding me?
9/13 started Humira for Crohn's. starting to have some energy again
B12 and Vit D both needed supplementation
Cataracts in both eyes noted 6/12 - surgery in the next 2-4 years?
4/14 Kidney stones/blockage/infection - related to Crohn's Disease
5/14 My aunt passed away - she was diagnosed after I was with Stage I - not Her2+, then Stage 4 for about one year
6/14 Scans - still NED, thank God. However, broken rib (I didn't notice) lots of bone degeneration osteopenia/osteoporosis. I also still have cardiomyopathy secondary to chemo.
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04-06-2009, 09:37 PM
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#49
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Marie, I'm so sorry to hear this. You and Ed are in my prayers.
__________________
For Nicola
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04-06-2009, 10:13 PM
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#50
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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So sorry Marie. I hope things are looking up.
You and Ed are in my prayers.
Karen
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04-07-2009, 10:34 AM
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#51
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Just sending more prayers for peace and resolution! ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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04-07-2009, 11:47 AM
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#52
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Marie
With your strength you will find a new path...this is such a sign of the times...you, Ed and your Mother in Law are all in my prayers.....please know we are here for you!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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04-08-2009, 12:17 PM
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#53
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Senior Member
Join Date: Oct 2006
Location: I live in Christmas, MI - located on the shores of Lake Superior.
Posts: 606
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So sorry - it is hard to add more stress, hopefully in the long run it will mean something BETTER for you. I have seen it happen to people before, so that is what I am going to hope for you.
Regardless, please take care of yourself!
__________________
Barb
10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
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04-08-2009, 10:03 PM
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#54
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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Oh Marie - just know that we are here for you when you are able to check back in. There are no words...
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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04-09-2009, 07:45 AM
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#55
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Senior Member
Join Date: Jan 2008
Location: Oregon City
Posts: 856
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Marie:
I am so sorry to hear you lost your job. You already have so much to deal with without this added grief. Please know that you and Ed will be in our prayers.
Lee
__________________
This happened to Colleen:
Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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04-09-2009, 12:51 PM
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#56
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Senior Member
Join Date: Sep 2006
Location: Chicago, IL
Posts: 105
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Thinking about you today and praying that you and Ed are o.k.
Lisa
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04-09-2009, 01:26 PM
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#57
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Marie,
I am so sorry about your job. I hope you and Ed are o.k. This is the first chance I have had to check the board this week since we are on spring break.
Amelia
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04-09-2009, 06:57 PM
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#58
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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I just saw your post and want to add my thoughts and prayers. You have been such an inspiration to us all-- Surely this will turn out to be a blessing in disguise and give you precious time to be with Ed. Picture a soft white light enveloping you from head to toe--that is God's love. Take a deep breath and exhale slowly, breathing in peace and breathing out stress. You have had so much love to give, surely it will continue to surround you now as we send our thoughts and love back to you, along with our prayers. Hugs, Tricia
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04-09-2009, 10:31 PM
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#59
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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Marie, Very sorry to hear about your job loss. I like that someone mentioned that this could mean a little more time with Mighty Oak. I did just attend a meeting where our representative to Congress in DC spoke. He stated that there were opportunities in the stimulus package and that he had explanations on his website. When you recover from the shock and start to regroup, you might try your local reps and senators websites. Also our small county has job searching support for free. It is difficult to get thru the government maze, but it might be worth it. In the meantime.....I am so sorry about this news. I will be hoping and praying for that next window to open.
One of your cyberpals,
Catherine
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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04-10-2009, 04:31 PM
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#60
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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I sure miss your posts, and kind encouraging words!
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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